27 Burst results for "Pediatric Cancer"
Mint Arrow Messages
"pediatric cancer" Discussed on Mint Arrow Messages
"This was october. And i'm going. You wanna move our kids in the middle of this year. Yeah oh my goodness. Oh i said okay you know. I went kicking and screaming. I didn't wanna leave. We you know we had bought our first home. He just finished fixing it all up. We loved it. We left routine. There had amazing friends that were like family. Some that i had known since high school and you know some newer and anyway So we came down here and and being here. We are in our in award We met you know we. We made lots of new friends and It was one of the friends that we met here. That ultimately ended up being the contact that got us. That's right specialist. Yeah and that was a huge key. It was key because we had tried getting in with a specialist and we were told out no peace booked out for months. You know we. Can you know we've got months while you know he would have to continue the treatment. He was getting you know where we already had him And then what we transfer in the middle of care and then we knew he had this big surgery coming up and In the surgery the first surge the surgery at the first hospital the surgeon wanted to do was It was it was pretty scary. It was not the serbs not the surgery that we ended up going with. I don't know that They perform that surgery that hospital the one that crew ultimately had but it was all these surgeries have food names. This was the lollipop method. Who am i sure they completely completely removed the femur the firm ahead and they take the fibula in. Stick that up. They're hoping that it eventually the top of it forms into a federal head as yeah. I mean he would have been in a wheelchair for years. It was there could have been complications with how much of the fibula they were removing. I mean it was. It was scary. So we did not we were. We were sick over that and While my husband especially Just you know having been a little boy who had played sports and so excited to watch his little boy play anyway. So we These friends of ours had this contact and said hey you know she's you know she's really connected and she can she get you in pretty much anywhere we said okay. Great gives her info and Sure enough. She got us into that doctor that week and we had his care transferred. And you know we met with a when we met with. That oncologist. Specializes in this cancer. We also met with The orthopedic surgeon on his team. Who told us this is the surgery i would give him and we just knew right then. Okay this is where he needs to be. Yeah and like heavenly father lined all of that up years ago. And i my friend of mine said to me. She goes and here. You thought you removing down there to see adam more you know. It ended up being life at limb saving event for me. That's that was our whole purpose and moving here. I mean amongst many other things. But i just you and me having frank exactly exactly. Oh amy this is just spent so incredible. And i feel really really grateful that you would share these really tender things with me and my audience and i'm sure that it will help a lot of people who either they will go through or they'll know someone most likely who's close to them who will go through having a child who has cancer so last question for you if there's one message that you want people to remember from this interview. What do you want that. Message to be Well when times when times get hard turned to. God turned to god with all. You've got don't be afraid to ask for help especially for your children and if you are if you know someone if your child grandchild. A friend's child is having complaining of pain consistently for more than a couple of weeks. Please please urge them to get it. X-rayed and not not to let them not to let them be brushed aside chess. Tell them just. You need an x ray. Just get x-rays on the child Over eighty percent of these are at advanced stages because has at diagnosis. Because they're they mimic sports injuries and growing pains. And i think that's just what i want. These parents everyone to know. Just don't be brushed aside. Well thanks so.
Mint Arrow Messages
"pediatric cancer" Discussed on Mint Arrow Messages
"One of my kids complaints of their pinkie finger hurting. I'm taking them in for an mri. But i think just to It's really taught me to listen to my kids. Better take them more seriously. I still feel so guilty. That when annabel's appendix partially ruptured. She woke up that morning. Mom i tell me your so bottles accused have stomach eight. You'll be okay. Lay down a book. And i left to go do a project that deals like. I'll be back in a few hours. You know our nanny was here. And i was like you'll be okay and then you know that afternoon Freaking out i hurt. Somebody hurts a bad and finally we say okay fine. We'll get you a doctor attic. And then the doctor's like i think her appendix is about to person you to take her to the right now and i felt so bad so listening to your kids like you're saying because sometimes you're like her fainting or you just want to go to school or whatever well in crew is my kid. That had me convinced. He needed reading glasses because he just glosses. Recalled wanted a pair. I took him to the optometrist. He fooled everybody. Oh my gosh. He doesn't need glasses. I mean he was gosh kindergarten. I got a call probably every other week. Oh crew stomach ache crew that he wanted to come home with his mom like you know so i was i was just the parent who's like you're fine. You're fine and so now. Yeah i'm not that parent and important but also listening like you said to that intuition or whatever because you knew you said like when you knew it was time to take him to the er The on that sunday night. Yeah you knew that it was ha i more. Yeah i knew it just. I can't even explain it. Just this the strongest impression. Like he's he's got to go to the tonight and i just feel like what. If i hadn't listened that night and that doctor had been there what would have happened. He probably would have been fine in a day or two and we would have brushed it off again and then we would have been on. The ski slopes extending. Yeah so yeah. I just think following that intuition. Just just listening to that intuition and if you know looking back that one night where i saw something online and just went. Oh my gosh this. This could be really serious. But but i went. Oh nana no. That's really rare. That's not gonna happen. I mean this cancers one point seven children in million you know does with ewing sarcoma which he has and so you. Just that's not going to be me and it probably won't be but for like the minor minor chance that it could you know. Yeah and i love to that you you have shown that asking more questions and advocating fairchild like you've been a really good example of that and some of the things that just completely can you imagine if you hadn't done that and crew had had the worst sabatino's thou every time yeah. How many times does he had chemo. How this is tomorrow will be round seventeen. So let's see here. I think he's had eight or nine five infusions so that surround forty to forty five of those imagine if all right yeah i know i know. And then and then the one or two day infusions. There's been you know fifteen of those. Just yeah and how. That just changed because you guys really fought for him to have the best care possible and and went out of your way to take the best. Yes surgeons that knew. They were doing and i could spend totally different. And that's so important to if you can't get to a specialist. I'm so glad you found a specialist in this case you know because you know these cancers osteo sarcoma ewing sarcoma are so rare and there's not very many specialists in them. We happen to live by you. Know within an hour and a half of one. thank goodness but I just say if you can't consult with one c. You know those yeah. I mean the nurses there just knowing what. They're just incredible with their knowledge of this and any crew gets four different medications for nausea. Before the chemo even begins and he's not nauseous. He feels pretty good debris as we're getting towards the end during the infusions. You know the five day rounds. He doesn't feel quite is hot as he used to. Houston eat revised steak. Here's calf violet. Was infusing this last one. He you know he didn't feel quite so quite so well well enough for that but still he comes home and here covers pretty quick and i just think it's because they're so on top of it while and i you shared with me wants to that you guys were in our couched a years ago and that you feel like even moving down here was another way that have my father kind of guided you guys to be within an hour and a half of yet a surgeon too because you know he knew that crows gonna need that. Yeah germanischer store okay. I mean that that's another. I mean just these miracles and you know someone pointed out to me that they were just put into place years ago. We we've been holy. Cow been watched over so much so almost four years ago. We moved here from our hometown. Where my husband and i were both raised. Both of our parents lived there. We loved it there. Love the food there. Live the food there all the food. So good In the wine country And anyway we So we we head. It was right after the first fires happened in two thousand seventeen and my husband just had this strong impression that we needed to move here. He was already commuting here for work To southern california he had been doing so for about a year and a half and I take that back. It had been a year anyway so day. Just hit him. He said amy just the strongest impression. I really feel like we need to move and we need to move at the first of the year..
Mint Arrow Messages
"pediatric cancer" Discussed on Mint Arrow Messages
"I spoken to an old friend from college. Who i had you know. Found out that his daughter had had leukemia. And you know. I didn't know i know. Amanda hit kr journal the lot instagram. And i'm not really on there that often so you know and i have a lot of. My mom didn't have an instagram account. So i just. I wanted to. Yeah have somewhere else. That i could put everything and so i reached out and said you know. What did you guys do when he said you know. We use this carrying bridge and it was amazing. I would totally use it. totally highly. recommend it he said you know everything we've written. We thought you know one day can print all of this and then give it to her at her wedding or whatever it is. And i thought okay. That's a great idea. So it's been a nice way to be able to keep everybody informed. And what's going on and how he's doing and also for him he doesn't he doesn't want to remember any of this right now and not that i just want him someday to look back and see what he went through and how much he overcame. Yeah and how how much he was blessed and watched over his eight. I know he's gonna forget a lot of it. And i know i will too. I've already forgotten things. I look back and i go. Oh yeah i remember that. But one thing i did want to say and i didn't know this until you know until my child got cancer when thing i would say to never ever asked someone is so. What's the prognosis i basically. So what's your child's chance of making it. How or what's their chance that you know. They're not going to make it. And i just. I would just answer santiago. Oh he's going to be fine and my friend. Good friend of mine told me she said amy. You don't have to minimize it to make people feel better but those numbers you know are scary and you don't those are always on your mind and but at the same time you know you're trying to push them aside and go my kids in one of these numbers. The every every child is different. Every story is different. Every location of the tumor. All everything's always different and so you're trying to not least i was trying not to give those numbers too much power. Yeah and so for someone to say. Oh so what's the prognosis like was don't ever don't ever skied. And if you have don't feel bad you didn't know but now you know yeah and one other thing there was. I had several people. Tell me stories of others. They had known who had the same cancer similar cancer. How great they're doing now. Awesome like i personally love hearing those stories. It was the stories people. Tell me like oh yeah. I knew someone that if they didn't make it. That's a helpful. Yeah no genitals so you just you never know. But it's given those stories weren't told as a way of making me sad but it was. It was you know. Oh well this is what they did and so you just keep it to yourself. you know. this is what it was it was done out of love and to try to help but my goodness yeah. I think people get kind of like uncomfortable or awkward in those situations sometimes. They're reaching for a way to connect and make you feel. They wanna feel like oh. I know a little bit about your situation. Because i knew someone for i don't know i think maybe that's where they're going. But but yeah. That's really good that i'm glad that you're bringing that up because it's not helpful like stories that maybe we'll plant even more seeds of doubt that union exactly. Yeah exactly. yeah so what do you feel like you. What are some of the biggest takeaways or learning things that you feel like you've learned through this whole experience with. Oh wow so many so many. I've spiritually i really learned to rely on my heavenly father How people do this without faith prayer his way different than it used to be. I actually feel more connected with my prayers had more meaning and purpose. I think than they've ever had. So there's there's that. Just so much. I just i want people to know i. It's it's it's put something made that like i just i feel responsible to to let people know what to look for and to just empower people because own. My gosh. we were so lucky that hadn't spread. And i've just i've heard so many stories of other cancer mom's the same thing you know that you know. They went to three different doctors and they all brushed them off. The parents had to demand x. Ray to find. And then that's when they found the tumor another friend their their son kashi took her son to two different. Urgent cares and an orthopedic. They x-rayed his foot because he was having foot pain and nothing was there. It took another doctor a podiatrist who actually really listened and they he ordered an mri of the entire leg. And that's when they found the tumor and the fibula. Which was it was twisted around ligaments and tissue causing foot pain but there was nothing wrong with the. There's nothing showing up in the foot. So i think just it has changed me to to just you know i just wanna tell people like what to look for like. Listen to your gut. Don't stop you know and as a mother you know now that you now that we're here. It's my joke my every time..
