19 Burst results for "Retinitis Pigmentosa"
WCPT 820
"retinitis pigmentosa" Discussed on WCPT 820
"Fights retinitis pigmentosa, a blinding retinal disease. But even while his vision is taken, his family gives him hope. Because whether he's helping run their business or enjoying time at home with his wife and sons, Mark knows he's not fighting alone. For for 50 years, the Foundation Fighting Blindness has funded research into treatments and cures for blinding diseases, providing real hope to those fighting vision loss. And our nationwide community of local chapters provides networking and support for people with vision loss as well as their loved ones. Because the best way to fight against blinding diseases is to fight together. And for Mark, winning the fight against vision loss means being there for his family. The Foundation Fighting Blindness. Together, we're winning. Learn more about how you can help us end blinding diseases at FightingBlindness This is WCPT 820, where facts matter. Tom program. Hartman Welcome to the second hour of our program. On the line with us is our old buddy Phil Itner, the veteran war correspondent based in Kyiv, Ukraine. Today, I believe in this story. Thanks for watching. The video blog over there. It's really great. You need to check it out. All you need is his name. It's spelled, it's Philip Itner, P -H -I -L -I -P I -T -T -N -E -R. Itner Philip, by the way, is his Twitter slash X handle. Itner Philip, I -T -T -N -E -R P -H I -I -P. -L Phil, welcome back to the program. I am hearing drones, drones, drones. What's going on over there? Well, it seems to be that the Ukrainians have really put it to the Russians with just waves and waves of drones hitting as far away as approximately 400 miles as the crow flies, but much further if you take into account territorial integrity of Belarus and the Baltic states, because what the Ukrainians have managed to do is strike an airfield out of a town called Pskov, which is really more near St. Petersburg than it is near Moscow, and they struck these what called are heavy movers, these large cargo planes, Ilyushin 76s, and these are the things that move around artillery, armor, this kind of heavy, heavy equipment that the Russians use to move around their nation. vast We use a similar aircraft, that would be our C7, but we tend to do that on transatlantic flights, but these are planes that are approximately at least $20 -30 million, and they're damaging them, almost to the point of destroying them with drones that cost approximately around $20 ,000, so you do the math, and the Russians are furious. Yeah, now are they launching these out of, is this 400 miles from the Ukrainian border, and are they being launched out of Ukraine? Well, it's 400 miles, As I say, it's 400 miles as the crow flies, but a straight line from the Ukrainian border to Pskov, would fly you over Belarus, or yes, the the of possibility something being launched from the Baltics, now that opens up a whole can of worms, and it's not confirmed, there's a lot of Russian speculation and accusations being flung at the the Baltics, but the Ukrainians, in a very weird, not weird, but in a very unusual turn, have actually openly said that no, this is a new technology that we're using, Zelensky himself saying these are Ukrainian developed in Ukraine for long -range strikes into the depths of Russia, where they don't think they can be hit, like this airfield outside of Pskov. If it turns out, however, that they were launched from the Baltics, we're in a whole new phase of things, because even if Baltic the states, if territory was used without their direct knowledge, still that's going to be a big, big issue with Moscow. So until it's proven by the Russians, the Ukrainians are continuing to say, no, it was us. Again, unusual for them to outright say that they did it, but it does mean that they're going to take the fight to Russian territory, the Russian homeland, with these drones that can strike farther into the Russian the aren't Russians happy and they're responding. The Baltic states being Estonia, Latvia, and Slovenia. And NATO member states. Yeah, actually. And if Russia was retaliate, to then boom, we would be in something really serious. That's article five immediately and we're in a whole different situation. That's correct. Wow. Amazing. So yeah, these drones. So, so you're suggesting that a drone traveled more than 400 miles from Ukraine into Russia to blow something up. If it blew something up, it had to be carrying a fairly heavy payload. 400 miles is a hell of a long distance to travel on, on, on what, a NiCad battery? I mean, these, are are these fossil fuel powered or are they electric? Also, I mean, you know, how did they not get spotted? Is it, is it that the drones are better than missiles because they don't leave a heat signature? Well, they fly, they fly at lower elevation. You're right. They don't have quite the heat pattern that a missile would have or an aircraft, a proper sized aircraft would, obviously. You know, I say that it is 400 miles, but again, it's Tom, 400 miles as the crow flies. So you're, you're entering into, if it is to be believed that they flew directly those 400 miles, then they're entering into Belarusian airspace and then exiting Belarusian airspace into Russian airspace and then attacking Pskov. Alternatively, what you're looking at is the the drones flying around Belarusian airspace, all the while in Russian airspace and then, you know, and then striking at Pskov, which would mean it would be more like 500 or even 600 miles. Isn't there another option? Isn't there another option that these drones actually were launched from within Russia by Russian partisans who are Ukraine - Entirely possible. Entirely