35 Burst results for "Michael J"

Tucker Carlson: Apple Purposely Disabled AirDrop Feature in China

The Charlie Kirk Show

01:50 min | 6 hrs ago

Tucker Carlson: Apple Purposely Disabled AirDrop Feature in China

"Cut 66, Tucker Carlson talks about how Apple has limited the AirDrop feature in China, play cut 66. Earlier this month, Apple did the bidding of the Chinese government to crush domestic protests against the Communist Party there. Apple did this by disabling its permanent AirDrop feature in China. So why did Apple disable that feature in China? Well, because that feature permanent AirDrop allows iPhone users to communicate directly with one another without using the Internet or cellular networks, both of which in a totalitarian state like China are controlled by the government. And that's why when iPhone users in China began using permanent AirDrop to complain about the Communist Party, Apple just shut it down. Apple is now an active collaborator with China's police state. Someone emailed this freedom at Charlie Kirk dot com. Michael says, you need to move on from Apple products to set an example. That's fine. I acknowledge that. That's why I led with that. I didn't want to act as if I was immune from enriching apple's ability to grow very powerful over our country. And what's so illuminating for conservatives is that for years, we were always told that if we had free markets and lower taxes that things would solve themselves through natural competition and that rule is generally true, but what happens when a company itself begins to infringe on civil liberties? What happens when a company doesn't actually act in their best profit interest, but actually acts in their ideological interest? The CEO of Apple Tim Cook, he is far more interested. In protecting and preserving the Leviathan that Apple has become Apple, similar to Google, by the way, has become its own government. Now,

Apple China Chinese Government Communist Party Tucker Carlson Charlie Kirk Michael Tim Cook Google
Mike Gonzalez on Hispanics and Identity Politics

America First with Sebastian Gorka Podcast

02:18 min | 1 d ago

Mike Gonzalez on Hispanics and Identity Politics

"Made fun of you. I made a little joke in our green room earlier. I used the epithet, the adjective Hispanic, you wrote a book, let's put it up there the plot. This is your first blockbuster book, the plot to change America. How identity politics is dividing the land of the free. This book is a real glimpse behind the curtain mic of the kind of divide and conquer philosophy, which has gotten us to a place where you as a Cuban or a family from Cuba, if you fill out an official federal form, there'll be a box that separates you from me that asks you whether your Hispanic or whether you're non Hispanic, how much has this identity pot. Let's start with this. How much is identity politics left political parties and ideologues and radicals and borrowed its way into government. In fact, because Hispanic is not a race, it's a questionable by itself in the senses. They ask you, it's completely divides the country into Hispanics and non Hispanics. And I choose never to answer the question. This is obviously an artifact of the activists of the 1970s who insisted that the Census Bureau create this category. Just make it up. Yes, and when the Census Bureau, which at the beginning, now of course, the Census Bureau has been infiltrated. But back in the early 70s, they were quite reluctant to do this. And there's a very famous exchange, which I quote in my book, in which a director of the Census Bureau said, we have all the data that you need. We have the language to speak at home. The nation of origin, you know, we have all that and they activists said, we don't want the data. We want the group, create a category. Let's unpack that. So what is the objective of the activist in the 70s who say to the bureau, we don't care whether or not they speak Spanish at home. We want a label. We want a box. Why do they want that Michael? Well, it's because once you have a group that you can isolate from the rest of the country, then you have a victim who category. In fact,

Census Bureau Cuba America Michael
Why the Crypto Contagion of 2022 Eventually Hit Genesis

Unchained

01:53 min | 1 d ago

Why the Crypto Contagion of 2022 Eventually Hit Genesis

"Let's just start with where we're at at the time of this recording, which is that the collapse of FTX and Alameda may be knocking over another domino or two. Namely, probably at this point, the crypto lender genesis. At the time of recording, it has not filed bankruptcy, and I'll just add the word yet. And in fact, The Wall Street Journal quotes a genesis spokesperson is saying our goal is to resolve the current situation consensually without the need for any bankruptcy filing. Genesis continues to have constructive conversations with creditors. So additionally, The Wall Street Journal reported that genesis had reached out to binance which declined and to private equity giant Apollo for either investment or to bid on their loan book. Okay, so knowing that this episode will come out next week. What do you think is most likely to happen with genesis and also to its parent company DCG? If you don't want to make a projection, maybe just talk about how you're thinking about contagion and crypto lending in general. Who wants to start? I'm going to just volunteer Michael. Okay. Michael. Good luck. Predicting one plus week into the future in this current market environment. Oh gosh. Well, I think it's interesting that we've seen complete silence on the DCG side. I think that the thing that we saw that was different with Alameda was Sam was actively tweeting. It was kind of crazy how actively used tweeting. And so I think when I think of what you should look for, it's who's not saying anything. And I've asked my friend to possibly be working on the financing what's going on. And the people who are working on it are dead silent. You can see their telegram. They haven't responded with it. They've been telegram in two days. That means they're all night working. So there's something going on in the background that there are. There is some type of financing trying to be done. It would take a traditional finance lender to step in here.

Genesis The Wall Street Journal Alameda Apollo Michael SAM
John Zmirak and Eric Discuss E. Michael Jones' Antisemitism

The Eric Metaxas Show

03:06 min | 1 d ago

John Zmirak and Eric Discuss E. Michael Jones' Antisemitism

"Years ago, I read some of E Michael Jones's books. And again, this is what Nick Fuentes is kind of following, right? I read some of his books and he wrote one called degenerate moderns. It was brilliant. He wrote another one about architecture and another one, I forget. But brilliant stuff, right? And so I visited him in his home and I didn't see the anti semitic side of him until right around that time, a friend of mine, doctor Jeffrey sat in over, wrote a brilliant book, he is a genius psychiatrist, he has a degree in quantum physics. One of the smartest people I know, not a Christian, but he wrote an amazing book from the point of view of a psychiatrist who had dealt with people struggling with same sex attraction. And it really an amazing, amazing book, sat in over his last name. And so I interviewed him and reviewed it ostensibly for E Michael Jones magazine. He hardly printed anything of what I wrote. He cut almost everything. And then he wrote a review that was effectively anti semitic. And I will never, ever, ever forget it. I read it and I thought, this, this can be, this is the whole, the whole review of this great book, which was homosexuality and the politics of truth by Jeff sat in over hinged on really an anti semitic idea. And that's when I realized 27 years ago, uh oh, I don't know that I can spend any more time. You're telling me Nick Fuentes who just had dinner with the president is following you, Michael. Right. That's right. And I'll just explain briefly to your readers. Michael Jones is a theological Jew hater. He doesn't hate them racially. He doesn't believe in Nazi crackpot racialism. He believes that any one of the Jewish people who does not accept Jesus is the moral equivalent of the sadducees and that he takes literally the statement, let their blood be upon us and upon our children. He channels the old old anti semitism of some of the church fathers and some people in the Middle Ages. He takes all that, not as a historical tragedy and abuse, but as an authoritative part of the Christian tradition. And he describes the Jews who did not follow Jesus as the synagogue of Satan and the mystical body of Antichrist. That has existed ever since the death of our lord. And as a sort of satanic counter church. And so he blames Jews for pornography, even though the Marquis de Sade was not Jewish. He blames them for abortion. Margaret Sanger was not Jewish. He manages to act as if the Jewish people by not accepting Jesus became Antichrist. And

Nick Fuentes Michael Jones Jeffrey Jeff Michael Marquis De Sade Margaret Sanger
John Zmirak and Eric Discuss Kanye West

