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"adrienne telus" Discussed on Talking Cancer
"We'll also hear some words of advice from the lovely dany bell. You might recognize her. From previous episodes in the series she's mcmillan strategic advisor for treatment and medicines and she's going to be offering some practical suggestions for those coming to the developed during the pandemic. if you have already started conversations with your family or people that are really important to you about what your wishes are out really encourage you to do that. women melon. I'm talking cancer Lovely to have you with us. Thanks so much for joining us. On the podcast. Great to have you with us today as we've done throughout the series. I'm gonna time stamp. This how you feel but i to me. The information guidance seems to be changing daily. We're recording this room on the twentieth of november twenty twenty and everything we discuss is correct at the time of recording. Now we're discussing a really difficult topic today and of life and i got no doubt that the pandemic has massively debated thoughts around this and i. It's a really emotional time for people at the best of times so adrienne telus wars. The pandemic meant for those who are coming to the end of their lives are still able to visit them at home. Can they get the hospice care. Support for example so many questions. Where do we salt. Okay so i guess amer. It's really worth acknowledging that irrespective of a pandemic so difficult for somebody that is approaching end up ended alive and for their families. The loved ones around them. So that's being made a million times worse for people. Obviously because of all the as he said the government guidelines changes in them. It really difficult to understand what you can and can't access from a support perspective and that's been really hard people another thing i i just wanted to talk a little bit better as well as what we mean by end of life care because i think sometimes people think he's just those last days minutes of life but actually you know when when health professionals talk about end of life care and particularly somebody with cancer is more about somebody who's got for instance an incurable cancer. But they may well have quite a long period of time to live and it may be year months weeks days hours of life. It can be any of those things where it's important that people do get. The supporters areas is possible to then have that continuity to develop relationships with the professionals. So what's what. Impact has the pandemic count. It's obviously made it more difficult. For people. I think particularly the owning the pandemic. It was really hard because people couldn't go to hospital thought they couldn't access services. Were really frightened. Which didn't take you help. People in accessing the support the need but i do want to racial people. They can get that support they can have. District is coming into their homes. You can still go to a hospice. You mentioned hospice daycare. So the helping some services that had to have to be adapted for instance oh some hospices have had to use that daycare and adopted and change into impatient provision in particular when there were more beds needed to clear early on in the pandemic But some of the services is still being delivered in moore's and outpatient and i guess the other thing is to acknowledge that actually health care professionals. Visiting people hiding particularly they really are trying to reduce contact so they don't want to spread the virus the being really cautious so the maybe situations where people are still accessing the services but it may be in a virtual way it may be by telephone it may be a video call and they have less face to face contact which is obviously hard for people. Because they won't see you know a real person in the flesh so to speak But they are still able to access all of those services. There's just expanding a little bit on the palliative care that people can expect at home and yeah that's been a particular concern that we've been hearing mcmillan. Can you just maybe dig a little deeper into what people can expect. And who they might talk to those pathways of communication in order to get the best out of that. Politics can expect at the moment so particular home. The are very different aspects appellative. Kelly can access to palliative care that they can get through the gp through that district nurses community. This is coming to their homes. Could be physio could be occupational therapist and it could be for instance mcmillan special peleliu team which may be especially pud canada's when things are more complex and i guess if people already struggling there are lots of other means of support as well so through local hospices in some areas not areas. There is a million support line which is available seven days a week eight. Am to eight pm. That can offer guidance and support. We got amazing web site. You know you can get all sorts of information on that and also boots pharmacies which rebelled sport people with a urgent supply and delivery of medication which is absolutely vital for people. Because obviously you know the moyal condition deteriorates more likely. You're going to need more complex. Medication can also get virtual -pointment with boots mcmillan information pharmacists. Who can give you and your loved ones and carries information about medication and any potential side effects as well as guiding people most fascist information support. So you can. Book of virtual appointment with boots boots dot com slash. One of the things that's creating the most things -iety amongst people patients relatives harrah's is consistency. A dream would it be fair enough to say. I think with the changing landscape as frequently as is On various areas of the country dealing with this pandemic in their own way to a degree area to area. The is still really important to check with your healthcare professionals. Because what might be a okay. One place isn't the oak is an okay in in another for example. Yeah absolutely fat to say and so there is different provisions across the uk. Know even the fact that we've got four nations who have different guidance so it's really important even within your own country within your own local area if you're being provided support by a healthcare provider for instance they may have different rules and regulations so each hospital will have their own policies about visiting things like that. The community teams will work slightly differently again to fit in with the local needs in the local services. So you absolutely do need to check in with whoever. Your point of contact is whether it's a specialist punter cavernous whether it's your melon nurse that the hospital and whichever the provider is it might be. An acute oncology nurse for instance but but do speak to them about what you can access. We're in the middle of a pandemic. And i guess one of the biggest worries seem so obvious really Is that what happens if somebody is coming to the end of their life and they catch corona virus. What what happens. Then i mean. That's it's hard to believe that. But i'm of course it is in a might happen. What should they do if they're getting symptoms. Yeah so obviously somebody who potentially might be having still palliative chemotherapy approaching their ended. The lives in his going to be for instance. You're more susceptible but that would be the case. If we went in mitzvah pandemic can they could be more settled. Things like a chest infection. So don't feel too alarmed. You know lots of people managed to cope with coronavirus have not. Don't have extreme symptoms. Sometimes people just have lots of taste with might have you know a persistent cough or whatever but it's really really important that you notify your health provider and try and get tested as quickly as possible and follow all the government guidelines as you would in any situation too so it's about reducing any contact about tran stain isolation but i want to reassure people that can still get the support that they need even if they were to get grown virus.