possible also entirely possible to be launched off to some sort of sea platform in the Baltic Sea, which would be international waters. So you could do that as well. But here's the important thing, Tom, before we go into speculation, and this is also Russian speculation, because they can't accept, they can't stomach the idea that the Ukrainians are becoming incredibly at adept what it is that they're able to do with these drones. They are at the forefront of drone technology at this point. They are innovative, they are doing all sorts of, I mean, they have a, in essence, a cardboard drone that they have developed, which of course can't be picked up by radar or any kind of intercepting signaling. So the Ukrainians are developing these things, and while they're able to infiltrate Russian airspace and strike deep into Russia, what we seen have seen by the
Thom Hartmann Program
Fresh "Retinitis Pigmentosa" from Thom Hartmann Program
"It's 4 a .m. Monday and you're literally sucking baby snot through a tube because she's congested. Man that's love. And if you love her that much love her enough to make sure she's buckled the in right car seat. To make sure your child's in the right seat for their age and size visit NHTSA dot gov slash the right seat. Show them you love them. Keep them safe. Visit NHTSA dot gov slash the right seat. Brought to you by the National Highway Traffic Safety Administration and the Ad Council. Every day Mark fights retinitis pigmentosa, a blinding retinal disease. But even while his vision is taken, his family gives him hope. Because whether he's helping run their business or enjoying time at home with his wife and sons, Mark knows he's not fighting alone. For 50 years the Foundation Fighting Blindness has funded research into treatments and cures for blinding diseases, providing real hope to those fighting vision loss. And our nationwide community of local chapters provides networking and support for people with vision loss, as well as their loved ones. Because the best way to fight against blinding diseases is to fight together. And for Mark,
WCPT 820
"retinitis pigmentosa" Discussed on WCPT 820
"News We Know do one thing this tragedy would never have happened, but for Russia's needless Invasion of Ukraine and business updates these are banks that people rely on to get cash and we need to make sure that they are protected and factual conversations CPT 820 Chicago's progressive talk transitioning from being a Marine to a civilian was very hard. I lost my purpose. I lost The drive that I had that is a very dark and lonely place to be it took me surrendering to myself to get the help that I needed At my very first one warrior project event. I met Ray Pizarro. He You need to have the courage to forgive yourself for the things you've done in the past. I got it tattooed on my hand one night my depression kept telling me we can end this and Just before I was about to pull the trigger. I looked down at my hand And that's what saved my life that night. That was the beginning of my incredible Journey with the wounded warrior project see how we help warriors combat stigma at wounded warrior project .org slash combat stigma Every Day mark fights retinitis pigmentosa a blinding retinal disease, but Even while his vision is taken his family gives him hope because whether he's helping
WCPT 820
"retinitis pigmentosa" Discussed on WCPT 820
"And a community connection. It's the backbone of the emergency alert system. It's critical that we keep AM radio in cars because when cell and internet services are down, this free emergency service could be your only lifeline. Text AM to 886 and tell Congress we need AM radio in cars. Message and data rates may apply. You may receive up to four messages a month may and text you stop to stop. This message furnished by the National Association of Broadcasters. And we're live here outside the Perez family home just waiting for the and there they go. Almost on time this morning. Mom is coming out the front door or strong with a double arm kid carry. Looks like dad has the bags daughter. He's bringing up the rear. Oh, but the diaper bag wasn't closed. Diapers and toys are everywhere. Oh, but mom has just nailed the perfect car seat buckle for the toddler. And now the eldest daughter who looks to be about nine or ten has secured herself in the booster seat. Dad zips the bag closed and they're off. Ah, but looks like mom doesn't realize her coffee cup is still on the roof of the car and goes. Oh, that's a shame. That mug was a fam favorite. Don't sweat the small stuff. Just nail the big stuff. Like making sure your kids are buckled correctly in the right seat for their age and size. Learn more at NHTSA gov slash the right seat. Visit NHTSA .gov slash the right seat. Brought to you by NHTSA and the Ad Council. Every day Mark fights retinitis pigmentosa, a blinding retinal disease. But even vision while his is taken, his family gives him hope because whether he's helping run their business or growing time at home with his wife and sons, Mark knows he's not fighting alone. For 50 years, the Foundation Fighting Blindness has funded research into treatments and cures for blinding diseases, providing real hope to those fighting vision loss. And our nationwide community of local chapters provides networking and support for with people vision loss as well as their loved ones because the best way to fight against blinding diseases is to fight together. And for Mark,
WCPT 820
"retinitis pigmentosa" Discussed on WCPT 820