The Eric Metaxas Show

02:29 min | 1 d ago

John Zmirak and Eric Discuss Kanye West

"Lot of people tune into this program because we want to help them process what's going on. So we don't have to talk about it right away. But I want to make it very clear. Nick Fuentes, bad. This is something this is an example of sloppiness and bad staffing in the Trump organization. Recently, Donald Trump had dinner with Kanye West. That's a mistake right there, okay? Kanye West, when he was preaching the gospel of leading powerful Christian services, there was hope that this man had had a profound conversion and might have a powerful impact on the culture. But you always be careful with zealous new converts. You don't let them take over. That's what happened among conservatives. We let the neoconservatives, a lot of them ex communists, they came in. They were super smart. They were super articulate. We let them come into the movement. They took over and put America at war in the Middle East for 30 years. You don't let it's nice at the town poker gets religion. But you let her be in the back for a while, I'd really assimilate. You don't let her start preaching sermons right up top and take over the church's budget. Letting Kanye West be a major figure among conservatives and Christians was always dangerous because the guys kind of like Elvis Presley kind of like Michael Jackson, a super rich super famous guy surrounded by yes men. Anybody who speaks realistically tries to whisper truth in his ear, he will send them away. He has no restraining influences. So he's going to do and say, crazy stuff. Like apparently Kanye is now endorsing the black Hebrew, Israelites. These are the people you see in Times Square with giant signs saying that Obama was literally the Antichrist and that blacks are the real Jews and that John, where did you, this is such bad news. And I feel bad. Listen, I love Kanye, he's a sweet soul, but he is clearly, he's got to choose and he does not just as you said, doesn't seem to have people around him to help him to let him know like don't get near that. And by the way, don't say anything infinitely stupid like the Jews or anything. I mean, it's just so sick when people say stuff like that. It's astonishing to me.

Kanye West Nick Fuentes Trump Organization Donald Trump Middle East Kanye Elvis Presley Michael Jackson America Times Square Barack Obama John
Embiid returns from injury, powers 76ers past Hawks 104-101

AP News Radio

00:32 sec | 1 d ago

Embiid returns from injury, powers 76ers past Hawks 104-101

"Well then basically the final 1376 is points in the fourth quarter to help Philadelphia for a one O four one O one win and basic consecutive baskets to give the sixers a one point lead with 18 seconds to play. It then had three straight free throws that sealed the victory. I just wanted to come in and fit in and, you know, whenever I was needed, that's when I felt like I needed to turn it off. And they'd finished with a game high 30 points to buy as Harris at a 24 Trae Young and Deandre hunter had 18 for Atlanta. Michael luongo, Philadelphia.

Sixers Philadelphia Trae Young Deandre Hunter Harris Michael Luongo Atlanta
Mark Levin: Glad J. Michael Luttig Did Not Serve on SCOTUS

Mark Levin

01:29 min | 2 d ago

Mark Levin: Glad J. Michael Luttig Did Not Serve on SCOTUS

"J Michael ludik used to be a friend of mine I've been talking to him in a long time I have no interest in talking to him now quite frankly At first met him when I was 20 Going to law school And I was interning for the administrative assistant To the chief justice of the United States back then Warren Berger He had had the same position at one point later on I believe he went to the University of Virginia law school he clerked for chief justice burger not once but twice And there were very very close Each somebody who I supported way back when To go on the U.S. Supreme Court And all I can say is I'm glad he didn't I'm glad he didn't Because in the end he left the circuit court he went to work for Boeing as general counsel for some period of time And now he's busy writing things And it's too bad when you allow your politics in my humble opinion To affect your straightforward understanding and reading of the constitution

Michael Ludik Warren Berger University Of Virginia Law Sch United States U.S. Supreme Court Boeing
Josh Jacobs' dramatic 86-yard OT run caps wild win for the Raiders over the Seahawks

AP News Radio

00:33 sec | 2 d ago

Josh Jacobs' dramatic 86-yard OT run caps wild win for the Raiders over the Seahawks

"A touchdown password Green Bay before leaving the game with a rib injury in the third quarter. Michael Luang go Philadelphia. In Seattle, a breakout game for a raiders running back with an overtime exclamation point. Jim Bernard was there. Josh Jacobs rushed for a franchise record 229 yards and two touchdowns including an 86 yard run for the wind scoring overtime as the Las Vegas Raiders beat the Seattle Seahawks 40 to 34. Jacobs also had 74 receiving yards to give him 303 yards from scrimmage for the game. Coach Josh McDaniels says Jacobs does what it takes to win. I think toughness,

Michael Luang Jim Bernard Josh Jacobs Green Bay Las Vegas Raiders Raiders Philadelphia Seattle Seattle Seahawks Jacobs Josh Mcdaniels
Hurts, Eagles run past Packers 40-33; Rodgers hurt

AP News Radio

00:34 sec | 2 d ago

Hurts, Eagles run past Packers 40-33; Rodgers hurt

"Quarterback Jalen hurts ran in through for a goodbye in 300 Chan yards and eagles 40, 33 win over the packers. Hertz ran for 157 yards and threw for 150 feet with a pair of touchdown passes. So a ton of different scenarios in ways that this thing can go as an offense and I think that has helped us a lot, being able to be diverse Aaron Rodgers had a touchdown password Green Bay before leaving the game with a rib injury in the third quarter mile Sanders and a pair of touchdown runs for the birds who improved their record at ten and one. Michael Luang go Philadelphia

Jalen Chan Hertz Packers Eagles Aaron Rodgers Green Bay Sanders Michael Luang Philadelphia
A Recipe for a Hollywood Fight

AJ Benza: Fame is a Bitch

02:19 min | 5 d ago

A Recipe for a Hollywood Fight

"Michael viner was the owner of dove publishing. He had a number of decent books that came out in the 90s, the most famous one was you'll never make love in this town again. And when I was dating Jermaine Jackson's ex-wife, Margaret Maldonado. She was working for him at the time, but for Michael viner. And one day she sneaked me in early copy of this salacious book, and no one had seen it yet, Margaret got the proofs and begged me not to show or tell anyone about it. I said, no, no, I won't. I'm not going to write about it. I just want to read it myself, okay? So I go back to the hotel or wherever I was and start reading this book and the proofs and maybe two years ago, I read a couple of the more filthy chapters on this show. The book contains a bunch of stories written by three prostitutes and one actress about this sexual encounters with a bunch of different Hollywood celebrities. There was a Robin and Liza grier, Linda Hammond, and Alexandra daddy. And inside are all these lurid tales of what these girls discovered while having sex with the likes of Nicholson Warren Beatty, Don Henley, Bruce Willis, Robert Evans, John Claude Van Damme, Mickey Rourke, on and on. And a very, very detailed stories. Whether they're all true or not, I don't know. It's just the horrors point of view. So my jaw was on the floor when I started reading this. A couple of days later, I'm at Evans house for one of his great get togethers. Robert Shapiro, Geraldo Rivera, Jacqueline bessette, Beverly Johnson, Neil sedaka, a lot of luminaries in addition to the dynamic to all of Jack Nicholson and Warren Beatty, who are always at Evans house back in the 90s, and now I have all this information inside me bursting out and I don't know that Jack Warren and bob know about this. And then my eyes couldn't believe what I was seeing. The publisher Michael Weiner walks into the party. And he lived a few doors down from heaven, so it kind of made sense, but I know all this information from the book he published and I grabbed Margaret and I go, what the fuck is he doing here? She's like, what's the big deal? I go, he's publishing a book about what a few hookers have to say about a few of the men at this party. But balls on this guy,

Michael Viner Margaret Maldonado Evans House Jermaine Jackson Liza Grier Linda Hammond Alexandra Daddy Nicholson Warren Beatty John Claude Van Damme Margaret Jacqueline Bessette Robert Evans Don Henley Mickey Rourke Bruce Willis Robert Shapiro Robin Beverly Johnson Geraldo Rivera Jack Warren
Bills, Vikings and Cowboys score Thanksgiving wins.

