3 Burst results for "dany bell"
"dany bell" Discussed on Talking Cancer
"We'll also hear some words of advice from the lovely dany bell. You might recognize her. From previous episodes in the series she's mcmillan strategic advisor for treatment and medicines and she's going to be offering some practical suggestions for those coming to the developed during the pandemic. if you have already started conversations with your family or people that are really important to you about what your wishes are out really encourage you to do that. women melon. I'm talking cancer Lovely to have you with us. Thanks so much for joining us. On the podcast. Great to have you with us today as we've done throughout the series. I'm gonna time stamp. This how you feel but i to me. The information guidance seems to be changing daily. We're recording this room on the twentieth of november twenty twenty and everything we discuss is correct at the time of recording. Now we're discussing a really difficult topic today and of life and i got no doubt that the pandemic has massively debated thoughts around this and i. It's a really emotional time for people at the best of times so adrienne telus wars. The pandemic meant for those who are coming to the end of their lives are still able to visit them at home. Can they get the hospice care. Support for example so many questions. Where do we salt. Okay so i guess amer. It's really worth acknowledging that irrespective of a pandemic so difficult for somebody that is approaching end up ended alive and for their families. The loved ones around them. So that's being made a million times worse for people. Obviously because of all the as he said the government guidelines changes in them. It really difficult to understand what you can and can't access from a support perspective and that's been really hard people another thing i i just wanted to talk a little bit better as well as what we mean by end of life care because i think sometimes people think he's just those last days minutes of life but actually you know when when health professionals talk about end of life care and particularly somebody with cancer is more about somebody who's got for instance an incurable cancer. But they may well have quite a long period of time to live and it may be year months weeks days hours of life. It can be any of those things where it's important that people do get. The supporters areas is possible to then have that continuity to develop relationships with the professionals. So what's what. Impact has the pandemic count. It's obviously made it more difficult. For people. I think particularly the owning the pandemic. It was really hard because people couldn't go to hospital thought they couldn't access services. Were really frightened. Which didn't take you help. People in accessing the support the need but i do want to racial people. They can get that support they can have. District is coming into their homes. You can still go to a hospice. You mentioned hospice daycare. So the helping some services that had to have to be adapted for instance oh some hospices have had to use that daycare and adopted and change into impatient provision in particular when there were more beds needed to clear early on in the pandemic But some of the services is still being delivered in moore's and outpatient and i guess the other thing is to acknowledge that actually health care professionals. Visiting people hiding particularly they really are trying to reduce contact so they don't want to spread the virus the being really cautious so the maybe situations where people are still accessing the services but it may be in a virtual way it may be by telephone it may be a video call and they have less face to face contact which is obviously hard for people. Because they won't see you know a real person in the flesh so to speak But they are still able to access all of those services. There's just expanding a little bit on the palliative care that people can expect at home and yeah that's been a particular concern that we've been hearing mcmillan. Can you just maybe dig a little deeper into what people can expect. And who they might talk to those pathways of communication in order to get the best out of that. Politics can expect at the moment so particular home. The are very different aspects appellative. Kelly can access to palliative care that they can get through the gp through that district nurses community. This is coming to their homes. Could be physio could be occupational therapist and it could be for instance mcmillan special peleliu team which may be especially pud canada's when things are more complex and i guess if people already struggling there are lots of other means of support as well so through local hospices in some areas not areas. There is a million support line which is available seven days a week eight. Am to eight pm. That can offer guidance and support. We got amazing web site. You know you can get all sorts of information on that and also boots pharmacies which rebelled sport people with a urgent supply and delivery of medication which is absolutely vital for people. Because obviously you know the moyal condition deteriorates more likely. You're going to need more complex. Medication can also get virtual -pointment with boots mcmillan information pharmacists. Who can give you and your loved ones and carries information about medication and any potential side effects as well as guiding people most fascist information support. So you can. Book of virtual appointment with boots boots dot com slash. One of the things that's creating the most things -iety amongst