"What's wrong with you? Did I say that aloud? I was just thinking in my head and it must come out. So creeper. The devil's advocate weeknights at seven on PTA 20 Chicago's progressive talk frog in boiling water and it'll jump right out, but put a in frog cool water and slowly heat it up. That frog will boil. As veterans, we tell ourselves the lies that we can handle anything. We let the water boil. You are not a frog. If you or a veteran you know needs support, don't wait. Reach out. Find resources at va dot gov slash reach. That's va .gov slash reach brought to you by the United States Department of Veterans Affairs and the Ad Council. Some people won't give you the real talk on drugs, but it's time we know the facts. Fentanyl is often laced into illicit drugs and used to make fake versions of prescription pills. You can't see it, taste it, or smell it. Suppliers mix fentanyl into their products because it's potent and cheap. And the dealer might not even know. Keep yourself and others safe by knowing the real deal on fentanyl. Get the facts. Go to real deal on fentanyl dot com. This message is brought to you by the Ad Council. Every day, Mark fights retinitis pigmentosa, a blinding retinal disease. But even while his vision is taken, his family gives him hope. Because whether he's helping run their business, or enjoying time at home with his wife and sons, Mark knows he's not fighting alone. For 50 years, Foundation the Fighting Blindness has funded research
WCPT 820
"retinitis pigmentosa" Discussed on WCPT 820
"The reason I discovered the benefits of CBD when we were looking for ways to help sleep better. Do you need better sleep? 90 % of CBD distillery customers report better sleep with CBD. CBD distillery products are packed with whole body healing plant compounds and vital nutrients. They 100 % clean ingredients, no artificial colors, flavors or preservatives, and over 2 million satisfied customers. If you're frustrated with a health concern that's not getting better, try CBD from the source I trust. CBDistillery .com. Let me get you on the right path with my 20 % discount. Just visit CBDistillery .com and enter my code TOM to get your discount. No prescription required. That's CBDistillery .com promo code TOM for 20 % off. So for better sleep, go to CBDistillery .com. Try it for yourself at CBDistillery .com promo code TOM, T -H -O -M, CBDistillery .com. Mind Over Matters. This show is about challenging you to think differently, to make different choices in your life, to take action, to create positive outcomes in your life. I So want to challenge you to look at your life holistically, to where am I satisfied, what areas need pension, and then go to work, take in action what you need to do. Mind Over Matters with Dr. Amy Harris -Newell on Sundays at 10 a .m. on WZPT 820. Hey son How are you feeling? I'm fine Pops. What's on your mind? I just can't explain it. I waiting, was When your kid can't find the language, help them find the lyrics. Listen to the Sound it Out album and get tips and tools to start a conversation at .org sounditouttogether Brought to you by Ad Council and Pivot Adventures. Make sure you play for first the time I regret to inform you that your husband was wounded in action. Victor sustained a moderate traumatic brain injury. I was doing school full -time and I was also then caring for Victor. One of the most important elements of caregiving is taking care of yourself. I just didn't want to forget I that also had goals and that I also had a life. What I did is I challenged Victor to meet me halfway. There are almost six million military and veteran caregivers across the nation. have We our own journey and we can fulfill that journey at the same time that we are helping our loved one. Visit aarp .org slash caregiving for a free military veterans guide to navigate your caregiving journey and better care for your loved one and yourself. Brought to you by AARP and the Ad Council. Every day Mark fights retinitis pigmentosa, a blinding retinal disease. But even while his vision is taken, his family gives him hope. Because whether he's helping run their business or in time at home with his wife and sons, Mark knows he's not fighting alone. For 50 years, the nation fighting blindness has funded research into treatments and cures for blinding diseases, providing real hope to fighting those vision loss. And our nationwide community of local chapters provides
WCPT 820
"retinitis pigmentosa" Discussed on WCPT 820
"WCPT replay. I am joined by Rick Smith who hear you every night here on WCPT AM 820. Did you see the 60 minutes piece on Sunday? No I didn't. Well according to the 60 minutes piece our 842 billion dollar military budget half of it goes to defense contractors and of that money going to defense contractors the contracts that we have with them negotiated about a 12 to 15 percent profit margin only their profit margins are now about 40%. How about we start auditing these defense contractors? How about we start breaking some of these behemoths up? How about we go back to the days of the 80s and 90s when we had 51 defense contractors and not five? How about we start talking about waste fraud and abuse over there where the fat cats are making all this money that they're using against us politically? How about we start there? Keep listening to because facts matter. some people won't give you the real you'll talk on drugs but it's time we know the facts. Fentanyl is often laced into illicit drugs and used to make fake versions of prescription pills. You can't see it, taste it, or smell it. Suppliers mix fentanyl into their beef by knowing the real deal on fentanyl. Get the facts. Go to realdealonfentanyl .com. This message is brought to you by the Ad Council. Every day, Mark fights retinitis pigmentosa, a blinding retinal disease. But even while his vision is taken, his family gives him hope because whether helping he's run their business or enjoying time at home with his wife