Mint Arrow Messages
"pediatric cancer" Discussed on Mint Arrow Messages
"When crew lost his hair he started coming over and a beanie matching beanie. And then when he'd be at our house he would hop around on one leg more use the crutches or the walker whichever one crew wasn't using. It's just so cute. So i think just having has friends come over and be light. You know his friend told him he goes crew. You don't expect. I didn't even notice when you lost. Your hair knows wall. I'd i look what different his friends like. I didn't even notice. Was just just the sweetest thing and i think chest. And he's really attached to his family right now just having his family close by. He's really he and his sister. His older sister always really close. But now now. There's a bond there that i can't even describe. It's been pretty incredible to see that through through the awful and ugly terrible there. Are these distinct that you just can't can't put a price on you know. Yeah this bond that that they have forever to her helping him and caring for him and getting him things. He's gonna remember that for sure. My next question was going to be. What has this been like for your family. What how has it changed you. I remember that first week grieving for my life. As i knew it just went. Our life is changing forever. And you know just things as simple as taking my daughter to preschool. That was that was hard because you know I can't leave crew alone when he's when he's first home from the hospital because if he gets a fever he has to get to the hospital within an hour and get antibiotics right so just so many little things i just our freedom to just are not our freedom but just that care free by life as we knew it was over i knew it was never gonna be the same So yeah we've just. We stayed at home a lot. But it's been nice to you know we've we've had a lot of time together. We watch a lot of movies played games and had a lot of swim nights at our house. And it's just it's just been a slower paced life. You know one of us always has to be home with crew so yesterday my older daughter had a soccer game and my husband took her. I stayed home with him and you know. He's kind of at the end of his chemo. Week so he usually feels better by this point and i said hey. Is it okay. If i go to get jan's game and he said no mom. I just don't want you to leave okay in before. He would have been like great later. So yeah just. That's what's changed a lot. We don't really get date nights very often. Few and far between we have company at our house like every every few weeks while we have long hospital stays. But i don't know it's just it all of a sudden sadly if he comes normal you know i mean. I've lost big part of myself as far as doing things that i love to do. Yeah currency amazing. And she brought when that tiny brought over all the ingredients to make cookies. she said. i'm gonna come over and we're going to bake and it was so fine. I may have gained five pounds or ten from those cookies but it was so fun. And you know things like that that. I used to love doing that. I just couldn't pull myself up to do anymore we have. I was just so tired all the time has it's not just our at the hospital. You're at the house. And there's just a constant worry and constant wake up in the middle of the night. And you know i can't imagine how emotionally exhausting has been for you guys so but i mean i don't know everything i have. I have a good feeling that you'll get it back. You'll get a lot of those things that you have will come back. You know our friend. Amanda who was on this podcast last year. Childhood cancer awareness. I feel like it's amazing to see linden and her curly long beautiful hair and just running around and she plays with my annabel and they just yes. It's like nothing ever happened to her. And that's what she told me she's like this will be behind you and it's just. It's just going to say my. Did this ever happen. And that's what i keep telling crew. He says to me so pretty often. Mom i just. I can't believe this happened to me. I said i know but but someday you're gonna look back and you're going to go. Wow i can't believe that even happened. Yeah you know. So yeah. I mean i'm starting to feel the poll. I mean bef- for a while. I didn't even have the desire to take leave my house to even i quit going to the grocery store and just insta- everything to but i love going to the store. You're on avocados. allie everything. So i'm starting to feel like that's starting to come back. I'm starting to feel okay. Maybe i'll get to the gym now and you know just starting to feel some of that burden lifted. Yeah i feel like when this happens to or not just this but when these tragic things are really really life altering things happen to people i love. Sometimes i feel like i don't know what to do. What has been actually helpful to you. Oh my gosh so many things. I don't even know where to begin. I think just like the time that you came over to bake with me that got me out of the biggest funk and obviously like dinners people bring you dinners by offering to you know. Take the other kids to do stuff. That was all huge. I had so many friends give us gift cards for door. Dash shen meal delivery services which was amazing ya. I'm trying to think of what else i think. Just you know just knowing that my friends were still there. Because even times where i could go out i i just didn't have it in me to get out and see people and get the questions and you know so just knowing that my friends were still there and checking on me and hey i'm here and i'm at the store right now. Is there anything you need. Just those little things yeah. I'm wondering when you go to church or when you go to like a soccer game or whatever. Is it helpful when people say like house crew. What's the update or is it better when people were like just hate me so good to see you know i mean it's great because it's like the elephant in the room you know it's like and i get that because i used to be that person mike. How are they doing. You know it's in it's great. I don't mind being asked about him at all. It just especially especially when i'm asking so much of people. Please pray for him. Please fast for him. My and everyone's doing that. I feel like i owe it to you to let you know you know current shaking all you don't you don't you know i just feel like i want you to know that it's hoping that what you're doing and you know you've done by job of that though and i guess for anyone who is listening to this who may be in this position our some someday later carrying bridges. What you guys have for kind of like your blogger journal or whatever you wanna call it. Yeah it's been so helpful. Because i feel like i. I'll get a notification that there's new journal entry and i go and read it and i feel like i know exactly. Yeah where are you guys are at in you know well. It was so nice. I was really it was recommended..
Mint Arrow Messages
"pediatric cancer" Discussed on Mint Arrow Messages
"Any. he was so active. I said he was in doing flag football basketball baseball. He told me. I mean this was just a couple of months ago and looking back i i remember this happening. He was you know at the end of baseball season right before everything got shut down for the for covet. It and he he wouldn't slide into base and everybody kept yelling on him. Crowe slide slide. You know little boys. That's their favorite dirt. Yeah and saliva debase. Even if the balls twenty feet away their sliding about base totally and he wouldn't slide and in one time he sled and then he went limping limping back when he got out and he told me he said yom. I remember baseball. Everyone yelling at me to slide and i. I didn't wanna do it. Because i was afraid it would hurt my leg and i had no idea for so long. He was protecting his leg. So there was that there was flag football Not tackle but one of the kids on the team little brother who we all know and love very much he's husky little guy and he tackled crew hard and you know he was just you know younger and goofy and we just in his dad even said later like i can't believe that didn't break his leg and then you know the time he was at the skate park dropping those balls you know the steep ones it. Was you know they have like ten different sizes and of course you know these boys they want to go down the steepest one. Yeah so he told me mom. I dropped the ten today. Rain right and crowd. Oh my goodness all. Nothing made me more nervous than sending him there and anyway he. He told me this was after his diagnosis. He says you know mom. There is one time. I was at the top. I think it was the nine or ten so it was one of the big ones. 'cause they all go all the way down to one and he said you know i thought it was my turn so i just went over the edge an right as i went over i saw that were two other kids going and i went all now. We're gonna crash crash and he's like an but we didn't like i don't know how he didn't mom but we didn't crash thought. Wow there's another miracle we didn't even we didn't even know you know he had angels protecting him. Yeah constantly We were supposed to be going to park city two weeks. After he had been diagnosed. We had a trip booked and they were gonna learn to ski and snowboard for the first time at this had been brushed off again. I another miracle that he chose to jump off those stairs for his leg to hurt. If that hadn't happened. I am sure it would have happened on the ski slope. And that what the leg break a leg break would have meant amputation of the lake and the location of his tumor was so high that he would have lost his entire leg. The cancer would have spread everywhere he would have been immediate stage for and they would have to take everything. That's really really so just. I don't even have words for right word for that. Incredible amazing that he had angels watching out. I also think of like all those times that we pray for safety as our kids leave us whatever and or you know pray for our family to be safe and probably how many times they are protected and watched over that. We don't realize oh for sure maybe after. Or maybe never. Maybe i in the next life i don't know how. So what has this been like for crew. How has this affected him this. It's been hard on him. he still just. he's happy. cute sweet little self at home and his. It's really developed. His sense of humor hilarious. He's so funny you know he's been. He's basically been a mobile since january. He wasn't allowed to put any weight on his leg so they didn't want his late to break before surgery. And then you know of course after surgery. He's you know he's just barely starting to walk again and so there was one time. He told he told his other sister. Because hey you know. I left something for you. Downstairs in the kitchen go go get it. I left you. A surprise was a so highs so his sister runs all the way downstairs her super surprise and he looks over to me and he goes. I didn't get her anything. I just wanted to make her. Go downstairs and she goes crew when she realizes there's nothing there and he goes. You know he has this little monster voice he does and he goes godsell. I mean he's it hasn't been all terrible but they're definitely it definitely. he definitely hasn't gone unscathed. He changed his appearance drastically. He's you know has no color to his body and from. You know from the chemo. And then from the antibiotics. He has to take every weekend for the chemo. And you know not really being able to go outside. But he also isn't really allowed to be outside because now he son sensitive dude everything but you know. He's he's embarrassed of his appearance. He's he's very selective about who letsie him which is really hard. You don't saint you sent ten year old boy my faith throw a hat in. You're fine but but it's not like that every every time we go out. We've gone to the movies. We'll take him to them all he goes mom. Everybody's looking at me said no. They're you know they're not crew. They're just you're in a wheelchair of course they're gonna look at you. They're looking you too. I look at people you know but yeah it's just gotten a lot more self conscious than he ever was because he's used to just being like carefree little kid. Yeah yeah just kind of yeah. Lives life obliviously. Happy totally and it's it's interesting. How this ages them. I'm sure he's yeah he just. He seems so much more grown up to me. Now i keep telling him. I say you know crew. This is really gonna help you help other kids who who. Don't you know who feel bad. That are going through this. Who feel bad about the way they look or you know you're just going to be able to have so much more compassion for people that are going through stuff. That might not look normal. Yes now you know what it's like. Yeah what has helped create well. He has his his little friend. That comes over. Here's a couple little friends that come over pretty regularly and the one friend especially and just. He's the cutest kid he he started..