people patients relatives harrah's is consistency. A dream would it be fair enough to say. I think with the changing landscape as frequently as is On various areas of the country dealing with this pandemic in their own way to a degree area to area. The is still really important to check with your healthcare professionals. Because what might be a okay. One place isn't the oak is an okay in in another for example. Yeah absolutely fat to say and so there is different provisions across the uk. Know even the fact that we've got four nations who have different guidance so it's really important even within your own country within your own local area if you're being provided support by a healthcare provider for instance they may have different rules and regulations so each hospital will have their own policies about visiting things like that. The community teams will work slightly differently again to fit in with the local needs in the local services. So you absolutely do need to check in with whoever. Your point of contact is whether it's a specialist punter cavernous whether it's your melon nurse that the hospital and whichever the provider is it might be. An acute oncology nurse for instance but but do speak to them about what you can access. We're in the middle of a pandemic. And i guess one of the biggest worries seem so obvious really Is that what happens if somebody is coming to the end of their life and they catch corona virus. What what happens. Then i mean. That's it's hard to believe that. But i'm of course it is in a might happen. What should they do if they're getting symptoms. Yeah so obviously somebody who potentially might be having still palliative chemotherapy approaching their ended. The lives in his going to be for instance. You're more susceptible but that would be the case. If we went in mitzvah pandemic can they could be more settled. Things like a chest infection. So don't feel too alarmed. You know lots of people managed to cope with coronavirus have not. Don't have extreme symptoms. Sometimes people just have lots of taste with might have you know a persistent cough or whatever but it's really really important that you notify your health provider and try and get tested as quickly as possible and follow all the government guidelines as you would in any situation too so it's about reducing any contact about tran stain isolation but i want to reassure people that can still get the support that they need even if they were to get grown virus.
"dany bell" Discussed on Talking Cancer
"Basically our smallest Michael have to eat smaller portions more often about five or six times through the day when when when the surgeon was telling me they explain that and he said all right. I said Yeah. That's fine. You do what you need to do. Just going with the flow. So long as you can get me cancer-free that's absolutely fine. You just do what you do. I'm I'm very excited for you. Does it feel like there's light at the end of the tunnel definitely and north of people? They don't have that light and the have through my twitter feed through a blog have connected with people and have met with people who unfortunately asked edge for and this definitely at the end of the tunnel for me. It's difficult because it's it's not there for everybody but there's there is an when our meet people they're saying things like. I'm going to make the most of the time. Now I've got some glimmers of light for everybody it's just it's just different light for different people. One of your lights has been your blog which is brilliant and funny gorgeous and lovely and and I'm sure has has made a massive difference to how you've dealt with all. This was an immediate thought. Did you think I've gotTA write this down? I've gotta write this down you. Are you a writer knowing? This lights? a holiday twitter feed 'em a dump that quite quickly and then got a new twitter feed and that was specifically focused around me and cancer. One of the main things I wanted to do when I was diagnosed was I guess to help with is being a nurse. You want to be able to help with is in terms of their healthcare and it also gave me a purpose as well so. I worked fulltime and when I started my chemotherapy I stopped and I thought what am I going to do? So I started writing these these tweets and quickly got to realize I've got a lot more to talk about. Then they set number of characters. That twitter's giving me on a tweet and people were saying writer blog right blocking us in Conrad a blog of never written a blog. I don't even read blogs. Do People read blogs in him? I didn't know so a very quickly to start. Actually you guys are right. I'm going to start writing a blog. So focus them around very specific areas around concern around. Saggio CANCER RECIPES THAT. Make it easy to swallow what my slots been like. How pick line was done to give people a bit of a a timeframe of all right? This guy waited for weeks for this to happen. Are This is what this person experienced. And it's quite therapeutic for me as well because I get to write down. What's in my head so I get a bit of something positive for me as well. Getting out getting clear people come back. Say and that was really helpful. Mud Scott they saw I'm experiencing they really good to know what might happen to me as well. So there's definitely positive feedback coming from which is all I want. I'm actually just thought no one's going to beat this. My friends might join not state. But there's so many people that read in the recipes. Tell me about the recipes. I see a master chef challenge so one of the things that I found quite difficult