AP News Radio

01:59 min | 5 d ago

Bills, Vikings and Cowboys score Thanksgiving wins.

"AP sports, I'm Mike Reeves, it was a busy Thanksgiving Day in the NFL with three games on the schedule, the bills were in Detroit to meet the Lions, correspondent Denny cap, was there and has this report. Tyler bass boots a 45 yard field goal with two seconds left as the bills hang on to beat the Lions 28 25 on Thanksgiving Day, passes heroics from 8 necessary after he missed an extra point late in the fourth quarter, which allowed Lions kicker Michael batchley to sign the game on a 51 yarder with 23 seconds left. Sometimes you do everything that you write and sometimes you just get unlucky. We got unlucky, but we have a great group of guys that support me and have my back and I was able to reset and focus on the next big. Josh Allen put bounced into position to win the game, orchestrating a 48 yard drive spurred by a 36 yard pass the Stefan Diggs. Bob Stephens was on hand to watch the cowboys host the Giants. The Dallas Cowboys rallied to defeat the New York Giants 28 20 on Thanksgiving, overcoming a 13 7 deficit with 21 unanswered points in the second half. Cowboys coach Mike McCarthy says the cowboys time of possession keyed the win. Excellent division win game we had to have and I love the fire team and really what tried to break their method. And one thing I'm talking about is controlling the ball was a big focus for us today. That Prescott threw for 261 yards and two touchdowns the Dalton Schultz, CD lamb caught 6 for one O 6, while Daniel Jones threw for two 28 in a touchdown for the Giants. In Minnesota Kirk Cousins finds Adam Thielen in the end zone with 9 34 left to give the Vikings a 33 26 win over the Patriots, it was cousins third scoring strike of the game, just a phenomenal catch by him. I thought that the way he's able to catch that football, keep his feet in bounds. It just says a lot about his ability. One of the things he does really well is his body control and he's just overall athleticism and he showed it there. A great play by him. In college football, Mississippi state gets passed almost 24 22 in college troops in top 5 action number one North Carolina and number three Kansas are winners. I'm Mike Reeves, AP sports.

Lions Mike Reeves Denny Cap Tyler Bass Michael Batchley Josh Allen Bills Stefan Diggs Bob Stephens Cowboys AP Detroit NFL Giants Dalton Schultz Mike Mccarthy
Bills beat Lions 28-25 for 2nd win in 5 days at Ford Field

AP News Radio

00:35 sec | 6 d ago

Bills beat Lions 28-25 for 2nd win in 5 days at Ford Field

"Tyler bass boots a 45 yard field goal with two seconds left as the bills hang on to beat the Lions 28 25 on Thanksgiving Day. NASA heroics from 8 necessary after he missed an extra point late in the fourth quarter, which allowed Lions kicker Michael batchley to sign the game on a 51 yarder with 23 seconds left. Sometimes you do everything that you write and sometimes you just get unlucky. We got unlucky, but we have a great group of guys that support me and have my back and I was able to reset and focus on the next kick. Josh Allen put bounce in a position to win the game, orchestrating a 48 yard drive spurred by a 36 yard pass the Stefan Diggs, the bills improved to 8 and three while the Lions dropped the four and 7. Denny cap Detroit

Tyler Bass Michael Batchley Lions Bills Nasa Josh Allen Stefan Diggs Denny Detroit
MicroStrategy once again buys the dip as BTC is back above $20K

Cryptonary

01:30 min | 6 d ago

MicroStrategy once again buys the dip as BTC is back above $20K

"For a.m. Thursday, June 30th, 2022. Micro strategy once again buys the dip as BTC is back above $20,000. Michael saylor, the CEO of micro strategy and American company that provides business intelligence, mobile software, and cloud based services revealed via Twitter posts that his firm had once again bought the dip with 480 BTC at an average price of 20,817 per Bitcoin BTC as the market remains bearish. Microstrategy saves the day micro strategy has purchased another 480 BTC and it seems that the crypto community is divided on the same. Peter Schiff, one of the biggest advocates of gold and a huge critic of Bitcoin commented on sailor's post questioning his purchase. Micro strategy has purchased an additional 480 bitcoins for 10.0 million at an average price of 20,817 per Bitcoin. As of 62,822 micro strategy holds 129,699 bitcoins acquired for 3.98 billion at an average price of 30,664 per Bitcoin. 8 17 Michael sailor sailor June 29th, 2022, increasing your stake by less than .004 seems more like an attempt to influence the market by demonstrating your conviction to other. The post micro strategy once again buys the dip as BTC is back above 20 K appeared first on krypton area.

Michael Saylor Micro Strategy Cloud Based Services Microstrategy Micro Peter Schiff Twitter Michael Sailor Sailor
Eight Global CEO Tweets Crypto Market Cap Acting Below 200-Week MA

Coin Edition

00:44 sec | 6 d ago

Eight Global CEO Tweets Crypto Market Cap Acting Below 200-Week MA

"5 a.m. Thursday, November 24th, 2022. 8 global CEO tweets crypto market cap acting below 200 week MA. 8 global founder tweets crypto market cap below 200 week MA. He added that the total market capitalization for crypto is holding above 2017 ADH, BTC transaction volumes lowest in two years at 116,564.65. Crypto trading, investing, and learning platform, a global founder and CEO, Michael van de poppy tweeted on November 23rd, 2022, that the post 8 global CEO tweets crypto market cap acting below 200 weekend may appeared first on coin edition.

Michael Van De Poppy Crypto
A Blockchain-Powered Decentralized Future

Blockchain Consultants

00:40 sec | 6 d ago

A Blockchain-Powered Decentralized Future

"7 p.m. Wednesday, November 23rd, 2022. A blockchain powered decentralized future. The digital mind of tomorrow decentralized future rethink transform, and thrive in a fast changing and brutal digital world decentralized future topic a blockchain powered decentralized future guest Michael Noel, CEO of blockchain consultants, blockchain weekly host, kryptonite ventures founding member, EC council certified blockchain, professional the conversation covers these points the history of blockchain technology. The post a blockchain powered decentralized future first appeared on blockchain consultants.