Mint Arrow Messages
"pediatric cancer" Discussed on Mint Arrow Messages
"We were in the hospital waiting for the diagnosis waiting to find out if it had spread i need is many prayers on this kid as possible and i just i anybody i can think of who was a faith. Even if they weren't just send your good vibes. You know you know if you can pray a whatever you can do and and it moved mountains it ahead. I mean there's looking back. I think my goodness this cancer had to have been in there for a year and that it hadn't spread is an absolute miracle. And when i use an active little ken right yes well did. It hadn't spread and that he had his leg hadn't broke. That's what i was thinking. Yeah all right. No when his listening doesn't really help but let's talk about why that also was miracle that it had broken spread. 'cause sorry i know that in my hand no people listening. Don't know so. A lot of times the cancerous found because you can either see a mass or the limb has broken so and one of his nurses told me when i tell hair my gosh. How did we. How did we win the jackpot of the worst thing possible. I can't ever win the lottery. But not that i play the lottery but if some the you know anyway like why did we get the horrible cancers right. Yeah and you know she said. Actually you are really lucky. Because i hardly ever see kids come in here or it hasn't already spread or their bone has an already broken and i took it back and they went. Wow wow he's really been watching over crew. Today's episode is brought to you by better help. Do you need to go to therapy. Just ask yourself.
Mint Arrow Messages
"pediatric cancer" Discussed on Mint Arrow Messages
"If you're okay with that i would love to talk about some of the miracles that you guys have shared on your blog and on You know you've shared them like with with our church congregation. It's just been really really incredible and today actually we were in. I'm in the young women's organization with a thirteen and fourteen year old girls when we were talking about how adversity can teach you things. Strengthen your testimony and we talked about you guys about how it's been so inspiring to see you guys go through something really hard but choose to lean into faith and and to really lean on the savior and ask other people to kind of partake in that with you and for just to watch like collective faith of people coming together for this greater cause and so so. Yeah if you're willing to ensure some of those audiences you guys have had. Yes wow i mean where to even begin. I just i feel like i don't know how people do this without face. I don't. I don't know i mean it's our faith in the savior in his helium. Power has really really helped me through there were. I don't know if i'm going to say this right. But i remember praying and telling heavenly father. Mike i know and i knew it. I knew that. If christ was right here that i could i could touch his robe and crew would be healed if i could just bring crew to him physically that he could he could touch crew and it would be fine and i said i know i know. He's not here but please like i believe in his healing power if he could just touch crew through his spirit. I know it can heal him. And i mean we've seen wow just so so many things so i think one of the biggest miracles has been his surgery. Yeah that was so incredible to hear about so. Yeah i'd love for you to show that so. His surgery was extremely complicated. It was sixteen hours long. The plan was to remove half of his femur. So the tumor you know was in the upper half of his femur so the plan was removed. Remove the diseased bone and then use find a cadaver bone that matt that matched the same size is crews bomb and really the upper part and and then remove his fibula which the bone in your lower leg that helps with balance sir. You don't really need it and you can. You can be fine without it so remove the fibula but leave enough of the fibula at the top and the bottom for balance an inca function and then insert that vascular is kind of inside the cadavre bone so the cadaver. They called a hotdog method. The cadavre bone is the bun and the fabulous. Like the hot dog. And or the dog. And then the hope is that the fibula grows into what's remaining of the femur the top and the bottom and over time it grows stronger and is his his new femur his bone gear and then he won't need any more surgeries and. Yeah so that was what we went with prosthetic being. It's such a young age and he would be growing would require several more surgeries much higher risk for infection so. The surgery was huge. So i just wanted to see kind of understand where you know how big this was They needed to teams to perform the surgery and orthopedic and vascular team to the vascular team to remove the fibula and then connect all the veins and vascular is it so after you know after the surgery his his surgeon just before he kept calling. We got phone calls every two to three hours during the surgery and they kept saying. Everything's going great. It's looking good. And we heard from his surgeon that evening and he said the surgery could not have gone more beautifully and of course we just thought well. There's miracle the surgery went perfectly. It just couldn't have gone better. And then we found out why his surgeon told us the next day when he came into check on crew that he had been in touch with one other surgical team out of new york that has performed the surgery on children and he. He said that they use wire to connect all the bones and everything but he didn't wanna use wire because he just didn't think that it would be strong enough so he said. I thought that if we could get one screw in there that you know that we'd be lucky. And then we got to screws in and we thought we had hit a home run and then we got the third screw in. So i mean that's it's just huge because it helps with stability in growth and just keeping everything in place while he's healing because while he's on chemotherapy. He's got you know. He had four months chemotherapy. And there's no bone growth during that time so those screws i think have just been a game changer and helping keep his legs stable while he heals. Yeah yeah. I remember just being on literally on the edge of my seat all day waiting and waiting for those texts and texting our other friends. Like have you heard anything and we were just. We're praying so hard. How did you know to ask people specifically because you asked us specifically to pray that the surgery would go perfectly. And i was like well. That's fauzi amy. Pray that this goes perfectly but okay. We'll do it you know we'll do whatever you know whatever you need we'll do it and it and i was just like oh my gosh. It went perfectly just like you asked. Where did that come from you know. I can't remember when i learned to pray for specific prayers. But now i think but that thought has always been in my mind. Pray for specifics. And so when we were faced with this. I knew we were going to need mirror. Miracles lots of them. But i kept coming to my mind. Was he's the god of miracles. Of course he can do this. Why not ask for it. Yeah and there was this point backing up to the hospital where he was a mad excruciating pain and the nurses couldn't get it under control and i kept praying. We were praying for the for the pain to stop and sometimes sometimes it would stop. But i felt like this one time when it had gotten so bad i. My prayers weren't enough and not that our prayers aren't ever. But i just thought i need more pairs on this kid. I need more. And i sent many tax out as i could while. I'm still trying to comfort him. I just copied and pasted to is the largest group tax. I had going at the time and said please stop what you're doing right now and pray for him that this pain will stop in within ten minutes they finally figured it out so i it just everything just kept building on each other and i thought all i could think of was when we were in the hospital waiting for the diagnosis waiting to find out if it had spread i need is many prayers on this kid as possible.
Mint Arrow Messages
"pediatric cancer" Discussed on Mint Arrow Messages
"Grown adult in his late thirties. Who had the same thing. As crew ewing sarcoma of the right femur and. He couldn't even pinpoint his pain. He'd had x rays of his hips of his back until finally they took an x ray of his leg. So song going. Okay even if a grown adult can't even pinpoint it house a child supposed to know right. You know so. I think so that they don't have to pauvres fevers. They don't have to be tired. His leg wasn't swollen. Had skinny little legs. Yeah i thought. I would have seen something but being encapsulated inside of a bone. It's not gonna show so. His blood work came back. Great when we were at the er that that was going to be my next question. Because i feel like they'll say like oh it's always isn't it a white blood cell count gas always going to be high high answer yet. Nope his everything looked great. When we were at the er the the doctor told me that night he said well you know his blood test really good. So that's a good sign. And i guess maybe that's a good sign that it hadn't spread that it hadn't reached you know other parts of his body. I don't know when with this cancer when those numbers would go up or down or whatever. I don't know what that would that would look like. But all i know is his blood. Work looked great and he had a scary aggressive cancer eating his leg from inside out. My gosh. that's crazy so then after that you still did some advocating for crew right because there were complications with like his pain. And yes starting chemo. Things like that where you guys really had to. I've always been really impressed. How you have looked out for not just taken. I guess not. Every parent is looking out for their child. Though i feel like sometimes we just if a doctor or someone who's qualified tells us something you just take it and you're like i guess this is. This is the way it's gonna be. And i like you guys have really been willing to kind of push for things that your beans so can you talk about. Yeah yeah and you know. I think as a parent yet you you trust doctors and you actors are good. And they're but they're still they're practicing medicine right and you know his doctor when i actually called his doctor when i found out or after crews diagnosed the doctor who examined him and he said he just about fell out of his chair. So you know it's just yeah they just there's things get missed unfortunately but yeah just advocating for crew. It's he was that was hard there was. There was a point in the hospital when after they had taken the biopsy of of the tumor. So they stick a needle all the way down in there and take some of that tissue out and when he came out of that he was an excruciating pain pain we could not get under control for days and he kept maxing out on the pain medication. And i think this may be what you're talking about. His nurse pulled me aside and said you know. I'm just wondering do you think he's me. Just hopping anxiety. That's that's why he wants you know 'cause a he was i. He was crying screaming and pain after two hours of getting his pain medication and he wouldn't be able to get more for two more hours. And i said well i'm sure he has some anxiety going. He's a hospital and all this no. He's having pain like we need to think need to figure this out and even looking back now. I wish i had been more aggressive and assertive than because it finally finally took a nurse. Who's just more experienced. She came in she had just. It was a new nurse. The next day she'd given crew as pain medication and you know when he should not have been a pain again. He was and she finally said okay. I think i know what's going on here and got him on a pain up which completely changed everything he. Yeah never never had pain again. And it's like ever not the mazing now seriously so amazing then there were. There was a point to where that kind of happened with his chemo. To right yes. Oh yeah he They they had told us that one of the drugs one of the side effects was with sobbing. Knows where it would just burn. Burn your nose feels like you know you've eaten too much with sabi. sounds horrible. Yeah so sure enough. He's getting his. This is his the first day of his infusion and they infuse the other two drugs i and this was the last one and he started screaming. My nose burns my nose burns. And you know. I'm flying out of their pushing the buttons. We need a nurse in here now. We need someone now hike and they said oh okay. They've slowed down the infusion and that seemed to help and then you know they always have little tricks and stuff for it but that was that was rough but you is found a better way to of like from then on wasn't that i think you said that that was kind of got one and only time that and then they were able to figure out how to yes right so well no actually so. We started off at one hospital. Yeah and they were in vets where he was diagnosed and everything but then we found an oncologist. Who specializes in this cancer. That's very rare. And he you know was only an hour further away so we had his care transferred and it just seems like the nurses there. New new this chemo better and knew how to treat the side effects proactively so he never had that problem again when i told them about it they had never even heard of it happening so i think maybe the difference was that they infused the came all slower and yeah he just he never had it again. Wow yeah so. I i want him back up to a little bit. So you guys got that diagnosis. And then what was the what was the. What's the game plan after that. Okay so we got the diagnosis. And then the game plan was three. Three to four months of chemo every two weeks every two weeks some days he would go and he would check in every other monday for chemo. Some he would alternate between five day. Five days of chemo and then two days of chemo and it didn't matter how long the chemo was for. It was just a check in every other monday. So sometimes he'd get a week off and sometimes he'd get almost two weeks off so the game plan was to do that for three to four months and then he would get two week break for surgery to remove the tumour and save his leg and then he would get another two weeks after surgery for the wound to heal enough. Because the chemo. Just those the healing so much so you get another. Two weeks off of chemo. Po surgery and then resume chemo again for another four four five months. I didn't even know how long we've been like an internal does and tomorrow's the last one last night. It's so amazing. So i have been so impressed by the way that you have in your whole family has taken this and just like really leaned into faith and really leaned into asking other people for help and asking other notches from meals. But we're really specific prayers and for people to have faith that these treatments would work in the everything was gonna work out..