knowing. What would be easy to swallow and things that you wouldn't even think would eat as well as people say. Toast anything what toast is dry. Thanks crackers really easy to swallow. That doesn't make any sense. It makes no sense so one of the things I wanted to do was put some healthy recipes out there that would try and stay away from things like refined sugar. Try US more. Natural things like Maple Syrup or honey also things that are going to be easy to swallow really am so things like jolly prawns seafood with was with me for longtime fish and seafood because it was easy to swallow so golic King Prawns garlic mushrooms. Similar is a bit of lubricant in. La Books at our oil. That's that's going to be easy to go down and something that's got taste as well so thankfully my tastes and the moment haven't been affected but I know that the might do in the future but people generally have like a bit metallic taste when the things off throughout the day. So I wanted something that's spice or something flavor to kind of take that away. It's really lovely to meet you and speak to you in you know And share such a positive outlook. And what's the what does the future look like more immediate future? I guess is get through treatment. Get through surgery an Komo on the other side hopefully and things so it quite positive one of the things that has really hit home is a really enjoyed making connections with people who were in the same situation as me. I been through something that somebody is going to be through. And you do almost connections and it has made me think to myself actually. Is there a future in this for me of really enjoyed it and looking at at things like McMillan is this? This is something I can do in the future to be working with a million future. I'm definitely going to be raising money at some point of raise MARINA PASTA FERRUM. Mcmillan before I did the National. Three P twenty four hour challenge back in two thousand and nine. So this is your from Yorkshire. You do this in your city. You guys it's like literally going for a walk for everybody now. I'm very impressed. Yes so are you. Are you saying we are you? I mean could there be milliner in possibly who knows what's the space. It's definitely something I've thought about. Fish are definitely million in and the really helps me unto for me to continue my journey. Hopefully being cancer free with somebody like McMillan would for me would be amazing because I've enjoyed it so much. So yeah maybe on the cards listen. You are literally the that you are literally the perfect combination of of of having experienced natural instinct for caring as a nurse and you can bank coffee mornings exactly. Come on and on that note. Ben Thank you so much. We wish you the best of luck with the rest of you treatment and we will speak to you again. I'm sure in the future but fundraising activities way or life has found itself in Q. Hello date lovely to see you. Dany Bell is one of our magnificent McMillan professionals. What were your thoughts on listening to Ben Story? What he describes really is a lot of people experience when they get a diagnosis in go through treatment with with cancer. So I'm sure a lot of people identified with Ben. He had an interesting combination treatments as well. He had chemotherapy and then surgery And he had no idea that there were so many different types. I know I mean is mind boggling but they are all fairly standard treatment regimes for different types of cancer. And as I said before they're they're given acronyms to make it easier for the professionals to understand but it's not an unusual process for some cancers to have what we call neo atrovent than surgery and some people. Then have something after that as well so it depends on the type of cancer and your response as well to treatments Ben. We know took his fantastic with him. Who took a notebook and a pen to write things down? Don't Google obviously answer some questions for some people If you WANNA find out more about the treatment you've been prescribed. Is this better to go to. There are lots of information sources out there about the different treatments. Essentially the treatment center will have fact sheets or information about the types of treatment that you're having but what they need to understand is what type of side effects that you're likely to get just in case you need support hours equally going to go and hopefully Hitting on one of our web pages We'll give you understandable information. And there's lots of downloadable information of the Internet from our website. That people can use Dania. You entitled to a second opinion. If you don't want a certain type of treatment absolutely you can ask your specialist. If it's possible to be referred somewhere for a second opinion and sometimes you can go to your gp for that as well but the specialist likely to know some people will actually look it up and they will look up their condition and they will compare to other hospitals so but you you do have to have a referral. Unfortunately you can't just rock up so my advice would be if anyone wants a second opinion than they just have to have an open and honest conversation with with their consultant. Ben gave us a super tip about his cancer bag that he took. What are the kinds of things that you see that you you can tell us about preparing people for treatment? One one of the things that people often struggle with is the traveling to from treatment. That takes its toll loss of appetite feeling tired and so sort of planning for that around your kind of Treatment regime can help And just making some adjustments to kind of