WCPT 820
"retinitis pigmentosa" Discussed on WCPT 820
"Frog. If you will a veteran you know need support, don't wait. Reach out. Find resources at VA dot gov slash reach that's V8 dot gov slash reach. Brought to you by the United States Department of Veterans Affairs and the ad council. Every day, Mark fights retinitis pigmentosa, a blinding retinal disease, but even while his vision is taken, his family gives him hope, because whether he's helping run their business, or enjoying time at home with his wife and sons. Mark knows he's not fighting alone. For 50 years, the foundation fighting blindness has funded research into treatments and cures for blinding diseases, providing real hope to those fighting vision loss, and our nationwide community of local chapters provides networking and support for people with vision loss, as well as their loved ones. Because the best way to fight against blinding diseases is to fight together. And for Mark, winning the fight against vision loss means being there for his family. The foundation fighting blindness, together, we're winning. Learn more about how you can help us end blinding diseases at fighting blindness dot org. Because facts matter, you are listening to WC PT 8 20. Stephanie Miller. My name is. Filling the giant void and Taylor Dane music and talk radio. It is the Stephanie
WCPT 820
"retinitis pigmentosa" Discussed on WCPT 820
"The mighty jungle the shape sleeps tonight oh in the jungle the quiet jungle the cheapest claims to know. It just isn't the same without the lion. Join the San Diego zoo wildlife alliance today. Visit sdz WA dot org. Every day, Mark fights retinitis pigmentosa. A blinding retinal disease, but even while his vision is taken, his family gives him hope, because whether he's helping run their business or enjoying time at home with his wife and sons, Mark knows he's not fighting alone. For 50 years, the foundation fighting blindness has funded research into treatments and cures for blinding diseases, providing real hope to those fighting vision loss, and our nationwide community of local chapters provides networking and support for people with vision loss, as well as their loved ones. Because the best way to fight against blinding diseases is to fight together. And for Mark, winning the fight against vision loss means being there for his family. The foundation fighting blindness, together, we're winning. Learn more about how you can help us end blinding diseases at fighting blindness dot org. CPT 8 20, where facts matter. Hey, thanks so much for sharing our program and for reaching out
Double Tap Canada
"retinitis pigmentosa" Discussed on Double Tap Canada
"Hello. This is new. It feels all different. I don't know if I like it. Yeah, I'm not sure I signed up for this. I mean, this is an extra day, right? That's all I'm saying. Okay. We'll be sending in an invoice. That's all I'm saying. Well, this will be interesting. You've been sending an invoice. Okay, well, I'll look forward to that because then we'll have to teach you how to use Microsoft Word. I guess some kind of email client. You know what? Forget it. It's too much. No, look, we came back on today because we got an email from Wayne who sent in a message to us about our conversation on echolocation and mobility. And it's fair to say this is a rather long email. Now Wayne himself suggests you know what, you know what's long when even the person who writes that says get a cup of coffee, this is going to be a long one. So we didn't want to dismiss the email or try and cut the email down. I don't like doing that if I don't need to. And we do have the joy of having the podcast here. So we are able to put this out as a separate, but it does allow you to hear the email in full. So shall we sit back and listen to the email in his comments? Yes, I'm looking forward to it. Okay, as always, Laura reads our email. Hello again, that's just following up on my previous contribution to the echolocation debate. Laura, if you're reading this, could you put on your Gandalf voice because we're going into the land of magic and helping Bilbo baggins, AKA Sean, with getting the idea of how to learn active echolocation principles in practice. The bad news is that it's likely to be quite long given the topics talked about in previous episodes, so grab a cup of horlicks and get ready for a bedtime story. I do hope you feel able to read the full message because I do think there are some important issues for us to debate as a community. You weren't around Sean when I mentioned flash sonar echolocation ideas as alternatives to long cane or guide dog mobility approaches. For clarity, I had meant using flash sonar echolocation techniques with long cane rather than flash sonar on its own, although I have heard some of the kids have been able to play integrated football with sighted kids with just flash sonar skills. That's not me though. As a beginning, I would say we are quite similar in some ways Sean. I have retinitis pigmentosa, and I think I'm a couple of years older than you. I had full daytime vision more or less with reduced night vision when I started out. As I grew older into my teens, 20s and 30s, my vision worsened into progressive field loss and night blindness. And on to now, where I have perception of light with bleaching episodes, I have no detail vision at all. Throughout this change, I had to self conscious feelings that we all have when we first look at using a cane and publicly disclosing that we are blind or partially sighted. I started out by only taking it out from my pocket when going to work in the mornings in a quiet area, passing through trees and green areas, only past maybe three or four other people then, but it helped with acclimatization.