Mint Arrow Messages
"pediatric cancer" Discussed on Mint Arrow Messages
"Yeah you know and anyway that night rest of that day he just sat around. And i just i just had this thought of. He's got to go to the er tonight. i cannot. this cannot wait till tomorrow. And so that. Was you know getting the kids ready for bad. And he was just. He was in so much pain. And i just said okay. We're we're going to the er has to happen. And he kept telling me. No i don't wanna go. i don't wanna go. He's terrified that he was going to get a shot. And i told him you're not gonna get any shots. But they're just going to take some x-rays they're going to figure out what's going on. You probably just have a little break in your bone or something. It's not going to be a big deal so we left for the are told me to keep telling this okay so we left for the er and we got there and you know we. I give him tylenol right before we laughed and by the time we got there he was fine. I mean the nurses. He's just sitting there like okay now. What's the problem is it. His leg hurts really bad. You know and they said okay. Well what's your pain level at right now. And meanwhile he's distracted on his little video game. He goes to three on a scale from one to ten. It's a three and they kind of look at me. And i'm like no. I promise it was really hurting earlier. Yeah so he. He needs some xrays or something. We took him to urgent care today. This is what they said they said. Okay okay so. They admitted him hand. You know after an hour and a half or two. The pain came back and he was in a lot of pain. So you know after me telling him that he was not going to be getting any shots. They came in and gave him a shot of morphine to his arm. Yeah and you know that worked for a couple of hours. The doctor came in and said we're going to do somewhere xrays. We have to do x rays here and he took the x rays and you know once he had the results back. He pulled me out of the room and he said this. Looks like ewing sarcoma to me. I am going to be on the phone with chalk. i'm trying to get him. Admitted there i was like. What does ewing sarcoma is that serious. Yeah and so. I go and google it and what he told me he says you know. It's it's cancer and i. He said it's either that or osteo sarcoma which both are rare ewing. Sarcoma is extremely rare. So we go back into the room. I'm googling what these all right called. my husband. Were both looking them up and our hearts just dropped mean. They're not the good cancer yeah. They're the bad scary aggressive cancer so from then on from there. He got transferred to chalk that night he was in a cat scan a few hours later where they got a better look at the mass in his leg was a thirteen centimeter tumor. I have thirteen centimeters. I think by four centimetres was huge. Huge and Just and then it just all exploded from there and you said in your because you wrote like a journal entry. Recently that i read that you said like his it was like breaking his leg from the and yet and that's where all the pain was coming. Yes yes yeah. I can't even imagine so and while you're going through this too. He still in pain right. Yes so the pain yes in. It was weird because it would come and go and you know. They were giving him pain meds. And so i was at the hospital with him sunday and then monday and i feel like i went home sometime monday afternoon and my husband traded me and was there with him. The rest of monday party. Tuesday and he was just happy and chipper. And it doesn't hurt anymore and you know. His nurse had yeah. We took a several labs today. And i thought oh okay. Well that's good you know it's not gonna be that big of a deal. Yeah yeah and you know. I thought he wasn't. It wasn't from the pain meds. He he didn't need him. He was feeling great. So this is why. I kept missing it. Because if it's serious if it's cancer he's gonna keep hurting. Yeah it should be persistent and yeah yeah so gosh. This is just so crazy. So you've talked a lot about wanting to be an advocate for moms and for parents. Any you know more dad about knowing like what the signs are when you feel like you know you should look into something versus feeling like you know every little every like yeah. You don't wanna be like also feel like crazy paranoid. But what do you feel like you wish you would have known before all of this. Oh wow so much did pain in one. Limb is not normal. Okay you know. I i would google and i would look it up and i remember. I remember finding something one night that took my breath away. It alerted me. And i couldn't fall back. Asleep may went. Oh no this could be something more serious because there were. I didn't just brush it aside. I mean i lay in bed at night Handful a number of times trying to figure out what this was was it something more than growing pains. And so this one. I and i don't even remember what i saw but i remember i couldn't fall back asleep and i thought i can't wait. Wait till morning to call the doctor. So i picked my phone back up and i started looking looking more and until i saw something that gave me some relief and i went. Oh okay it's just growing paints his it. It can't because he didn't have any other signs. I think that's what i want people to realize all of the signs of something more serious. You know the bone pain which is hard to pinpoint. When i took him to the pediatrician. He couldn't even pinpoint where it was. He asked him okay. Crew or does it hurt and he said well. It's over here on the site of his sight of his leg up then. I don't know it's kind of over here too. He couldn't pinpoint it in. That is clear indication of bone pain. They knowing there's pain but you can't really say exactly where it is. Yeah there to go back to touch on a little bit more. I just as i've been you know reading and studying this and seen what other people's experiences ben..
Mint Arrow Messages
"pediatric cancer" Discussed on Mint Arrow Messages
"Am start crying in the first fifteen stock i such and it is childhood cancer awareness month and amy has been through it this year so i'm super grateful that she is willing to come take the time to talk to me about her sweet son crew and what they've been through together as a family so amy so grateful that you're here today with me thank you. Thank you for happy okay. So let's start just by giving a little snapshot of what life was like right before all of this started you and your husband and your kids and just kind of wet family life. Looks like free vice. Okay gosh very normal. Our kids were in sports. Our daughter was on a soccer team. Our son crew was played flag football. He was just getting into his basketball season. He had been going to practices a couple of days a week he. He loved writing his scooter and he would go to the skate park and meet us friends. He had a little more freedom than i wanted him to he would. His favorite thing was to go to the skate park. Scooter around with his friends. Go back and forth to his friends houses for snacks and drinks and yeah that was just kind of our life. We just you know pretty care. Free just yeah plane with friends and yeah and so crew was nine last year gas. Yes say ten now ten k. So when did you start wondering what was going on with him. Like what was the very first sign of something was a little bit off. Well he had been complaining of a pain in his leg for months. I can't even pinpoint when it started. Even when i look back and try to remember i can't because it was so intermittent it would happen. He would complain of his leg hurting and then usually always at night most of the time at night and then by the next day he'd be fine so i just brushed it off for a long time thinking that it was growing pains totally moms would. Yeah yeah and he had growing pains. He was gosh about five years old. And we were boarding your. We're in hawaii and we were coming back. We're at the airport and when we got to the airport he was actually right before we left the hotel. He was complaining that his leg was hurting his legs. This it was both of his legs that they were hurting. And by the time we got to the airport he was crying. He couldn't walk. We went as far as getting him a wheelchair through the airport. It was the most bizarre thing and by the time we landed back in california. He was fine so we thought okay growing pains and it happened a couple other times but this was different and that it was just one leg and so i would say after several episodes of this may be four months or so of it. Five months even coming back. I started to look on my phone at night. I started to google. You know leg pain and a child one leg upper leg pain and everything kept pointing to growing pains. Well it's just one leg though and it would say well going pains typically occurs in both legs but it can occur in one survivor would kinda breathe a sign of relief. And go okay. That's what it is. Yeah and then leave it alone thinking that it wouldn't come back again so where so. Where did it change what happened so gosh about it was october. We had just been out of town and he had had. We had a very trusted sitter. Stay with our kids while we were gone and he had a flag football game that weekend that he missed he his leg hurt him too bad and his his the sitter. Who's a good friend of mine. She said you know he was really complaining about his leg and crew go see mom. I told you told you that. I was faking and i said i didn't think you were faking it. I believe that your leg hurts. Yeah i just don't think there's anything we can do about it. And so after that i mean that week i made him an appointment. With a pediatrician. Just our local office up here are primary care. Doctor took him up there and he examined him for quite a while. I'd say thirty minutes. He felt his leg. He had him remove his pants and he looked at it he felt he had a he had him. Stand on it hop on it everything and the end. He told me he's fine. Here's a number for his physical therapist and there go miss it so you don't think he needs xrays. He said now now he's fine and so we went on our way and then so that was the beginning of october. Then the end of november. It started hurting again. I remember very specifically because my family was visiting for thanksgiving and we have yearly tradition. We take the kids with mike children with their cousin to get pictures taken with santa the mall and i remember walking into the mall for pictures and he was having a hard time. He was limping. It hurt really bad. And even when they were sitting with santa he had a hard time sitting up straight. I kept saying crew. Can't you just sit up. Just just tough it out just for the picture you saw. I can't it hurts. And i just thought the cash this is the weirdest thing. Yeah so yeah so. We went back home a couple of days later. It was gone but now he was limping. So we went. This is really weird. We kept thinking he really needs an x ray but then the guy injured at one point and was detected. That's what i thought. He kept telling me that it happened back in march right before everything got locked down. He was playing in a baseball game and there was a fly ball that hit his right his right leg and he's like mom it's been hurting ever since then so i thought okay. Well maybe there's something to that. Maybe he has a little a little stress fracture. There's a little bone cracks. Something that didn't get to heal. Yeah so yeah so we just so let's see here so we're in november and in december at this point he's limping but the paints gone. It's mostly gone but he still is walking with a little bit of a limp. Yeah we just thought that is so weird. He should not be limping so again a few weeks later he thank goodness he did this. He jumped off a four stairs onto some tile and that that was that was it after that it hurt him so bad for two days two days straight and it seemed to always fall on a weekend so i would never just take him to the doctor because it was the weekend and by monday he fine right because you don't you're like okay we're gonna go sit in insecure for three hours just to have someone tell you. There's nothing wrong go home exactly. Yeah exactly so. This was sunday and he had heard it friday night. It still hurt him. Saturday saturday night. He came in. Our room woke us up three times. Yeah made kept giving him tylenol for the pain and that helped but as soon as it were off he was back in our room and all the next day he just he just laid there he couldn't he couldn't walk so my husband actually took him to the urgent care that morning and the urgent care took rays while my husband took him there for rays. He said he needs to get an x ray and he came away from that and they said well. There's some small abnormal cell growth. You should you should khan orthopedic tomorrow. We said okay and then we still didn't think anything crazies cancer..