Michael Noel Blockchain Consultants Blockchain Weekly Host Kryptonite Ventures Ec Council The Post
Larsa Pippen Is Dating Marcus Jordan—Michael Jordan's Son

AJ Benza: Fame is a Bitch

02:42 min | Last week

Larsa Pippen Is Dating Marcus Jordan—Michael Jordan's Son

"Have you heard about this weird situation? Kind of a thirsty situation too. You know who larsa Pippen is? Lots of pippin attractive women used to be the wife of the former Chicago Bulls NBA star Scottie Pippen. You know, the guy who was Michael Jordan's number two guy. They won 6 titles together. But as the years went on, Scottie Pippen showed like a level of jealousy that maybe he wasn't treated as good as he should have been on those teams. You know what I mean? And a lot of feelings came out when that great Michael Jordan series was on last dance, a lot of stories came out and but either way, make no mistake. Scottie Pippen was a great ballplayer. And no way the Chicago Bulls would have won 6 titles without him. But here's the uncomfortable and weird part of the story, all these years later. So his former wife, larsa Pippen, she's made herself very visible with reality television, you know, she's a socialite and a businesswoman, et cetera. Like a lot of women in this era. Very petite, and she's known to be sexy when she wants to be, et cetera. Well, for the last several months, almost a year. She's been hanging out with Michael Jordan's son, Marcus. He's not, he's not a kid. He's 31, she's 48. The other day, there were photographed up in some seats during the football game, and SoFi Stadium, and at one point, some spectator with his phone on, started giving her the what for, right? He's like, hey, larsa. That's what you're doing? You're with the boy. You would Mike's son, you called mother trucker. You call this a mother trucker homie. It's getting very awkward, considering, you know, there is a strong rumor that she used to babysit Marcus back in the day. And they're kind of taking things in stride, you know, some NBA guys are talking shit about the whole thing. But it's just very strange because Scottie and Michael Jordan have this ongoing beef, which the last dance series really ignited and now could you imagine being Scottie Pippen knowing your ex-wife is getting hammered by Michael Jordan son?

Scottie Pippen Larsa Pippen Michael Jordan Chicago Bulls Pippin NBA Sofi Stadium Marcus Football Mike Scottie
Rare buzzer-beater helps outmanned Nuggets beat Mavs 98-97

AP News Radio

00:33 sec | Last week

Rare buzzer-beater helps outmanned Nuggets beat Mavs 98-97

"The nuggets received some help from video review in a 98 97 win over the Mavericks Vlatko chanchu are hit a buzzer beater from near mid court when the final two seconds of the first half were replayed after the break Luka Dončić thought he had a buzzer beater to put the Mavs ahead by 7 at intermission but replay showed he stepped out of bounds That gave chance to our chance to drain a long tray that made it a one point game at the break Michael Porter junior hit the deciding three pointer with 55 seconds left Bones highland scored a career high 29 points for Denver Josh green had a career high 23 for Dallas I'm Dave ferry

Vlatko Chanchu Nuggets Mavericks Mavs Michael Porter Bones Highland Josh Green Denver Dallas Dave Ferry
Timberwolves hang on, top undermanned 76ers 112-109

AP News Radio

00:31 sec | Last week

Timberwolves hang on, top undermanned 76ers 112-109

"The Timberwolves got the early jump and held off a late 76ers rally for a one 12 one O 9 win Minnesota jumped on early 11 point lead in the first quarter then used a 16 two second quarter run to push that lead to 20 after Philadelphia put the within one late in the fourth quarter Anthony Edwards sealed the win with a pair of free throws Edwards finished with 25 points for the simple wolves who even their records are 8 and 8 Joel embiid had a game high 32 for the sixers Michael luongo Philadelphia

Timberwolves Minnesota Anthony Edwards Philadelphia Joel Embiid Edwards Wolves Michael Luongo Sixers
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

05:58 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"What you've been your experience in talking to your diaz about this. I'm doing the symptoms right now. A can't stop my head from shaping and all that soak picture of what can be at times on now. I'm ready to go. But i'm moving around quite a bit here so i was kind of laughing when you were describing symptoms but You know i do a lot of boxing. I dislike to do that for the stay in shape and help the parkinson's and you might trainers in august. They're so close watching every you know we're working hard. They tell me that they can tell them on there too. I have three different trainers and each one of them told me time. I know ease up. I can see you're not moving much four minutes later on punchers dana we move and we go right through the workout so that people who get to know you can see it pretty a pretty easily if you're if you're have these kind of symptoms but like my wife she'll go. Is it time for some medication. Do you experience that too rick. Yay linda linda. My wife knows more than i do. At this point you know the caregivers. Unbelievable and yeah. It's you know when i am off. I usually get estonia which is much worse than this. When you're when you're such women backwards against stop you know stuff like that. What about you sonia. yeah. I mean Are my daughter's too yeah. My daughter's noticed now. So they see me moving slowly depending on what kind would amend. They'll ask if they can run and grab my madge which is very old twelve year. Old son does that twelve as well. He'll go dad. You need your reds makes them feel like they're part of this. It's great to give them a job. Exactly it's empowering them to be able to feel like they can do something to help you What what are your conversations with your spouses light when you're talking about on an off and you have. You created like one of the things that i've created as i know i'm exhausted at the end of the day whether i'm off after five just because working full-time and everything else and so by five o'clock i cannot answer open ended questions so we have a role in the house that after five o'clock it's yes no questions they'll give me a. Don't ask me what for dinner..

parkinson's diaz linda linda boxing dana estonia rick sonia
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

02:30 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"Then Yeah it it's it is disconcerting because it feels like you're regressing Fast forward like if it was a tape player in your gut rewind fast forward and regular play where on your bod gas where you can go from regular speed time to. It's like feels like the with parkinson's has just hit times to ashley. Is that Is that how you seen patients defined it. Yes so many of my patients have told me that it feels like they're Walking through molasses if they get stuck sometimes there can even be a trepidation earnings. Zaidi where they the off. Times come unpredictably like it was described before where they could be walking across the street and suddenly there's an off and that can really become very troublesome ploblematic with trying to go about your daily life So many of my patients have described as bat and then some of my patients who may not have as much a motor symptoms can described their off as a an increase of anxiety. This rush that you know. I'm looking for my next medication. I feel like there's something going on inside of me. But i have a lot of difficulty describing what that is so it could be motor an non motor symptoms that people experienced in. It's definitely up to the provider to try to Tease those out. Every time they meet with with one of the persons had parkinson's disease to back that up there was published a paper in movement disorders in two thousand twenty examining how people with parkinson's experience off time in the paper use data from the michael j. fox foundation medical study fox insight down part of And you should be to fox insight. Look it up. Study found that the three most common of the off symptoms raising gate apathy and memory problems. So as you said. Ashley can present itself as a mix of motor non motor symptoms. Yes the study also found that some patients had trouble even explaining their symptoms and nearly half described bothersome symptoms. That would be missed by standard assessment conducted. My doctors how. How can a person with parkinson's or or even their their partner talk to their doctors about this topic In a way that they would understand it. I'll start with ashley. And i'm going to go sonya. Maybe rick has some thoughts on that to. It's an excellent question. And like i said before..

Zaidi parkinson's parkinson ashley fox foundation fox insight michael j fox Ashley sonya rick
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