AP News Radio
World Travel Family-Family intro and wrap
"A family from Canada is enjoying a trip of a lifetime, taking their four children, globetrotting, three of Sebastian pelletier and Edith Lemay's four children have a rare genetic condition, retinitis pigmentosa, RP. It means they will eventually lose their sight. I'm not gonna. Show her elephant in giraffe in boats. I'm gonna go show her in real life. And from that, which is decided to go all in. By all in, she means traveling around the globe. The kids put together a bucket list. Horseback riding. We had learning to serve the sleeping on a train. The highlights so far include safari and Zambia. Hot air balloon in turkey. I have hoped, but I don't want to just wait for it. And then beat is appointed. The family set out on their trip almost a year ago, and so far have been to ten countries. I'm Ed Donahue
WCPT 820
"retinitis pigmentosa" Discussed on WCPT 820
"A rare genetic condition, retinitis pigmentosa, RP. It means they will eventually lose their sight. I'm not gonna. Show her elephant and giraffe in boats. I'm gonna go show her in real life. And from that, which is decided to go all in. By all in, she means traveling around the globe. The kids put together a bucket list. Horseback riding. We had learning to serve the sleeping on a train. The highlight so far includes safari and Zambia. In turkey. I have hope, but I don't want to just wait for it. And then beat is appointed. The family set out on their trip almost a year ago and so far have been to ten countries. I'm Ed Donahue, AP news. This is 8 20 a.m. WCT willow springs and streaming worldwide at WWC PT 8 20 dot com. We are Chicago's progressive talk, where facts matter. Now your WC PTA 20 weather updates. Whether center, I'm meteorologist Jennifer we cheat ski, partly sunny skies here this afternoon where the high end of the upper 40s, south winds around 5 to 10 mph, tonight mostly cloudy alone year 27. By Tuesday partial sunshine develops windy high of 38°, then by Wednesday a chance for some rain showers here, cloudy skies, and we'll see high around 38. Thursday's slight chance for so early skies become sunny high 46. That's your latest Chicago weather update. Currently, it's 37. E to
Banking Transformed with Jim Marous
"retinitis pigmentosa" Discussed on Banking Transformed with Jim Marous
"Online audience. We're fortunate to have. James digman inclusion accessibility specialist at textile and jeff whistle director of the office consumer accessibility fidelity investments on the show. We'll discuss the rationale and benefits of ensuring that websites. Social media and customer engagement are accessible inclusive inclusive and accessible your concept that have an increasingly important role financial marketing beyond creating content that a sensitive to differences in race gender or cultural background inclusivity inaccessibility in communication means. Much more margaret's must take into account age disabilities socioeconomic status sexuality employment type language geography and other dynamics that can make communication less accessible to segments of the population failing failing to do so can have negative legal and financial impact being aware of diversity in the marketplace however can have significant upside as mentioned earlier. We have two guests on the show today first off. we have. James segment inclusion inaccessibility specialists at textile. A leader in digital inclusion and accessibility software. we also have. Jeff whistled director of the office of customer accessibility for fidelity investments. So the stars lost today. Can both you introduce yourself and gives a quick overview of what you mean by chatting about digital accessibility and online inclusion. James thanks jim. I appreciate you having us on the show today. My name is james stagnant as jim. It said i specialize in promoting inclusion accessibility in the workplace. I myself Also nerd nerd. Verse i have. Add so that should provide some context on how can relate to accessibility in general and jeff. Jim thanks to this opportunity. On behalf of a fidelity investments. Were honored to be here. So i'm jeff whistle and To give an audio description on myself. I'm a middle age caucasian male with very short Front light brown hair. I'm proud to say. I'm a user of assistive technologies As i have a degenerative eye disease called retinitis pigmentosa. So i'm legally blind dependent upon screenwriting technology when i refer to digital accessibility online inclusion. It's really about being intentional. About our development and design to ensure that all of our associates in customers can fully participate..