Mint Arrow Messages
"pediatric cancer" Discussed on Mint Arrow Messages
"At the beginning of this year the very first day in january. I had an extra loaf of warm freshly baked french bread and my dear friend. Amy popped into my mind when i thought of who i could deliver to so i ran over to her house and gave her a quick hug as a handed it off while she welcomed a couple of young missionaries into her home for dinner. Amy loves to host people and make people didn't and she's made us many many dinners the very next day. I received a text. That absolutely gutted. Me amy had been the er later sunday night with her nine year old son crew and monday. She was in the hospital with him waiting to find out if he had cancer. Crew was diagnosed with ewing sarcoma and extremely rare bone cancer in his femur eyewitness witnessed amy and her family turn to faith. Lean into the grace of the savior and the healing and his atonement and selflessly share their miracles with our community as they've seen crew through this horrible trial. Recently amy posted on instagram. That it was her goal to bring awareness to as many people as possible. What the signs are of childhood bone cancer. Amy agreed to come on my podcast to talk about what she's learned through all of this. Teach us about the symptoms to pay attention to that could be bone cancer in a child. She also teaches what this life altering experience has been like for her family. What she wishes she would have known what to do. Best to support a family going through chemo. What not to say and some of the miracles that have strengthened their faith in. Jesus christ i am here today with one of my favorite people home tie world amy willits and she is a dear friend of mine and warrior. She is a cancer mom. And what.
TIME's Top Stories
"pediatric cancer" Discussed on TIME's Top Stories
"You raised two billion dollars. How did that happen whether you were a for profit. Ceo or not for profit ceo when we were all going into this pandemic none of us had ever experienced a pandemic before it looked like we were going to be taking a material hip from a revenue perspective. We couldn't do in person events just to give you one example. We had been building up our digital fundraising capabilities. And then some very smart people that worked for me talked about ways that we could reach our supporters. Where they were we knew where they were. They were home so we employed every method that we could possibly employ to reach them at home to get our message across to see if they wanted to support our mission. Those terrible kind of estimates that we were making for revenue actually turned out to be false and we did incredibly well you worked with places like twitch and strada which people don't really think of as networks where donors hang out. How did that work. I actually am looking for different audiences that could support our mission up to sixty eight percent of our revenue comes from households with incomes of seventy five thousand dollars or less that would include young people and gamers. our typical donation is in the neighborhood of about forty three to forty five dollars. We have eleven million donors. This wasn't the first year that we had been working with influencers and gamers their audiences trust them so when matt pad or dr lupo and his wife would speak. Their audiences believed saint. Jude is a cause you need to get behind. What do you say to people who think that curing cancer is not a problem for charity. It's a problem for the medical industry to solve. sadly business. hasn't stepped up to solve the problem of pediatric cancer. There's very little investment from big pharma in pediatric cancer. Why because kids are a customer base of zero to eighteen. Would you rather work on a problem with a population from zero to eighteen or from eighteen to eighty eight in twenty twenty we developed a vaccine for covert nineteen did enough testing on it that the us food and drug administration would give it provisional approval and we figured out how to manufacture it and distribute it within sixteen months. I wondered if it leaves. Charities that deal with other diseases thinking Could we not do this for the disease. We're fighting. i dream about that all the time and wonder why it's taken us as long as it has but as i talked to doctors and scientists around the world this is just an incredibly complex problem through the work with our pediatric cancer genome project. We've now found out that there are many many sub types of these diseases and they're all very different and where a child is in terms of its development can affect its ability to survive these diseases. Apart from genomics you are raising money for such research as protontherapy immunotherapy in structural biology. Is there one that you find most compelling. I think it's attempting to solve the global childhood cancer problem in the united states. Saint judas has helped take the overall childhood cancer survival rates from twenty percent more than eighty percent..
This is Only a Test
"pediatric cancer" Discussed on This is Only a Test
"Less invested in it certainly man. Cu film but it's it's like a tone or something right because you never know what you're going to get it. It's not there's exactly there's not. It's not a cliffhanger. Serialized show like every other marvel series. Which i like. I like that aspect. I think it's great. I think every everyone has been. I mean. they've they've also varied intone like the first couple were fund and then they got a little dark so i'm curious to see where they're going to go with each one. I mean i just love seeing chadwick hearing chadwick again and that was one of my favorite episodes the black panther ravitch or one of the best one so far and even the last episode which was more zombies or there was one that came out last night but when washed it yet. The mom was a serious debts everywhere but he's still is funny but really light funny. Which tells you this is not. This is not canonical. This is just like watching a cartoon. Animations fantastic i think whatever they're doing with the nation there they had money to put it in there for sure by half an hour's too short for some of these stories it goes away quickly. It feels like they expect you to know the characters in life. It's like oh this characters here. All that character is there A lot of inside jokes from sue fans. But you'll get a lot of character development which is why like the the black panther felt like there was good character development for him. Yeah my favorite too. Yeah all right Again the one more before the big apple event quote unquote big apple events Tonight we have the launch of inspiration for this is the private spaceflight booked via spacex. So it's the vehicles and everything is spacex but the crew of four are all private citizens without any no military or any government association. So this is entrepreneur Was jason hosts name. Jason jared jared isaac mun jared isaac men who did a whole contest. They'd applications is all raise. Money for james saint jude's hospital so the goal is to raise two hundred million dollars in awareness for pediatric cancer research. there's going to be a hold net flicks show about this but the launch is tonight at five. Pm out of florida kennedy and have you seen like the images bit on the cover time magazine. they've been. There's been tons of youtube content around that. Have you seen on this stuff. Jeremy i mean i know. I haven't seen the youtube content. I've seen some images i mean. You know it's exciting. It's also little little weird the interesting thing about the mission. I'm sure all this'll be kind of really further explored. Explain in the netflix. Who've your show that's coming out of it is. It's going to be multiple days. So i think what is three days.
Newsradio 1200 WOAI
"pediatric cancer" Discussed on Newsradio 1200 WOAI
"If you out. Well, I suppose that I should be moon something else. Like my lactose intolerance. Why must Dairy disagree with me so savagely? Geico Great service without all the drama. It was. I arrived on my sarcoma. Within a few days. Hannah was in treatment because we were told that you know, was very aggressive and very quickly became clear That dude was the ultimate place to be. So we've essentially put our lives in South Africa and hold Incredibly blessed to be here. Since Judy is an asset to the world. The research that is developed here is offered freely to the rest of the medical world. The entire way that the place operates is just to give and take care. I think it's the kind of place that not only stands as a beacon for pediatric cancer, but I think it could teach the world a couple of lessons about how to treat people. And I think if those lessons could be learnt, even in their most basic form This world could be a better place. ST. Jude Children's Research Hospital Finding Cures Saving Children learn more at ST you dot org Star. Hey, if you ever have a question for me love to hear from you just head over to commander dot com.
Newsradio 970 WFLA
"pediatric cancer" Discussed on Newsradio 970 WFLA
"Bong, but expect delays near Raymond James Stadium on Dell Mabry Highway and Himes Avenue due to Lane closure for the Buccaneers game. Fredrick Morris News radio w F L A Scattered showers and thunderstorms are likely this afternoon with rain chances only slowly tapering back after about seven PM, and even then we could still see some lingering showers. This evening. Tonight We should be mostly dry, but rain chances stay elevated on Friday with some tropical moisture lingering as tropical depression Mindy pulls away this weekend will be much drier. With rain chances coming down to a 30% for Saturday and Sunday with highs in the low nineties. I'm maxed Vendor eight meteorologist Amanda Holly. Retirement. It's almost here. Are you ready to an end to retirement Success with Steve and Elizabeth Holland of the Holland Group Retirement Wealth Advisors start planning now for your retirement dreams Don't miss retirement success with Steve and Elizabeth Holland Saturday mornings at nine and Sunday afternoons at one. Attention. Tampa Bay Wesley Chapel Lexus is happy to accept your Lexus lease return. Even if you didn't buy from us. Plus will cover any additional lease termination expenses up to $500. If necessary. We are your home of the exclusive Lexus lifetime plan was a chap, Alexis right off. I 75 just north of I four when you think Lexus Think Wesley Chapel Lexus Wesley Chapel, Lexus dot com. September is childhood Cancer Awareness Month and National Pediatric Cancer Foundation is helping scientists and doctors make strides against eliminating pediatric cancer, joined the fight and help by donating.