make it easier for yourself I mean if someone like me I'm always rushing around and I have to do everything but appropriate wouldn't be up to do that and I'd have to make adjustments and not have to accept help and for some people then used to accepting help so I think it's Having an understanding of what your treatment regime as what the potential side effects might be and then also after you've had the first treatment you'll have a clear indication of how it might impact you So that you complain talking about side effects then bless him did lose his beloved quiff. Quick thing about Harry goes back so we will see the quick again taste. Buds are okay. But what are the common side effects of a generalized chemotherapy radiotherapy plan so nausea and? Dara our common one for some people they have Harry saw mouth and added to losing your taste that can be really really challenging in terms of eating some people get issues with Sensations the tingling didn't he yes yes so you can also get something we call it hand on. Foot Syndrome where you get painful sore palms and sometimes blisters. It depends on what type of drug regime you're having and I've heard people say in terms of treatments of all of the treatments. The chemotherapy is what they found the hardest cope with. Tell us a little bit about losing your hair because it was really interesting talking to a man because I think everybody assumes that it's it's just women and we all the people that would care about it but it is a common side effect other alternatives now available to to reduce that to help that there are. I mean there is the coke cap but not in itself seems like an experience that you have to kind of be resilient to coping with just to keep keep your and when you think about how great some wigs are out there made of natural hair and you know. I've come across people and you wouldn't even know that. They're wearing a wig It's very individual really very individual. But I think the the thing to remember it's not just the hair on the head that they lose. They'll lose their eyebrows and their eyelashes. And so it's that whole look really That's tough year. How do you know when you treatments working? Do you feel better How do they tell you yes? This is going to plan the do that by monitoring. So they'll do that with blood tests scans And generally they. I mean because you obviously have to have blood test to make sure you're well enough each time to your body's well enough to cope with the chemotherapy Site before each cycle. You will have a blood test but usually about three months in. If you're on six month regime they'll do a sort of a stocktake and see what the impact is. Do you have regular meetings with your oncologist during that time? Will you dealing with treatment centers? So so you will.
"dany bell" Discussed on Talking Cancer
"Absolute pleasure to speak to you. I will thank you so very much. Thank you Dany Bell McMillan Professional. Hello Lovely Lady. It is great to have you back again. What an inspiration errol is. Would you make of his story? Oh absolutely an inspiration. I think For men they're not great at talking of a now. We talked to him about life after cancer. Can you please explain remission versus cancer free? Okay so they are very different things But unfortunately sometimes professionals or public perception intertwine them so when somebody is in remission and you can be impartial remission or complete remission And it's really that remission is really that the Kansas not active partial remission is where maybe you've still got some cancer cells but they're not causing you any problems and complete obviously is the Kansas being held at bay or clear. Tends to come when you've been in remission for period of five years with no active cancer and then your condition may be enough to say you are all clear at that point so it's really important to understand that during this remission period from the moment that you'll cancer treatment stops through those partial remission to clear what are the kind of what does recovery look like You've had this incredible trauma the treatment. Whatever that has looked like for you individually What can period then begin to look like so? It is very different for different people. And we've talked about this. Before different types of cancer and different treatments have different impacts so that makes it very individual but there are common things that people struggle with energy I'm fatigue is a is a big one And that can take some while to actually recede but some people struggle with it long-term anyway. Some people have problems with pain as a result of treatment and unfortunately some people will have long term problems With pain just because of the impact of the type of treatment. They've had on their body. And and pain fatigue can be quite intertwined and then unfortunately have a knock-on effect on your emotional wellbeing. Well I was I was GONNA say because they will talk quite quite openly about the effect that his cancer had On his sex life. How do you maintain your emotional health as well through this other places to go? Is it an again something that you should you should talk about when you go back to see your? Gp OVER YOUR CHECKUPS. I think GPA is a really good starting point. Sometimes people aren't necessarily comfortable with talking openly about things that they find embarrassing would prefer to talk to the GP about two and GP's are Used to talking to people and helping people that have like arrowhead erectile dysfunction after Treatment so certain types of cancer treatment have a physical impact on how your kind of