02:23 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"Get <Speech_Male> <SpeakerChange> <Silence> <Speech_Female> <Advertisement> <Speech_Music_Female> <Speech_Music_Male> your picture <Speech_Male> gallery and <Speech_Male> tell us about yourself <Speech_Male> and <Speech_Male> inviting five other <Speech_Male> people to be pedia <Speech_Male> vendors to <Speech_Male> But <Speech_Male> we when you sign up <Speech_Male> really. You're just <Speech_Male> saying yeah <Speech_Male> i wanna i wanna be <Speech_Male> part of that loud uncomfortable <Speech_Male> voice <Speech_Male> but and you may not have <Speech_Male> a whole lot of <Speech_Male> time on your hands to <Speech_Male> to donate <Speech_Male> your time. It's <Speech_Male> okay you'll have <Speech_Male> a superpower that <Speech_Male> we want to take advantage of. <Speech_Male> And maybe that's <Speech_Male> you know <Speech_Male> donating <Speech_Male> something that you know how <Speech_Male> to do really <SpeakerChange> well <Speech_Male> do you. Maybe you're <Speech_Male> a designer <Speech_Male> or maybe. You're <Speech_Male> you <Speech_Male> know how to make tapes <Speech_Male> that we could <Speech_Male> use a good pd <Speech_Male> avenger cheap <Speech_Male> <SpeakerChange> <Silence> <Speech_Male> <Speech_Male> artist or <Speech_Male> writer <Speech_Male> all kinds of <Silence> superpowers <SpeakerChange> that we made <Speech_Female> <Speech_Female> absolutely. I think <Speech_Female> it's only by working together. <Speech_Female> But we're going to get <Speech_Female> this done so <Speech_Male> please <SpeakerChange> do sign <Speech_Male> up. We need you <Speech_Male> and we will never <Speech_Male> ask you to raise money <Speech_Male> for us. <Speech_Male> We <Speech_Male> do <Speech_Male> not compete with the other <Speech_Male> organizations with <Speech_Male> fundraising. They do it <Speech_Male> better than we do. It and they <Speech_Male> know how to spend that money <Speech_Male> more efficiently <Speech_Male> than we do <Speech_Male> and <Speech_Male> so what we do. <Speech_Male> Is we raised voice. <Speech_Male> Is we <Speech_Male> raise urgency <Speech_Male> and <Speech_Male> we raise awareness. <Speech_Male> <Speech_Male> And if you'd like to be <Speech_Male> a part of that we would love <Speech_Male> to have <SpeakerChange> you on <Speech_Male> our team. <Speech_Male> That is <Speech_Male> <Speech_Male> the part <Speech_Male> two of the <Speech_Male> vendors takeover <Speech_Male> of <Speech_Male> the michael j. fox <Speech_Male> foundation <Speech_Male> parkinson's podcast. <Speech_Male> And <Speech_Male> i think <Speech_Male> the world headquarters <Speech_Male> of the parkinson's <Speech_Male> podcasts. <Speech_Male> for him. j. f. <Speech_Male> f. <Speech_Male> is not too dirty <Speech_Male> after we've been here <Speech_Male> ourselves <Speech_Male> pretty well <Speech_Male> You <Speech_Male> tim scraped <Speech_Male> as initials into the <Speech_Male> <Advertisement> wall. Which has <SpeakerChange> <Speech_Male> <Speech_Music_Female> <Speech_Music_Male> expanded. <Speech_Music_Male> <Speech_Male> <Speech_Male> We do. Appreciate <Speech_Male> the mj f <Speech_Male> f. You know. i wanted <Speech_Male> to leave them. A little token <Speech_Male> of our appreciation. <Speech_Male> <Speech_Male> We were here are <Speech_Male> sincere. Thanks for <Speech_Male> them allowing <Speech_Male> to come in and take over <Speech_Male> today <Speech_Male> as a pdf <Speech_Male> vendors <Speech_Male> introducing <Speech_Male> all these other organizations <Speech_Male> to the world. So <Silence> thank you <SpeakerChange> very much <Speech_Male> <Speech_Male> needed <Speech_Male> in indian <Speech_Male> parkinson's and on <Speech_Male> behalf of <Speech_Male> a all the people <Speech_Male> at the michael j. fox <Speech_Male> foundation. Who were <Speech_Male> here until parkinson's <Speech_Male> isn't <Speech_Male> but thank you for <Speech_Male> listening <Speech_Male> to the pd avengers. <Speech_Male> Thank you for listening <Speech_Male> and spreading <Speech_Male> the word and <Speech_Male> helping us <Speech_Male> in <SpeakerChange> parkinson's <Speech_Male> <Silence> for <Silence> ever <Speech_Male> <Speech_Male> thank you <Speech_Male> and <SpeakerChange> we'll talk <Speech_Music_Male>

michael j parkinson fox Male> foundation
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

03:40 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"Up right now. Let's get to know some of these parkinson's organizations who are partners of the pedia vendors each organization represents one or more of our three pillars research. Well this and advocacy recovered the research pillar on our last episode episode ryan and basically we believed the patients are integral in every aspect research in the search for treatments and ending this disease. They wanna talk about wellness. We believe every person parkinson should have equitable access to information. Medication and therapies in regards to advocacy. We believe we must. Bill allowed uncomfortable. Ever present voice demanding change in how the disease seen and treated we're going to get the advocacy later in today's podcast. But we're gonna start with tim and wellness. Thank you larry. And i wanna welcome genital. The program today. She the director of programs in reach davis city foundation. Yeah thanks for having me on so honored while it is my pleasure you know long. Been a fan of davis phinney foundation. Love you guys over there davis and connie polly all of you do such a great job and i. It's our pleasure to introduce you to maybe people who don't know you and if anybody doesn't know the davis foundation they need to integrate work and we're so very grateful to michael j. fox foundation giving assist platform to take over the podcast today to do that. So tell us if you will That davis foundation was founded back in two thousand four For those who don't know who is davis and what was the intent of establishing the foundation. So anyone who doesn't know davis hopefully should get to know davis is really wonderful person So davis phinney was. He actually still holds the title today as the winningest american cyclist most awarded. So i think he has three hundred twenty eight cycling winds in his someone One of the only team members of the foundation. Who's not much of a cyclist particularly impressive to me. And he still writes his bike rides. E bag religiously but. He was diagnosed at the age of forty. After you know like so many people stories years and years of knowing something wasn't right finally got that parkinson's diagnosis. Oh it's been living with parkinson's for over twenty years and really you know. He had a a very you know really public presence. You know as a cyclist. He started to work as a in commentary and really can it was known as a personality especially here in colorado and in boulder and so many people urged him early after his diagnosis to start to start. Something started organization a foundation of something. Just bring more attention to parkinson's and he was actually pretty reticent to do that. That wasn't really one of his schools at that time in his life but after kind of enough urging by the right people he decided it was the right choice to to try to help You know himself and others living with parkinson's and started the foundation. Which really when. It first started was primarily focused on on fundraising. It didn't look like it does today with a focus on education and inspiration in all of that but as davis was living with parkinson's himself and connie you know learning how to be an amazing care partner so much of their own experience. They realized other people needed access to they knew they had access to information. Also davis. This was twenty years ago so this is people were still prescribing. Rest for people living with parkinson's and certainly davis that was not gonna ever be his mo so he didn't take that prescription in new. He felt better because of it..

davis foundation davis parkinson's davis city foundation davis phinney foundation connie polly fox foundation parkinson davis phinney parkinson's diagnosis michael j ryan larry tim Bill boulder colorado connie
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

02:46 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"Hello my friends as you mentioned signing mathur. I'm co founder. The peanut vendors as well as co chair of the michael j. fox patient council hilarious sonia senior. I am co founder and secretary and treasurer the peanut vendors on the executive director return parkinson's and author of the book perseverance and the winner of season one of raising mentioned that one for sure. But the what we working on together as the pdf vendors. The pandur is is really a nonprofit lead organization working with the michael j. fox foundation and over fifty parkinson's organizations worldwide to build a global alliance to end parkinson's disease. We also have more than thirty seven hundred individuals from seventy countries worldwide. Who signed up to be pedia vendors and and we talk about the bedia vendors and the people are like. I've heard this over and over to there's so many organizations. How do we know what they are. Which is why we're here today because we want to introduce you to some of the other organizations mean. You're absolutely right larry. We can never have enough. People helping people parkinson's live a better life and searched for a way to end this disease. I mean if you think better parkinson's was identified more than two hundred years ago and since then we've done a lot of humanity is put men on the moon. We've eradicated polio. We've changed hiv from a death sentence to a chronic illness. We've mac human genome and discovered thousands of galaxies among the stars and yet the gold standard treatment for parkinson's disease is a fifty year old medication. It's it's older than we are. Speak speaker yourself larry. That's right so yeah we're tired of waiting. We need to be allowed uncomfortable. Ever present voice of any change in how the disease is traded. Pb vendors was inspired by a great book called ending parkinson's disease. If you haven't read yet you should get it. It's awesome it's authors. The the rockstars of parkinson's doctors were dorsey. Michael oaken baas blow and todd share. What we do is different than every other organization we we think global act local. It's we aligned ourselves with organizations that are ready willing and able to collaborate with other pd organizations around the world in. Collaboration is why we're here today. Michael j. fox condition has been very generous allowing Larry timman i to introduce you to some of our partner organizations across north america in europe. You don't have to have parkinson's to want to help. end it. Family members medical professionals serapis friends. We need everyone to join us at pedia vendors dot com dd of anders dot com..