Fred + Angi On Demand
"pediatric cancer" Discussed on Fred + Angi On Demand
"Wants to hear her feet boogie nights. They is not this off. I i love you guys and bamberg throw brad. Thank you for everything albania. Pleasure yeah we love cows. Angels run here stacey now over there you gotta effect i gotta get. Yeah thank you have a great day. Randy stacey's husband. Tam joined a group. That's riding their bikes like halfway across the country to get pediatric cancer. Yeah they were trying to get me to do it. And i'm like my bundle that well there's a lot of things i couldn't handle my but can't handle it. My body can't handle in around. Yeah yeah never mind. I you know what i'm not i'm not. I'm not turning that around on your kids. Cancer so He says you guys have a restraint restraint at all Let him up there. Man no but there are sometimes when we don't need to do it sometimes. You don't need it you don't on a second here. When i was a bunch of these bride of chucky team america awhile crying game. Red spero red sparrow with jennifer lawrence. That movie was crazy. Isn't in amman. That how you say. Oh sorry. Hill isn't gonna neeman yes perfect. What was the movie that your parents. I took my mom. My brother pulp. Fiction ran fadia. This theme where one person was getting violated. She looked over. That's when she said. I can't believe you watch the smut and that's just to get out of the movie one for some time. Thank you have a great day. Are you can't be entertainment reports. Two minutes away after travis. Scott fred show one zero three seven five. Kiss up elitist. Entertainment news is on the fred shown after thirteen years. Miss britney spears is one step closer to controlling her own life so her father who was the conservative of her filed a petition tuesday to terminate their legal arrangement. He released this long statement that i didn't believe a word of it Basically talking about how much you helped her when she needed it with this whole situation and that he's always wanted the best for her and he doesn't know why anyone say anything different. Sure dude we believe you not Brits new attorney matthew rosengard called the filing a massive legal victory as well as vindication but he also said that filing It seems like her. Dad is trying to avoid accountability and justice including sitting for a sworn deposition which i think he's trying to go. I have a question so he wants to end the whole so not like give it to somebody else. She's gonna be free. He's trying to give her what she really wants so that no one looks like what he did. You know in terms of the money or whatever okay and he's like backing away really he's trying to get out of everything He also said oh no. It's okay. She doesn't need to go under a psychological evaluation. So he's just. I don't know he's trying to distract everyone. Obviously now. the court needs to decide what they think is best and the judge is expected to rule on the petition september twenty-ninth. So we'll know more than what they think but yeah he's i think he's trying to just get super good guy. The courts have always been her site. Either they're acknowledging. She needs somebody to oversee all this stuff. And maybe at this point we've proven it's not him realizes that britney making you all this money and all you do is write a bunch of crap about her. She hasn't performed onstage in years. And give me more for a reason because all you people want is more and more on won't do that so right now. Yeah yeah so. Eric couch you may know him as the zookeeper from tiger king has passed away at the age of fifty two. If you wash it he was the one with long blonde hair so cops in new york. Got a call reporting an unconscious mail on friday. He was pronounced dead on. The scene is 'cause of duck hasn't been determined yet. Eric was one of the zookeepers featured on netflix tiger king. A game of thrones home in rochester hills. Michigan went on sale for two million dollars yesterday. So even if you're not a fan of the show. This house is insane. So it's ten thousand seven hundred and nine hundred square feet sits on more than six acres surrounded by a wrought iron fence and two gated towers. There's twenty-six rooms. Some of them are hidden. also secret passageways. I hid in tower with a fifty foot. Tall spiral staircase the previous owner brought in people from all over the world to help construct over six year period in the nineties to enter. You must cross the drawbridge above the mode and the waterfall There's also a secret underground grotto with jacuzzi hidden dungeons fitness center billiard room library with a loft and a home theater screen. Also an elevator with ten foot tall oak and mirror cars. So it's basically a big maybe evil castle and it looks amazing more to check out online. Today there's a new cod dash ian jenner baby on the way and Steve from blue's clues he went missing. But he's back and he has a message. For all of you millennials. It's on fred. Show radio dot com and all about steve. This morning and blue's clues i did. I didn't know. I didn't know a lot of style and it was a little bit after my time just lightly after my time. I don't know how is it still funny to you. It will always be is that that is funny crawling. I don't know any previous morning shows before as they let the old anywhere. This frightens me tremendously. I mean this is. I mean you don't think about until you see the story and then you realize it could happen But a texas woman named patty found a massive python in her toilet when she went to the bathroom. It had crawled up this ir- line listen to this. No end up in the middle of the night to go to the bathroom. And i opened my bathroom door and switched on the lie and turn around and that was big python laying on the back of my toilet and it just tell freaked me out you know. I never expected that. Kind of freak you out. And here's the report on how the snake was then. Removed says animal control arrived in less than five minutes. They actually used batty's hairspray ner to remove it. Anders police officers believed the python is. Someone's pet because it was big and looked well-fed as for patty except on the snake decides discussed.
The Long Run
Julie Grant and Sam Blackman on Cancer Drugs for Kids
"Julie grant and sam blackman. Welcome to the long run. Thanks luke thankfully To be talking to you again. It's been a long time. Yeah so Day one biopharmaceuticals. You are trying to chart a new course here in pediatric cancer drug development. Can you start off by telling me like where this came from. What's the origin story of day. One julia you wanna start cher. I i think the origin story of day. One is a lot of serendipity a lot of fortune and i think also A lot of really good people who wanted to make a difference in a group of patients who have been rather overlooked by our industry historically which has children with cancer. And luke. I think back to to some of our conversations not thinking back to two thousand eighteen in before we ran into each other at the biden. Cancer initiatives Conference together. And the way that this really was raised on on my radar was through a a physician. Who at the time was the chair of the children's oncology group Gentleman named peter adamson who at the time was Chop so at a u. penn's pediatric oncology center. And he at these meetings that we were having to try and think about national level. Change for oncology in the united states. He really raised my attention that he he thought that there were medicines that could potentially work for children that were not moving forward because of lack of support from the pharmaceutical industry and that really caught my attention and we had a series of meetings where he educated me along with a woman named susan. Winer who lost. Her child took to cancer in his been a lifelong advocate in in the field and talking to congress about legislation and through that process. I became much more aware of of this. This unmet need in pediatric oncology. And it hit me that it also could create a real opportunity for company. Originally i was thinking it would be a nonprofit that i would be part of but then over time it it really converted into a concept which we can get into as a for profit
DNA Today
"pediatric cancer" Discussed on DNA Today
"Book your console today with brand. We fast forward to as we can saying. Baby brooke has failure to thrive which is a kind of general term. What are some of the signs or symptoms when a bb has failure to thrive right. So like you said. It's really an umbrella term to describe inadequate growth or the inability to maintain growth which usually occurs in early childhood. It can be a sign of under nutrition and it may be caused by medical problems or factors in the child's environment such as abuse or neglect or in this case genetic disease those that are biological may involve genetic factors such as chromosome abnormalities like down syndrome or single gene disorders such as those involved with metabolism as we see in brooke and so one of the conditions as they're going through in meeting with a pediatric genetic counselor at that point right of pediatric cancer in geneticists at different points. Soap part of the work with that is they're coming up with different conditions. That could be there. So one of those is called pompeii disease What for those. That maybe aren't familiar with pompeii disease. We've been talking about like oh metabolic conditions. Can you break down what that means. Sure pompeii diseases. What's called a glycogen storage disorder. It happens when the body can't make a protein that breaks down a conflicts should burn called glycogen for energy so too much sugar builds up and damages the muscles in the oregon so it causes muscle weakness in trouble breathing and in more severe cases a whole host of other problems that mostly affect a liver heart and muscles and depending on the type can be very serious and when it came to figuring out like what disorders you're gonna explore in terms of what the characters were facing what led you towards pompeii disease. Was there any experience in genetic counseling that led to that. No actually not not my own personal genetic counseling or in my work It's actually pretty funny story. I had initially written it as a different metabolic disorder which is really unexciting. Renamed maple syrup urine disease because when a child is affected with this urine tests smell like maple syrup and that has to do with the metabolites that are are building up in the urine and when my son was an infant i noticed his that his diaper sometime smelled like maple syrup and of course. He was absolutely fine but as a genetic counselor. I know it's a real disease and You know. I just kind of had to make sure and my son has always been laughing at me that i was just using my genetics knowledge to make up something ridiculous. We lot so we're looking for things and fail. Numbers yelling so i was going to use that disorder in the book as an image to my son. But then i realized that maple syrup urine disease would have been picked up on a newborn screening panel so that the fact that brooke hadn't been diagnosed with it right away wasn't particularly realistic So that point..