Your Dream Life with Kristina Karlsson, kikki.K
"retinitis pigmentosa" Discussed on Your Dream Life with Kristina Karlsson, kikki.K
"Could look up to or spy by. I didn't they now. Although second blind pain this childhood dream that i've known for years and years how childhood what specific challenges trion you have. And how did you deal with them. Well dies nights with hearing impairment well to throw the whole learning to speak in front of a candle couldn't he sounds When my brothers were out playing had to have lessons are higher with a teacher. But then i went to mainstream school lane and everything but i did always feel different. Art can remember in my head thinking why people trading me differently. Because i didn't feel different. But i aware that i was treated differently and i think that taught dotted that childhood dream of went off older audi can could i remember my mom telling me she would tell winnow to that. I would never finish school dying. Have any high hopes for your daughter because she might do well because she death and that devastated my mother but she met an older deaf girl and she just told me how much it made her realize. Now it's gonna be case why i was sort of like what went on. I want to be that person in florida keys. Parents who have just had devastating news in probably think at the end of the world. But it's not very inspiration for anyone who's dealing with anything like that Thank you for sharing. If you feel comfortable what can you tell us about ashes syndrome what it is and how it has impacted your life so of bone. I was diagnosed with hearing impairment. We didn't know anything about my eyesight onto a law. Fifteen all during with going to the optometrist to get some contact lenses and then he sort of saint me out of the room and they don't wanna talk to you mother and my mom was seen there for so long and sitting in the waiting room i knew as each of what she mclaughlin each time the hand went around the clock also is just getting worse and worse and worse and she came out quite upset and he said you've got tunnel vision and holy stopped. What what it was. I was not aware that my eyes went great. You couldn't say well in the dow. Can i just thought that was something. I wasn't good at. I was good i. I'll good at running. I just wasn't good at feigning. So i never brought it up with my pants and had i. We might have thought a found out earlier so anyway we went to a specialist in sydney and he died my Retinitis pigmentosa is the i condition and needs to because of you're hearing that most likely have giant that basically there's a few different one bit the one i've got this. I'm i'm born with hearing impairment payment and gradually lease my side at that meeting with disdain. He's stashed you can expect to be totally blind by forty. We walked out. And when you have saying you don't know much about anything except for school so it wasn't such deal to me. But then when i saw my mom breakdown ajit quiet for her and also maybe the deal but i do think that much with the deal but now that i am all but just having that diagnosis of change to me and it made me want to go out and do what i can could could. I thought i had a few years until forty jeff. Foy information. I'm like forty eight now. I still can see so. It was the beat of a wakeup call to wake up on my fortieth anger. Oh okay stay yet. But no regret to could i out there and travel in my career. I thought it in a in a way because it makes you do that. You might need around and wait custodian. No one has forever at that little bit of a clue that maybe i needed to get on with life earlier. Say days only i figure it about four hundred thousand worldwide. Sorry for my. In my case. I gradually lead to my sight. Out is born pedic. Hearing inside and lose both yeah is a condition you got consistently adjusted and. That's what made it hard. You start a great to guaymi price steps where you at lose all side. The very much ongoing. I love how you said that we all know that we don't have forever but you you knew that you might have a little bit short because of losing your eyesight but i think it's such a reminder for all our listeners that life is never going to be forever and if it will be more urgency might be able to do more alive if that's what you wanna do but i think it's a really really good reminder. It was a blessing because it may be when i say may compared to other people my age of travel much more and so i kind of like even a forty km and it wasn't the end of the world. I'm sort of story. Happy with what i have done and i didn't miss out that's wonderful. That's always a positive in a negative. So i would love you to share your sunset cake productivity the us how it came about and what it turned into. I wasn't being the girl that my younger self wanna make debate. Could i christine. I heat my vice. My disabilities all my life. Pretty much. i knew. I could get away with it. They're invisible disabilities or if anything people might have thought. Ought to be rude or strange. If i didn't hear them. Ns to them. Or i pumped into them. If they're not gradually approaching forty. I started going on not the person my younger still wanted me to be a lot living in a bubble at large doing. Oh my chain quietly just getting on with it. That i thought that not inspiring any young kid. If they don't know who i am. What what. I've been able to shave. And i i actually fell into a really bad depression approaching forty because just the whole build up this the that are the twenty five bain dreading and and not being opinion about my disability and also my size getting to the point where i had to start thinking about. It i'm going to have to get a guide dog. Geez came so. I deep then what i felt. I should do an ideal. The training i. I'm a graphic designer. I thought i can't be a graphic divan forever. What can i raise trainers doing. All of that. Just made me clash. I started writing a blog and three that blog. I wanna be mental shape for with disabilities in might mental was like you know you've got a publishable memoir in you off started thinking well. That's great that. I'm gonna turn up to my book launch and no one's gonna believe this is me because i'm not a person who is he pad inbetween paths star. First of all. I came out to the world with my two invisible disability. May a principally tainted out before stealing me could go. I don't wanna do site So i had the knees piper kabc may and. i invited paypal. I had to start using a cane. So i bought a papal to walk with me down the main straight using my cane or if that chief just it down and have a coffee and talk to me and say that i'm just like everybody else. It was assessable in it. Made me come out to the world but it seemed to scare people off a little and i thought oh this if not who i wanna be wanna be disability activists saying you should know about my tradition. And what is that why the cake came about. I was just sitting there with my husband at dinner one night and i said why we started talking about it blasted apart firm staying my husband and my feet some family. This thing would most me. If i always say if you know but i didn't say if it should happen but it won't happen if at least.
