Aired 1 year ago 2:18
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Aired 1 year ago 2:00
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Aired 5 months ago 27:55
Living a Happy, Full Life
Fatima Mohammed-Ighile learned to advocate for herself and has begun to advocate for others with Sickle Cell Disease. People who have regular lives and struggles and hopes and dreams also have sickle cell disease and are just trying to live a happy life, a happy full life. That's all. Welcome to this eighth in a series about Young Adults with Complex Medical Conditions Transitioning from Pediatric to Adult Medical Care. Blog subscribers: Scroll down through show notes to read the post. If you'd like to listen to the podcast, click here or the title Subscribe to Health Hats, the Podcast, on your favorite podcast player Please support my blog and podcast. CONTRIBUTE HERE Episode Notes Prefer to read, hard-of-hearing or deaf? Find FULL TRANSCRIPT at the end of the other show notes or download the printable transcript here Contents with Time-Stamped Headings to listen where you want to listen or read where you want to readÂ (heading. time on podcast xx:xx. page # on transc Introduction 01:09. 1 My bodyâ€™s not working: Sickle Cell 03:02. 2 Is it that kind of pain? 05:32. 2 Advocating for myself 08:03. 3 Going away to college. Oh my! 12:25. 4 Doors open 15:37. 5 Coming out with Sickle Cell. Building community 16:58. 5 Trying to live a happy, full life 21:12. 7 Front row seat 27:00. 8 Previously in series (newest on top) #018 Raising Me to be a Good Person #017 What is Today, Isnâ€™t Necessarily Tomorrow - Amy Gleason #016 Finding a Style that Works - Morgan Gleason #014Â Looking Out for Each Other - Alexis and Sara Snyder #013 Not One Transition. Many - Alexis Snyder #012 16, Sophomore, All-in - Sara Snyder #011 Three young adults. 22 years - Jill Woodworth Young adults crossing the threshold from pediatric to adult healthcare Links Sickle Cell Coalition Notes Credits Music by permission from Joey van Leeuwen, New Orleans Drummer, Composer Photo byÂ Ifrah AkhterÂ onÂ Unsplash About the Show Welcome to Health Hats, empowering people as they travel together toward best health. I am Danny van Leeuwen, a two-legged, old, cisgender, white man with privilege, living in a food oasis, who can afford many hats and knows a little about a lot of healthcare and a lot about very little. Most people wear hats one at a time, but I wear them all at once.Â We will listen and learn about what it takes to adjust to life's realities in healthcareâ€™s Tower of Babel.Â Let's make some sense of all this. To subscribe go to the blog https://www.health-hats.com/ Creative Commons Licensing The material found on this website created by me is Open Source and licensed underÂ Creative Commons Attribution. Anyone may use the material (written, audio, or video) freely at no charge.Â Please cite the source as: â€˜From Danny van Leeuwen,Â Health Hats. (including the link to my website). I welcome edits and improvements.Â Please let me know.Â firstname.lastname@example.org. The material on this site created by others is theirs and use follows their guidelines. The Show Fatima Mohammed-Ighile 20190219 I just want to create awareness about what sickle cell disease is. That it's human beings who have it. People who have regular lives and struggles and hopes and dreams also have sickle cell disease and are just trying to live a happy life, a happy full life. That's all. Introduction Health Hats: Fatima and I first met as colleagues on the same team working for Advocates, Inc., in Framingham, MA.Â We worked together in Quality Management for this organization that supports 23,000 people with disabilities. Quickly I learned that Fatima had Sickle Cell. We bonded over working with chronic illness and clothing. Fatima wore gorgeous colorful hajibs and I wore colorful bowties. People would ask us if we texted before work to color coordinate. I've learned so much from Fatima. She was curious, questioning, and driven. I actually became more comfortable owning that I was an old white man of pri...
Aired 4 months ago 5:20
Pioneers: Wangari Maathai
Todayâ€™s pioneer is Wangari Maathai (1940 - 2011), an environmental and womenâ€™s rights activist who won the Nobel Peace Prize in 2004.