Terrible, Thanks For Asking
Managing care During COVID
"What's an average day like for you. Caretaking on a typical day to feel like you have things under control while. I'm going to answer the second question i do. I have things under control. Never never ever ever. It's like. I'm on this constant roller coaster of ups and downs Just one. I think i've got it under control. The rug gets pulled out from underneath me. So what is an average day like my kids are early birds and for the record i hard roll my eyes that anyone who says their kids are early birds and then proceeds to tell me that they're little angels wake up at seven. Am shut up. try waking up every single day at five. Am for six years to just energetic screaming. Demanding kids. I don't know why i was blessed with early birds but here it's not as if the universe looks at us. Ms like a handful. Move onto somebody else quite often the terrible things. Just keep happening. They just keep piling up and for so many of us were not just caregiving in a traditional sense. Were caring for the people in our lives. In different ways. We are blurring the lines of our relationships between being caregiver and being a mother being a daughter being a sister being a wife being husband. I don't know. I said all all female roles except that i mean we got a lot of women's voices in here. I am a caregiver to my son. Boden he is eight years old and has acute lymphoblastic leukemia. I think one of the interesting things about being a caregiver to your own son or child is it's hard to distinguish what is just being a mom from what is being a caretaker. I ended up spending a lot of thought cycles and kind of emotional energy taking of him in a way. That is different than the way i take care of my other children. I then have to work through and process. The guilt of that discrepancy knowing both that biden has kind of different story or a different journey than the other kids that i have. But also that i'm all of their moms and so how do you kind of identified the difference between where caregiving stops and where mothering takes back up. When i was reading through your questions when you said caregiver like Or what is a normal day of caregiving. Look like. I kind of laughed. Because i thought man i think from the moment i opened my eyes to the moment i closed them giving Once pediatric cancer is kind of rock. Your world. I'm not sure there's really a space outside of it. I'm thinking about things. Like why is he not hungry for breakfast. Why is he craving meat. Why does he not wear a jacket. Is it because of a side effect of chemotherapy. Why is he sitting on the outside. When i pick them up from school wise. He's sitting on the outside of the soccer game Is it because his legs hurt is it because of the neuropathy whenever he has trouble with his homework is at a side effect from the chemotherapy. Is it affecting his cognitive function. Is it just him. Being eight I think when your role as a caregiver is so interwoven with your role as another relation like for me. His mother is just hard to kind of tease out. What part is caregiving. And what part is just living with a person with cancer so the average day for me really changed a lot during the various stages of my mom's illness she had end stage breast cancer and in the beginning when the cancer i came back it caused a lot of fluid to build up around her lung and then her lungs to collapse so at that point. We really didn't know that it was her cancer that was back and we were dealing with a medical emergency so my mom had to undergo invasive tests and surgery and there were just days with a lot of uncertainty about the diagnosis and the prognosis. And i was travelling back and forth from durham to charlotte while also taking care of my own family Here in durham and and working fulltime
Our Auto Expert
NFL Honors: Seattle Seahawks' Russell Wilson announced as 2020 Walter Payton Man of the Year
"But it's also a weekend where some top NFL honors of the year have been announced for me. Abed Buffet of Coma Sports says there's a Seahawk player among these honors. Russell Wilson is the epitome of what you want from a franchise player. No, he's never won the M v P, But he's a great athlete and an even better person. At the NFL honors, the league recognized that Wilson's value stretches far beyond The white lines. Russell Wilson was named the Walter Payton, NFL Man of the year for his charitable acts and excellent on and off the field with the help of his wife, Sierra Wilson, and the Why not You foundation donated one million meals to feeding America's food lifeline. In October, Wilson announced their latest efforts of starting the Why not You Academy who will be a charter school set to open next fall for the award, Wilson will receive $290,000. Go towards the white, not you Foundation. 2020 was the most difficult times of history, losing a sports icon like Kobe in a movie star and Chadwick witnessing losing George Floyd. Right in front of her eyes. A modern Briana and so many others the loss of so many because of this monster of a pandemic called Covert 19. We've lost so many things, but, Dad, I wish you were here. You to tell the world love changes things. Wilson is the second Seahawk to win the award after Steve Largent in 1988 and rightfully so. The list of contributions include partnering with the United Way's United Last Mile campaign, which is delivered 860,000 miles across King County, along with wine that you foundation Wilson has also helped raise more than $9 million for pediatric cancer research to go along. The hundreds of patients he's visited at the Seattle Children's Hospital since coming to the northwest and 2012 and this past fall he joined I am of voter to encourage voter registration. Nationwide. That's
Business Rockstars
‘Dancing for my dad’: Penn State’s THON unites generations in the fight against cancer
"Penn state university's dance marathon came to a close with the announcement that the largest student run philanthropy in the world top almost twelve million dollars in donations for its twenty twenty event the total goes towards funding pediatric cancer research and covering the medical expenses of patients being treated at the Penn state children's hospital the weekend featured a fashion show the dance competitions and performances by a number of Penn state's singing groups there are more than seven hundred dancers this year who spent the entire forty six hours without
Gary and Shannon
Stem cells from dozens of child cancer patients lost after freezer malfunction, hospital says
"I do children's hospital as Angelus has apologized for losing the stem cells of fifty six pediatric cancer patients the stem cells were harvested from the kids before they underwent chemotherapy and radiation treatments the stem cells were destroyed because of what the hospital calls a freezer
John and Ken
Hospital freezer failure destroys cancer patients' stem cells
"I need a hospital freezer malfunction in LA has cost dozens of children there stem cells officials with children's hospital Los Angeles apologize of families over the failure of temperature sensors on a long term storage freezer the malfunction kill the stem cells of fifty six pediatric cancer patients stem cells are typically collected in the early stages of a child's oncology treatment since chemotherapy off to destroy stem cells so extracellular frozen for possible
PODSHIP EARTH
Pediatric Cancer Close to a Cold War Era Nuclear Energy Testing Site
"This week. We talk about a young girl called grace who contracted an extremely rare form of leukemia. A Mother Melissa bombs did was put into place. Many of us never even think about putting everything on the line in the battle to save. I loved ones on that journey. Melissa began discovering that the potential causes of Greece's Kanter may not be very far from so Melissa's. Maybe start by telling us how you decided to move to this community and where we are well right now now. We're just outside of Seamy Valley. I grew up in thousand oaks which is only about five more miles from where we are right. Now I went to Los Angeles for college and when my husband in an I ready to start a family we were looking for a community that was close enough to Los Angeles for work but it was safe. I checked out all the Megan laws to make sure that that was safe. I checked out all the schools check out all crime. I mean I really did quite a bit of research because we wanted to provide the best that we could for our children so you're so you're looking around for homes. Where did you end up locating well. it was a rather miraculous purchase but our first home was on Fallbrook Avenue Avenue in West Hills thirty miles out from Hollywood or we're very close which is why West Hills was so ideal. It's it's the community for people who can't commute too much wjr but also want to be close to work. It's a fairly affluent area calabasas right down the hills where all the celebrities live and it's a nice well to do comfortable city okay so you'll living this new life and and what happens next well when my daughter was four years old she started bruising using and she is a very active kid she's always been a Alpha female since day one name a Grace Grace Allen and so when she started bruising and I took her to the doctor. They said she's just really active little girl. There's no problem here in. I pointed out like she was. She has little bruises on her forehead red and they said well. I'm sure it's fine and they sent us home. A couple of weeks later call back and I said it doesn't feel right. I got brushed off again. Finally leash she had a giant purple scar down her whole side and I called back the doctor and said this. This can't be normal most doctors. I will never have a cancer patient and so I like to think that's why he didn't move quickly three days later. We were finally informed. That grace had every symptom of leukemia. We ended up at Children's Hospital. Los Angeles where on January twentieth we learned that she had an exceptionally rare form incredibly aggressive aggressive form of leukemia call the positive The Philadelphia Chromosome Ehlo and just as a mom and a family. I mean that's just just going to be a terrifying. I mean Con- imagine getting that news. Your whole life stops and everything crashes. We were impatient immediately for week but when I got home I would not mean to but I would just stop in the middle of an intersection forget that I was driving. I was forget where I was going. It's it's it's more than life changing really. It's hard to describe because a lot of these feelings. I have not allowed myself to process a lot of these memories. I've really worked hard hard to keep them away. Just now coming to a place where I'm starting to feel and remember and it's a hard place to go back to to be honest. It wasn't the first time she was diagnosed. That was the worst for me. The worst day of my life was when she relapsed a year and a half out of treatment that that to me was is a thousand times worse than the first one because we immediately knew that her survival rate on a on a clinical trial the first time was seventy percent survival rate which to everyone else sounds really great until the cancer parents. That's one three out of ten children and they don't tell you up front who those three are going to be so. It's not amazing in but you know it's it's there's hope when she relapsed they would not tell us her survival rate and I think it's because they knew we would lose all hope. We knew immediately that she she would need to have a bone marrow transplant. We knew what type of chemotherapy she would have. We knew she would have radiation. I mean we knew we knew what we how bad it was going to be and I think that's why the second time was so much worse than the first time the first time we were pretty naive and how did grace. How did she react react to two oldest like as a kid. You're going through this really you know and especially adults we know more like how is she coping well. It's it's interesting because I think most people assume that childhood cancer. Is You know some throwing up some discomfort in the worst parts you lose. Your hair turns out losing your child losing their hair. The easiest part of the entire journey everything else is a thousand times worse and fortunately when grace was four years old she still really really looked to my husband and I for approval and so she and because she was at the Children's hospital all the time in all the children in her ward are all bald. That was a comfortable place for her by the time she was in second. Grade is she. She knew that other kids had hair she. She knew you that she was different. She knew right after I mean the minute after we told her that she had relapsed she said am I going to die. She knew everything to and and that's tough on a kid and it was tough on my son who was only two and a half when she was diagnosed and if grace had a fever in the middle of the night we had one hour to get her life saving antibiotics so it was an emergency situation to get straight down to the children's hospital and I couldn't wake him up at three in the morning and say goodbye I but sometimes they'd be gone for three to four weeks inpatient and so he he developed a lot of a lot of his own issues and problems and heartache heartache I mean our whole family was affected. My daughter had the worst of it obviously but I don't think people quite realize the trauma brings to the entire family so because graces his cancer was so aggressive did did she need different or more kinds of treatment. She ended up having ten times. The regular dose of chemotherapy than a standard leukemia child would have and so we we spent longtime impatient because it was so devastating on her body auty. She had all kinds of issues she she couldn't eat anymore. She had sores all throughout her mouth. In fact they said it was one of the worst cases of Mucus. Itis they've ever seen it was all the way every part of your mucous. Lining in her body was covered in canker like source so she was addicted to morphine at that time the chemotherapy be gave her neuropathy where if she touched the ground she would be screaming in pain pancreatitis and blood staph infection all at the same time. When did you start noticing patents that you saw the children's cancer ward we live at the hospital more than a typical leukemia me a patient might so we met a lot of the the other families staying there and grace and I were walking down the hall one day and a mom opens the door and said I know no you from the park. I recognize your daughter. We said you know childhood cancers really rare. That's impossible. I'm sorry I don't believe you and when I went home that weekend. I found out that she was right. She was in the background of the pictures from that day and her daughter now had neuroblastoma which is in cancer more rare than my daughters and eleven months after that day she passed away at two years old and then we met the hammers lease and again in treatment and just casual conversation precision. Oh so where are you guys from and she said Seamew Valley and Simi Valley is not far from my home so that was alarming to me but I I kinda voted off. You know it's fairly populated area her daughter. Hazel also had neuroblastoma and excessively. I believe there's only six hundred cases in America. Every year of NEUROBLASTOMA and Hazel was in treatment. Hazel passed away last March after a six or seven year