The Heumann
"retinitis pigmentosa" Discussed on The Heumann
"I became aware than a whole new spectrum. You know fell into place. If my son didn't want to go with me in iowa. I would have the temperature jim because i couldn't pick him up again as you can go into your car and just wait. They don't wanna be left. Grill on as i said. And so there's different things but when you're the one of the first on the blocked two parent and you come into issues that you've never seen before you go. What the hell do i do. So you in the end. Learn how to work with your child. That was appropriate. And you felt good about what you're doing. Yeah i yes. I am very pleased all these years. I've picked up little things about human beings. Big and small snatching. Tell us about year journey into parenting. So when bef- before. I became a dad. You know the whole idea becoming a dad was. It was no wracking because of my blindness. I was assured that i could be a good dad But i was fortunate to be surrounded by other blind role models. Who are parents who gave me some pointers. What blind parenting could look like What takes you need to keep in mind. When when i had mike. I know when my daughter was born i was all prepared for what in what to expect. In because of my because of my condition i knew those pretty high probability that they could also have similar. I disorder i have retinitis pigmentosa and i was all prepared for that but when she was born but we found out that she kept failing a hearing test and the first time it happened. Baidu the test right when they are That's normal it is. Sometimes it happens Accurate two days later and but she kept failing the test. I was all ready for what to do. If my kid was blind i was not about. What is mike kit. What had somebody despite the especially hearing loss so that adjustment thinking what could happen was really scary for me. Thanks worked out fine. If the in couple months she was in a they just have water in her years of ages have drained liquid so that so things worked out. Cheat doesn't have a hearing and she she does have a disability by what's scary for a moment when he had prepared for the blind side things but not prepared for other disability and how i would function as a now it was interesting with my all this data at feel like my oldest data came perfectly prepared like she she. She worked really well with everything..
77WABC Radio
"retinitis pigmentosa" Discussed on 77WABC Radio
"You have damage in different parts of your body. One area is less damage than others. So that area that's got less cells damaged, George degenerating or dying, you know is gonna be repaired sooner. And another area that's got more cells. Damage is going to take longer before it gets too. At that point where you see Wow, I see a significant change. So you know, nothing really happens overnight. Do sponsors. If you get a response. Does it tend to last indefinitely or does it last well that you can see pretty clearly by people that have done stem cells for most things? Where they have never done a second procedure. And they haven't okay procedure, but We have patients, probably a dozen or two of them that I've had Alzheimer's M S. Parkinson's that did the first treatment intravenous and nasal. And they did well, 60 70% sometimes more benefit. On within a year to they want to do it again because they wanted to see how much more of a result they can get. So it's all about watching to see your body improve and subtle ways and dramatic ways. But for example, we've never done a second idea of diabetic patient. All the type two diabetics. Have changed so significantly, that they haven't done it again. Same thing with most of the joints. So It depends upon the severity of the disorder or how many cells are damaged when we're you know, learning about the patient, there's no blood test that can see you have Half a million cells damaged in your knee or ah billion cells damaged in your brain. The more damage there is, the longer it might take. But we're all timers. It Z Relatively. I don't know. Percentage wise or what? That you've no percentage wise. We could say, Oh, here is a percentage. You know, The idea is that as you do, the treatment on a person starts to gain their activities of daily function back and their memory and focus and proves there is a video of a patient on the website. Who had foot drop and he's His video is in the third column. Third video and he could barely walk because the foot drop was a neurological issue occurring from his brain and he couldn't remember anything that his son was telling him so As his son would ask him to remember a name or a phone number or an item. He couldn't do it after the stem cells within about a week. He remembered the three words that the sun had given him for that morning. Remembered. Another three words. This is a test we do for patients that have dementia. So you ask three non connected words. It could be tired Bird. And wedding ring. And you tell him to try to think of it. Remember, it is repeated in their mind as much as they can. If you ask him in five minutes, they can't get it. Obviously. Their their brain is not working well, so if in five minutes they remembered and remember in an hour they remember by the end of the day. That's great. So that kind of improvement. It's just a simple way to see how well a person is doing. And then by the end of the third week, the gentleman was remembering all the numbers of every day of that names or items of every day of that week, So we've seen that sort of result so again. We don't say that everybody has the same results you know, day to day, but You want to be able to watch and see and capture those improvements. So we can document that. Right, right. I guess it's it's the fact that if somebody's not right around the corner, and it's a Uh, it's a big well, they're a lot of factors. Of course there. Of course there a lot of factors. Most doctors don't want to take the time and expense to learn how to do this number one so you don't have a doctor, every corner doing and all there should be But yeah, So That's why we put videos on the Web site articles in the website. We tell people to go look at Google Scholar, you know, look at all this information because there are millions and millions of studies on stem cell therapy. And its effectiveness. So if this is not something that's been around for a week or a month Literature goes back over 100 years. Google scholar. Google scholar has lots of great articles. That's where I go to look at all the different things like stem cell therapy for stroke stem cell therapy for retinitis pigmentosa, You know, stem cell therapy for this for that. I mean, You know? It's biblical scholar. Okay, Google scholars. Thank you so much. Thank you so much for the call by now. Bye bye. Okay. Phone lines are open. 1 808 for eight W A B c 1 804 8922 to the Web is Dr Kau about net? Garden City office. 5167940404. Let's go, Irene. Hi there. How are you? Fine. Thank you. Hi, Dr Happy New Year, By the way, Thank you. I've spoken to you in the past, but it's always been about for someone else. Now. It's my turn. About two weeks ago, I was diagnosed with shingles, okay? I am absolutely in horrible, horrible pain. Is there anything to help? Initially he gave me the whatever it was that they had Valtrex and then now I'm on naproxen and Lyrica. I still have excruciating pain. I had a rash, but I didn't get the blisters or anything. And now the rash is fading. But I'm concerned that the pain is still there. And then they say, there can be as a side effect or whatever that the pain can linger for months, poster petting neuralgia. What we've seen. And if you look at the nutritional editor and I look at it, as I say, Google scholar, you could look up intravenous vitamin C therapy, and there are 327,000 studies. So we do interviews vitamin C because the research shows that vitamin C intravenously can help to decrease the shedding of virus shingles. Epstein Barr virus There's a lot of information on that for my patients that they came in with shingles. We might also inject In and around the area you can put some light became even a pro therapy solution, with some litigating there to help to take some of the pain down. People might also use light of Durham patches where it's a big square or rectangular patch you put over the area. And he's got the letter came the numbing agent in it help.