sexual activity happens but also some people have has psychological impact on their body image and so there are lots of different reasons. Why my impact on your sexual health and your sex life which actually has a massive emotional impact and there's there's all the people say that GP can refer counseling you join groups where people who've experienced the same thing and learn how they've overcome some people find that very helpful to once you're in remission you own sort of send out into the big world and let go there will be checkups. What does what what do they look like is that is that a visit to the GP say how you feeling a return to the oncologist for Something a little bit more invasive so that's a really good question because historically people always went back to the hospital for a clinic appointment and then they would have their surveillance tests but things have changed and we recognize that actually for some cancers particularly Kansas that very low risk. Gp's manage and monitor them and so you may just go and have a blood test regularly and the GP let you know the result of that and actually we even have electronic systems now where I can actually look up their own blood results. And there's lots of information that goes alongside that so they know how to interpret them so PSA which is our talks about is one of those where they're in some areas. They have a remote surveillance system that patients themselves have access to for other people is going back to see the specialist on every sort of You'll find it will be three to six monthly the first year and then actually wants your kind of two years with stable disease. You'll have an annual check. So you know the the longer you're in remission so to speak that the less frequently you go but you will always have an annual surveillance tests and that can be a scan a blood test or both whatever is needed all just absolutely overflowing with positively such great guy to be around but he he he has worries that it might come back at so. There are emotional scars that it leaves as well. I think that's what we highlighted is a very common problem and you'll often hear people say once you've had you always have cancer even when you don't have active disease because it's always in the back of your mind and You know when a scan or an appointment coming up people will get more anxious than normal and and that's understandable in reality. You know that fear of the cancer coming back is very genuine and people need to find their own ways of of dealing with that for some people it might leave hypersensitive to any ailment. That might be you know a around Wendy you. When do you know whether it's something serious that you know? It's not just it's not just a cold. It's something you need to go and get checked out as a hard question. No no no but actually There are indications when you've had a particular cancer what the likely recurrent symptoms will be I'm people should be informed of those by their specialists team and the GP should be aware of those as well so You can be more vigilant about those and of course obviously if you have something persists for three to six weeks then you shouldn't hang around really it's always best to get it. Checked out was most. Mina almonds will recede within that time. And it's just you know so if you have a back ache because you've heard you back it shouldn't last for a protracted period Unless you've done some damage but then you would need to seek help anyway but so You know so if you have a back ache and you have had cancer where Secondary Bone cancer risk. Then you should know that if if that back pain persists you should go and seek help. So he should be given information so that you could monitor but equally put get very anxious about every ache or pain A maurienne someday. There are lots of telephone support services now so even the specialist teams the cancer nurse specialists would much prefer somebody just ringing and checking and mortar. Not they can relieve anxiety over the phone. Finally Dany if you're a friend or a relative of someone who was recently in Remission. They can still offer support if there's somebody listening. What's your advice to friends and family? I think I think the biggest advice as to carry on Life with that person you might need to make some adjustments if they're fatigued but tight make big delivered be understanding and still do the things that you enjoy doing together equally some people with cancer CEO. No one more talk about it. You know and I'm struggling with all this. I look okay. It's okay to ask people if they're all you. Okay today you know. Is Everything all right so An most of is normal behavior. So don't be afraid to have the normal conversations that you would you would have and do do the normal things that you like doing with your friend or your family member. Danie thank you so very much and my thanks to Arrow for coming in to tell a story to get more information about what we've talked about in this episode go to our website. Mcmillan DOT ORG dot. Uk forward slash talking cancer. Next time we're talking about dealing with the end of someone's life with Max we're sitting Rhonda hostile bed in Coventry are then one of the start cry and immediately do the same thing that lows Boudin. Sorry Straightway I think as my daddy said no it's gonna be rubbish is so we cry together. Subscribe if he'd like to hear that and every new episode whenever it's ready and if you enjoy the series why not give it a rating or a review? It helps other spun the podcast more easily. I'm an obey talking. Cancer is a cancer support podcast..