SportsCenter AllNight
Purdue superfan Tyler Trent dies from cancer at age 20
"Cancer. Fan. Son. Brother. Fighter. Inspiration. Co-captain highly trip the Purdue University sophomore whose battle with cancer stirred a football team. And eventually touched a nation has done. He was twenty years old. After osteo sarcoma. A rare bone cancer had attacked his body for the third time and forced him to withdraw from school. This fall Trent was diagnosed as terminal in home hospice care who shared his story with college game day of the bond he'd formed with the boilermaker team is a student and if his unwavering desire to see them win their biggest game of the year at home against any number two, Ohio State. Is that? Thing a week after that prediction, trend traveled from home to watch his team double digit underdog take on the buck is he is in hospice at home and wanted so desperately to be able to come here and be a part of this night. Just to be here a wave of emotions. What is free? Eight. You. Trent head and especially close connection to produce quarterback. David Blount visited supported and prayed with him alongside teammates or fought through the season to me looks like and boilermaker looks like somebody who's going to fight until there is no fight. It was that fighting spirit that unflinching will captivated so many in the last months of translate in his determination to raise money and awareness for pediatric cancer research. His battle resonated and reached farther and wider than he ever imagined from his appearance on sportscenter, Scott van hill visits from athletes. I got him gonna tear it from the letter he received from the White House to his receiving the Disney spirited. There's always at the end of the town. Land your faith. Trance courage in the face of mortality and his message of gratitude in the midst of struggle, inspire donations to the foundation and the creation of cancer research endowment in his name. Do. Hi, Lou translate. His legacy remains. And while he never dawned answer caught passes. Never scored a touchdown made a tackle. He will be a co captain named bias teammates in over two for so many seasons yet to come. Tyler trend served as
Science Magazine Podcast
Where private research funders stow their cash and studying gun deaths in children
"For science this week. She wrote a feature on a new grant to jumpstart research on kids and guns. Hi meredith. Hi, sarah. How big a problem is gun violence or gun injury in kids in the US? It's the second leading cause of death and went nineteen year olds in this country. Second only to motor vehicle accidents guns kill about between eight and nine kids a day and this country, roughly thirty one hundred kids slow more every year cancer. By comparison kills about eighteen hundred fifty kids a year. So fifty eight percent of that number and yet when you look at the research funding and just to take one example, not hang it all on the national institutes of health because the CDC has a huge role to play here if it would but the national statistics of health spa. Spent for hundred eighty six million dollars in twenty eighteen studying pediatric cancer, which I'll remind you kills about eighteen hundred kids and spent three point one million dollars studying how to prevent kids from getting hell with comes. You actually went to Michigan to attend a meeting where people were discussing what kinds of experiments this bunny from the NIH to go towards can you talk a little bit about who was there and what they were trying to figure out. Sure there were roughly thirty gun researchers and trainees in this conference room at the university of Michigan trying to hash out what pilot studies they should take full 'word as part of this four point nine million dollar five year grant from NIH is child health institute there Amos to jump start research on how to prevent kids and teenagers from being killed by firearms is seems from your story that one. The changes here is treating gun deaths and gun violence as a public health issue rather than you know, how to treat them or how to prevent them with laws sits other tactic. It is it's not new to about three dozen gun. Researchers who've really been working in the trenches for a quarter of a century attacking this as a public health problem in the much the way that motor vehicle crash. Studies led to Vince like side airbags and child restraints and seatbelt laws. The idea is to use a dispassionate inquisitive scientific based mindset to get at how do we reduce injuries from guns not to take people's guns away at this point? I want to introduce one of the principal investigators on this grant. Okay. So I have Rebecca Cunningham here. She is a professor of emergency medicine at the university of Michigan medical school. And also the principal investigator of the firearm safety among children and teens consortium more facts. Hi, rebecca. Hi, when they net did come up in the story was that you did residency in Flint, and you saw a lot of gun violence there. Can you talk a little bit about that? Sure. In a not disturbances. So I worked there as the resident. But then also as a staff attending physician for about ten years in Flint, Michigan, and in Ann Arbor, really the world that we practice in our firm urgency medicine are two very different worlds when a suburban worlds here in Ann Arbor and one very urban world and Flint Michigan and in both places. I've taken care of many young teens and children who have been victims of firearm violence in. It's just heartbreaking in. So those youth that we take care of at that point. There's very little that can be done almost you're doing some NCA JR. Lifesaving maneuvers and more often than not I was spending time in sort of small waiting rooms Tele giving very bad news to parents that their child had been shot and killed that day. And in here in Arbor had been the victim of finding a gun and using it when they. Had a suicidal moments and had devastating injuries. Endore was not going to make it that day. And delivering that news any number of times, she families at some point. We wanna work up stream. What can we do to stop? Having these discussions. We do to stop having these youth arrive in our trauma bays. What should we be doing? Because once once they arrived there there's very little that can be done. And we do amazing things in medicine, but really to have an impact on this. We have to work upstream from the trauma bay outside in our communities. Right. That's a really good segue to this grant. And the meeting that you had recently where you discuss different ways of spending that money and doing different kinds of research. Can you talk about the kinds of topics that might be addressed with this money? Sure. So understanding that there's been very little research in this field over the past twenty years, we really need to jumpstart the capacity for research families want to store guns safely overwhelmingly, they don't want their young children to be shot. They don't want their suicidal teens. Find a guns in their home. How we can help get that message across to them and help make it feasible for them to do. So in the same way that we help families thirty years ago, understand what the best car seats were. And how to have those applied in their cars and find it to be feasible and not annoying for them to do. So that's health behavior research that can be done that can help families around safe storage other types of work that can be done with the grant we have a lack that we don't know about for example, the built environment, and how are cities and streets are laid out in terms of parks and buildings that are in disrepair, and how that sort of environment can affect firearm violence in those areas, we have a lot of work to do with better data collection on youth. Do come in for example, through the emergency department. Very little is known on how they do from their mental health after the are after a school shooting that say we know that those have massive impact on kids across the country in terms of how they're feeling about being anxious. This about going to school the next day PC, they might be experiencing either for witnessing those events or from hearing about them on the news. We don't yet have best practices to understand how we can help those youth through those times the reason that funding was clamped down on about twenty years ago was a political one. So I'm wondering what's your approach to dealing with some of the political blowback that you might get from embarking on this kind of research. Yeah. I think it's really important that we don't see this as a political issue at all. We've you this a'safety issue. So as a physician, we all the time talks are patients are worried about our patients safety were worried about whether they're in a car seat for their kids were worried about the temperature their water were worried about whether or not they're smoking. How that affects their asthma worried about the safety and welfare of our patients in in the same way, I'm worried about the welfare of the patients that I see arriving in our trauma bay what we can do to have them not being our China bay. I don't think at our core. When we put aside the deep divide in the country right now that anybody really sees. Children dying firearm violence as a political issue. We all have that coming goal has the wanna say really clearly that our grant fully respects the second amendment rights. We understand that in our modern age just as that we have cars, and that our cars are going to go away our country has strong support second amendment rights, and that we are going to work within that framework. All right. Well, so now that you've had this first meeting what are the next steps for you? And for the facts group where rapidly gaining momentum. There's a lot of interest by smart young researchers now in the country, and how they can apply their skills to this injury problem that they really have have not been focused on for the past twenty years. So our team is working diligently on training, the next generation of researchers who are joining our work groups, we are working to get those early projects off the ground. So that we can start to provide some early answers both for the country as well as to lead to larger scale. Solutions. Thank you Rebekah. Now, I just want to get back to Meredith Wiedeman for a couple more questions. She's a staff reporter science so Ma'arif. Do you think that we're gonna see a rise in funding for this type of research is just the start of something bigger? I think it's a possibility lot will depend on what the congress does you could take for example, Nita Lowy Republican congresswoman from New York who has summer tried to put ten million dollars for gun research your marked for it into the centers for disease control budget, and the Republicans voted down in committee now Democrats are going to be controlling that committee, whether they can get it thrown into a funding Bill approved by the Senate remains to be seen. Okay. Meredith. Thank you so much for talking with me. You are so buckle. That was Meredith Wiedeman a staffer Boerner here at science and before that Rebecca Cunningham, professor of emergency medicine at the university of Michigan medical school. She's also a principal investigator for the firearm safety among children. And teens consortium you can read meredith's feature on gun injury prevention research and science MAG dot org slash news. And that concludes this edition of the science podcast, many comments or suggestions for the show right to us that science podcast at AS dot ORG. You can subscribe at the show anywhere. Anyway, get podcasts or you can listen on the science website that science MAG got org slash podcast to place an ad on science podcast, contact mineral dot com. The show was produced by Sarah, Spey, Negga Cantwell and edited by podgy, Jeffrey cooked, compose music on bath of science magazine and its publisher for bless thanks for joining us.
24 Hour News
Antiseptic prevents therapy dogs from spreading MRSA to pediatric cancer patients
"Doctors at Johns Hopkins hospital in Baltimore found therapy dogs can spread superbugs like Mercer two kids. The doctors were suspicious that the dogs might pose an infection risk to patients with weakened immune systems. So they conducted some tests when four therapy dogs visited forty five children getting cancer treatment. They discovered that kids who spent more time with the dog at a six times greater chance of coming away with superbug bacteria than kids who spent less time with the animals, but the study also found that washing the dogs before visits and using special wipes while they're in the hospital took away the risk of spreading that bacteria. The results of the unpublished study were released Friday at a