WBSM 1420
"retinitis pigmentosa" Discussed on WBSM 1420
"And match for just five bucks. So why not stop in and pick up your 2 Ft. Hey. Be glad you're not a bird sheets run and done. The store for details. You are not your diagnosis. A medical chart is not your identity and vision loss does not define you. You and Dr shows who you are, and you are not alone because we are driven to to be a beacon of strength. A champion of courage. An advocate for hope. You are not alone because we are stronger together. Way drive. The research for the cures were finding We're fighting macular degeneration, retinitis pigmentosa. Sure syndrome and the entire spectrum of blinding retinal diseases. Way fun way fight way are the foundation clauses. Together. We are fighting blindness. Join the fight at fighting blindness Dog. This is the story of a very special woman. In a matter of seconds, she turned herself into a great mathematician or an entrepreneur. Her knowledge was limitless and still is. She could also make monsters disappear as especially those that lurked in the shadows under the bed. Once this woman put back together a teenage girl's broken heart, which had been shattered in 1000 pieces just by giving her a bear hug. She masqueraded as a regular person at work, But as a superhero at home, everyone knows her is Gabriella. I still call her mom. Your hero needs you now and.
WBSM 1420
"retinitis pigmentosa" Discussed on WBSM 1420
"Signs of autism and Children. Early screening an intervention can make a lifetime of difference on unlock a world of possibilities. Take the first step at autism speaks dot or g'kar. Public service announcement brought to you by autism speaks and the Ad council. You are not your diagnosis. A medical chart is not your identity and vision loss does not define you. You and Dr shows who you are, and you are not alone. Because we are driven to to be a beacon of strength, a champion of courage and advocate for hope. You are not alone. Because we are stronger together Way drive. The research for the cures were finding We're fighting macular degeneration, retinitis pigmentosa us just in from and the entire spectrum of blinding retinal diseases. We fund way fight way are the foundation fighting clothes? Together way are fighting blindness. During the fight at fighting blindness dot or 14 20 WBS M. Love from the Matthews Brothers Studios. 44 542 42.
710 WOR
"retinitis pigmentosa" Discussed on 710 WOR
"The virus and wash your hands using soap and water for 20 seconds and do it frequently. Watch your distance, wear a mask and wash your hands simple, effective and along with vaccines there how you can make a big difference. Learn more about vaccines at CDC, Doc of slash coronavirus brought to you by the U. S. Department of Health and Human Services. You are not your diagnosis. A medical chart is not your identity on vision loss does not define you. You drive shows who you are. And you are not alone. Because we are driven to to be a beacon of strength, a champion of courage and advocate for hope. You are not alone. Because we are stronger together. We drive the research for the cures. We're finding We're fighting macular degeneration, retinitis pigmentosa, plus your sins and the entire spectrum of blinding retinal diseases. We fund We fight way are the foundation. Of course. Together. We are fighting blindness joined the fight at fighting blindness dot org's Every day men and women of the United States Marine Corps. Demonstrate their commitment to defend the American way of life. Since 17 75. We have served our nation as a force in readiness. Somewhere security from combat operations. Humanitarian assistance in every corner of the world, no matter where the mission takes us today or wherever our country needs us tomorrow. Way always remember the land we call as Marines Way. Take a stand for each other for our nation. For us all If you browed Marines. W o R N W A Xq HD to New York. Possibilities are all around us. Everywhere.