parkinson michael j fox patient council fox foundation mathur sonia larry Michael oaken polio dorsey Larry timman todd Michael j fox serapis north america europe
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

08:07 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"That gives me great great hope lacquer ties into my last question is this is a pity vendors. Tako takeover the foundations. Podcast why did foundation agree to partner with pd inventors. Well i think there's you know if you think about what it really takes to succeeding you. It's it's folly to magin that one organization is is going to be you know is is the one and only organization that needs to exist to make this happen. I mean just by step whole back and think of one subset of needs which is better treatments there. There are three big entities just in that part of the space. There's government funding in early stages in academia there's fox funding which is highly strategic that is bridging on a basic science. And teeing it up for in the translational space to get it into the clinic at We often our funding in phase. One a little bit face to even and then there's pharma and that's that's before that's just to get a drug approved. Then you have other entities that need to get it to to patients and make it give accessible and affordability so you you. It's just folly to imagine that any success is gonna come by a single entity. And when i think of the role that a lot of Patient organisations way it. It's really Critical for us to reach as far as we can and so working with smart people who are motivated who seek who want to be informed and want to figure out which of these things i can do to really make a difference. We need those kinds of partnerships. And so it it. It's a no brainer. So debbie We gotta get michael. Decide up a pdf venture. So how are you gonna help us do that. Well you know i. He's he's what everybody in spirit on these things and it's just you know it's really. It's a stunning thing for me. To have seen over the years. How many tugs come on his shirt and you know and to remind folks. He's had parkinson's now for thirty years. And so you know. I said before. Everybody can't do everything. And i think it's fair to say he's tunnel bot and let him pick what he's gonna do but please no he's with spirit and we're here and and so I think If you want a role model for an adventure is the original. We're standing on his shoulders. Appreciate all that. He's done to bring us out of the shadows. I have often said that. That without the michael j. fox foundation we would still be lost somewhere back in eighteen. Seventy and we are so very grateful to all that you have done and what michael has done to literally bring us out of the dark and let people know that we exist out. There's more that we need to thank you. And i know that he he. He takes very seriously that the appreciation of that and he took it very seriously stepping into the role. He thought a lot about He he he wanted to do something but he thought a lot about. What's what's the right thing to do. Where could he bring the most value. I think that's an important journey for anybody who wants to get a gauge. You know it's hard not to be tempted to want to do everything and the at the fox. Why should we really. We work hard on that too. I think part of our strengthened successes come from staying very you know very everything. We do has a connection to the goal of speeding drug development and better achievements and sometimes it may not be so obvious. But i assure you everything we're doing is in service of that and takes every ounce of energy we have and i think individuals there's a. There's a similar herald l. in that kind of process in. Obviously i'm looking at people on on screen as we record this and i see people who have done so many things you know so people can juggle and make their choices. But those prioritization are critical so that we don't isn't that we're rational and sober about where we can make the biggest impact. And and i. I couldn't be more grateful or being the person who happened to be the one that michael at the time and to help him realize his vision but i do think tim that he feels a great responsibility and felt a real opportunity to be part of the community by taking those steps. Thank you thank you. Debbie michael foundation for your passion commitment and dedication to get this done. We really do appreciate appreciate your time as well tonight. Names goodness it's my pleasure. Thanks debbie this. Awesome out one of the things to keep in mind about research and sonia. Tim you can talk about. This too is up. People with parkinson's need to help out. They need to raise their hands and participate Because it doesn't get done without us it is actually true without us. There cannot be any better treatments courage. Assistant work that way. The research community needs to partner with patient community to make that happen. We continue that were important in research so we need to really encourage one another end to ourselves involved in research wherever whenever we can and we're not just about research about research and advocacy and wellness and many of the organizations around the world touch on two or three of those pillars as well The pedia vendors are inspiring change around the world as it relates to research now dundee university in scotland. One of our new partners decided to dedicate a hundred percent of their research efforts to parkinson's projects in canada. The pacific parkinson's research institute helps fund. Pd research at the university of british columbia next week. We're going to explore six more organizations re under the advocacy banner and three dedicated to wellness. Will you guys ready to that. Absolutely signed me up. I know you. You'll be like don't push ups getting ready. Lord have jimmy choi screaming in your ear. My god come on three more or fifty more. I do wanna also acknowledge. Sharon kirscher twitchy woman for inspiring this these episodes of the podcast because she did this on her on her own for the her support groups where she invited to different organizations into explaining what they're all about and we thought it was such a great idea that we could. We could do it here too. And so we. We want to thank her for that. You can learn more about the twitchy woman and michael j. fox foundation and all these organizations at pd avengers dot com. And while you're there you might as well just sign up to be a pd avenger mighty. How all right. We'll talk to you next week. This is the michael j. fox foundation podcast on behalf of everyone at the foundation and the pd avengers. We we wish you well and we will talk to you again soon. Did you enjoy this. Podcast shirt with a friend or leave a review on i tunes. It helps listeners. Like you find and support our mission. Learn more about the michael j. fox foundation at michael j. fox dot. Org thanks for listening. This is michael j. fox. Thanks for listening to this. Podcast learn more about the michael. J. fox foundation's work and how you can help. Speed cure and michael j. fox dot org.

magin fox foundation parkinson michael j michael debbie academia Debbie michael foundation dundee university pacific parkinson's research i fox jimmy choi sonia Sharon kirscher tim Tim university of british columbia scotland pd avengers
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

07:19 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"And i had the pleasure. Speaking with her cure. Parkinson's Is an organization that was founded back in two thousand and five by four individuals with parkinson's who wanted to really put some energy behind research into a cure and at that particular time the landscape the research landscape was pretty bleak. A number of big pharmaceutical companies had left left parkinson's just as that drugs were coming off patent. It wasn't making sense for them to be active in the space and there've been a number of studies that hadn't Hadn't been successful. And i think we felt that more needed to be done to really focus the effort towards secure sat impact on the type of research that you now fund very much so the research that we fund is is very much focused on trying to slow down the disease to stop it or reverse it But the re-met for our starch committee who evaluate all our research projects Is that the project needs to in the clinic. That means a phase two clinical trial within five years of funding. Because actually what we want to be able to do. Make a difference to people living republicans. Now what sort of research is on the horizon. for care. parkinson's we have all international link clinical trials program and we walk in collaboration with vinyl receptions. To change each year we pull together a group of ideas With very very strong biochemical evidence on these drug ideas that could move into into clinical trials. It is very active and thriving program with now sixteen trials of ict drugs that are happening around the world. A not all of those funded by us. Some of those are funded by our partners. But for me those meetings. The magic is because we have Partner funders in the room with us but particularly michael j. fox an h also join us partisans. Canada parkinson's uk And and that adds a dynamism but most importantly we will have people living with parkinson's at the table. How do you feel the patients fit into this. Whole clinical trial process. It's feick important. The people with parkinson's are embedded in in all projects. Right from the start. They can really help shape the thinking but also in terms of viability and practicality particularly now as we're moving into an era where a hybrid trials being designed which involves more home visits. We've we've got to be really mindful of making the clinical trial experience for people with parkinson's as positive as it can be and make sure that they feel as if they are very much included in the process as part of the clinical study team as participants not as subjects but as participants proactive participants. On that journey. That that's that's a great way of summarizing I i really think that that aligns with what. Pd ventures is all about as well and speaking of media vendors you've been an extremely supportive encouraging and guiding force for us. Thus far for me pd avenge is is such an important movement. This is about raising the profile of parkinson's nationally internationally and locally the high the profile of parkinson's the greater the chance we will attract government interest and with that government investment and with that government investment. It's not just in the curative research agenda. But it's also in the wellness research that is urgently-needed And i think it is also making sure that parkinson's is on the agenda globally with the. Who with the un you know. People have parkinson's in every country round the world and that health inequality is palpable. It's time that we raise the profile of parkinson's it's time we all work together to do that. Each of us of course have have are in areas especially -ality but we will all benefit if parkinson's becomes a health priority. Hell is such a great advocate and leader and supporter. But we're doing it's great if she's actually the catalyst for what we're doing. She's the one that made the initial call saying. What do people think. That book ending bargains disease. Let's get some folks together dog about he asked. I think we do have to thank for that and you can learn more about your apartments in by going to their website. Parkinson's dot or dot uk. Yeah go to that website and then go to our website. Pedia vendors dot com and sign up to be a pedia vendor. While we're often running. Well run walk by box. It doesn't matter larry. Just move your body. We'll deferring move on to wellness tim. Michael j. fox foundation has been a major influential player in all three pillars that the pdf ventures have committed to as you may know the michael j. fox vanishes largest private thunder parkinson's research having raised more than one billion dollars in finding innovative and at times high risk researched. So it's my pleasure to be here today to talk. Deputy brooks co founder and ceo than jeff. Welcome debbie and thank you for allowing us to take over the podcasts and yeah so excited to be with you guys today. The foundations are celebrated twenty years. And as a co-founder what stands out for you as it relates to how fox condition came to be sometimes Michael nice standing on the sidelines at a board meeting or at a staff holiday party and we just look at each other. How did this happen. I like i think about it. And i realized with michael especially how could not happen any. He's been first of all before he was kind of out and and connecting in the community and shared his diagnosis had kind of indirectly kind of volunteer by raising his hand. He's known to be warm and inspirational and optimistic. But as you get to know him you also catch very quickly. How why is he is and you know i. It wasn't a shocker. To me that he would be able to bring such gifts to any undertaking on the one hand. There's a part of me. That's not surprised. Because of michael. I before i will. I can't. I can't stress it enough of this. Was the debbie brooks foundation for parkinson's research. We'd be nowhere so there's just no denying it but at the same time There's a magical mix of what What we ended up building at the fox That patient centric passion and the scientific grounding and the business oriented approach that i think has Has delivered some beyond our expectations than so and yet i have to say look at it i think and we are not done yet and there is much more to be doing and i think that's what keeps us engaged and excited and motivated and even.

parkinson feick Parkinson michael j Pd ventures fox fox foundation uk thunder parkinson Deputy brooks co Canada Michael j un larry tim debbie jeff michael
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

07:51 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"Know the michael j. fox foundation parkinson's podcast is going to be. Okay no podcast will be harmed in the making of this takeover there. You're so dramatic today. But let's answer the actual question. What is the pd evanger. The avengers is a nonprofit patient. Lead organization working with michael j. fox foundation and over fifty other parkinson's organizations worldwide to build a global alliance to end parkinson's. We also have more than thirty seven hundred individuals from seventy countries worldwide. Who signed up to be pd vendors. Stop right there. Ten a couple of people listening rolling their eyes. I can hear the rise like rolling around. Izhak it's another organization. Jeez aren't there enough law organizations already for parkinson's relates about question but the truth is we can never have enough people helping people. Parkinson's live a better life and search for a way to end. the disease. really mean parkinson's was identified more than two hundred years ago and since then humanity is put men on the moon eradicated. Polio changed hiv from a death sentence to chronic illness. This map the human genome and discover thousands of galaxies along the stars and yet the goals danner treatment for parkinson's still fifty year old medication. Atro- sonia and we're tired of waiting. We need to be allowed uncomfortable. Ever waste demanding change in how this disease is seen and treated we need to be doing. More bedia vendors was inspired by the book ending parkinson's disease and its authors. The rockstars parkinson's doctors. Ray dorsey michael okun Bass bloom and todd share of the fox foundation. What what we do is different than other organizations. We take a think. Global act local approach and align ourselves with organizations that are ready willing and able to collaborate with other pd organizations around the world which brings us to why we are here today. Larry michael j. fox foundation has been very generous allowing you to mnay to introduce you to some of our favorite partner organizations across america and europe against this clearly is not a hostile takeover. The podcast definitely not him. We're we're we're all friends here. Okay well i guess that's cool all right so tim. Sonya you're here on behalf of the pd avengers. We add urgency to research wellness and advocacy by uniting people and organizations to the cause of ending parkinson's disease and you can learn more about the work we're doing and registered to be pd vendor yourself at pdf vendors dot com. You don't have to have parkinson's to want to help. Ended family members medical professionals therapists friends. We need everyone to join at pedia vendors dot com now now. Let's get to know. Some of the parkinson's organizations who are partners with the bedia vendors each organization represents one or more of our three pillars research wellness advocacy in research. We believe that patients are integral in every aspect research in search for better treatments and ending this disease. We believe every person with parkinson's should have equitable access to information medication and therapies. And we believe we must build allowed uncomfortable. Ever present voice demanding change in how the disease seen and treated since. We're here at the michael. J. fox foundation podcasts world headquarters we might as well start with research nations. That are research driven that i want to introduce here. Uv do foundation is parkinson's organization in germany. Co-founder doctor your account for. It is competition lawyer for one of the largest firms in the world. Dr kathy mall hand. Also oversees udu. International relations both have been diagnosed with parkinson's and are using research. Help advocate for with this disease. We've asked a narrow which is one of the most Prestigious competition economist term. And they've done a paper lewis now reads innovation centers in the pharmaceutical sector rethinking competition and public policy in study which unfortunately is only theoretically based didn't have the money to fund a research which would have been to have all the relevant data and so so. This is kind of on the agenda for the time when we get another two hundred thousand euro our daughter which would probably be needed for such a paper thinking. It'd be important sort of building the case from an advocacy perspective in terms of raising funds. In kathy do find. That's where you do is concentrating on those sorts of studies that may not otherwise be funded. I think it's a huge strength of the foundation because as you said he has a very strong background in economics and politics and his perspective is a very intellectual one on the best possible sense. I think a lot of us get angry but we can't express our anger too well who just like. Why is there. No other auction vice. At a pure visor buys the best drugs still. Labor doper which was registered to save time. The entity said. let's move they. Did it like eight years later. Those abandon the moon. We're still taking scream. I think you're kaput. Take that anger and take us those questions. Put them into a very Very legal and very heretical framework. That is understandable to those in power. You know we need to look talking to the power companies and saying why is this the case you know what are you. Are you not interested in a cure. Are you more interested in treatments that continue for a longer time and these are all questions that we we need to answer together and we need to put on the agenda. And i think that's i link between our foundation germany and the pd adventures strong as well. Because you know we all need to hide very different areas and we just need cherish message loud and clear and i think the the tax that you are a new do are taking now is a very very interesting very different tack to a lot of the other activities that you see around. You'd do a really cool organization. I love the approach. That they're taking to really use research to prove the importance of advocacy. They're very cool group younger but a very cool group and just a couple of other things you can do is also hosting the twenty. Twenty one parkinson's table tennis world championships. Which is taking place in berlin in early september and they're also engaged with your initiative four point. Oh which is. It's an initiative. Basically a ten point plan lobbying to be in coalition treaty which governs the next four years in germany You've joined forces with other degenerative neurological conditions and you can read more about their work at. Www dot eu dot d. e. pods. Great that's great. You have one more one more organization. Sonia yeah another research Focused oranization for pd is care. Parkinson's based in the uk and they're doing research to growth factor stem cells. Nick liberating with others help. Find fund regenerative Trials that will impact people with parkinson's today rather than twenty years from now and hell matthews is deputy co cure parkinson's..

fox foundation parkinson michael j Izhak Ray dorsey michael okun Bass bloom Larry michael j J. fox foundation Dr kathy mall danner Polio Parkinson sonia Sonya todd germany tim europe
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

02:01 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"This is michael j. fox. Thanks for listening to this. Podcast learn more about the michael j. fox foundation work and how you can help. Speed a cure and michael j. fox dot org navigating parkinson's disease can be challenging. But we're here to help. Welcome to the michael j. fox foundation podcast tune in as we discuss what you should know today about parkinson's research living well with the disease and the foundation's mission to speed a cure free resources like this. Podcast are always available at michael. J. fox dot work. Welcome.

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

04:32 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"Day closer every day We we. It's a robust pipeline. Participate signed this is a Tweeting researchers clinicians and patients and we need your involvement is so exciting. What's out there right now. But we're going to need to work as a tape. We are facing an extremely exciting time in terms of new mechanisms of potential therapies. So hopefully will for sure much closer than twenty years ago Brightest brains in the words cannot cure parkinson's so hopefully it's much closer than what we think. Horns i it depends on how you can find cure a. Somebody told me that they could stop my parking from where it was in. That is correct. I would consider that a cure. And i think many you think that that would be cured to be able to Just stop Regret that you're you're both young and so you probably work when you got into medicine and neurology didn't have to see what how thirty years ago i think. The life of pardons is very different than it is today I met lots of people with parkinson's news in their living. Well and they're working hard living well and being self advocates and Really make take away a lot of the stigma associated with parkinson's disease and Working with it and in continuing to meet with living with Disease and sars has short comment. We have witnessed this with other diseases like multiple sclerosis when in five years. Many therapies modified therapies for the disease appear and the management change completely so there is a law of hope and a lot of science going on so unless keyboard can to reach point together at the time at which a good idea can get into. The clinic is becoming shorter. Insurer of course still t method but it used to be ten or twelve years before something in the lab could could get out into clinical trial that has reduced considerably now both at the regulatory level because of the pace of science we seeing a early. Id's getting out into the clinic within a few years for the first time ever. So i think these are all really promising. Sites must be also signed that we have more people who are willing to participate in research I know that eighty percent of clinical trials Slow down because of poor enrollment and thirty percent get stat. because there's no. there's not a single enroll. they don't have enough going so there's a lot of research is probably worthwhile and sitting shelf waiting for somebody to participate In it and so it's important that we We take on ourselves. Only where we are in pardons disease today because of course were willing to do to do. The research Empty participating in research. I encourage people very Now as important makes you feel good. You really feel like you're you're helping the community large and you are So true facts trial. Fine-tooth mentioned earlier a police to find clinical trials that are related to parkinson's disease and And you can just mike vaccination website to find both charter and boxing site in other two good ways to help Advance the care that the care that we're getting right now so it will..

parkinson's multiple sclerosis Disease boxing
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

04:25 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"Get started tab in take action on your screen. Studies also recruiting people diagnosed with parkinson's in the last two years who are not take medications yet can learn about the ppi clinton delinked in the resource list in help. Spread the word about the ppi to the rank to share. Is michael j. facts. That reflects ppm i. That's michael defects dot org reg ppm on so mark i'm going to have you kicked this segment segment often hit because of your recent participation in the ppm i helping Not only me. But the community abroad as a yearbook mirror One of the things that is so frustrating. But we can't feel like you can't do anything parter on making z's co away But there is in a way Realized that we're in it for a while and that is participating in clinical trials. And i was fortunate that when timers rank for us and i was available but the ppm. I just opened And i was looking actress. People colty which they are again does so. I signed up. And it's been a very helpful to me too well that i'm benefiting the parkinson's community and cooper's point Only one native binding year from this. And it's the been amazing.

parkinson's michael j clinton michael parkinson cooper
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

04:28 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"That have been tried to decrease office On their antibodies. That are being tried to. Let's say so got alpha's nuclear and reduces levels and then there are companies that are looking at downstream what happens after alpha's nikolay in clumps up in in neurons while the downstream effects of that and using either molecules of genetic therapy's to reverse that savita different ways of thinking about alpha's nucleus. Genetics was the first bucket officer nucleus. Erected it's the second bucket. And then i'm going to only talk about Other types of therapies that look at the reaction of the brain the metabolic state if the brain and there are a number of different types of medications directed at metabolic state. Insulin related signaling for example. That are that are being advanced trial. We're learning a lot more about the nation and which is response in the brain and the microbiome for example so this is a very active area of research. Could we change some of to alter the disease course in the bryant so these this is not an exhaustive list. But this is a way for you to think about classifying them and finally we come to you. Know to stem cell transplantation Two different ways. People think of stem cells so for example in my lab by generate human stem cells from my patients in order to develop an understanding of the patient's disease and develop drugs and therapies in the dish. What i make the stencils or even many. Bryant's now from asians but other advances relate to transplanting stem cells. Back in the brain. And i think this is a inactive. A lot of you will have active questions about this because we know that different companies now academic around. The world are advancing. These types of stem cell therapies. I'm happy to answer questions in detail about them. They are all a little different. Uh some trials seek to make a off the shelf stencil Transplanted into the patient of the smallest scale efforts. I actually at using a skin. Biopsy for example can make a patient's on stem cells from themselves. These are the kinds of techniques. I used in my lab all the time and then make dopamine neurons and transplant those back so these are cold. Alginate either off the shelf or tala from oneself stem cell therapies and so these are the different types of approaches. That are out there. And whether or not stem cell therapies a disease modifying is still a very open question. In general the field probably considers them as a way to replace soga main in physiologic away. A maybe a little more naturally using deep brain stimulation to also circuits but just like deep brain stimulation not obviously expected to change the course of the disease. That's a complex question. But generally we put stem cells in the symptomatic therapy group and not disease modifying but really time will tell. We have a lot to learn about those kinds of therapies. Happy dance or any more detailed questions boyd. Sounds like the pipeline. The research partnership is pretty robust In the interest of time. I'm going to direct you. In terms of db s in the slide there to a recent webinar and vaccination guide the details. Liz research indeed square one more minor point on devious could be important for people to the devious really a therapy on dover me they may have side effects from mean but devious will not is not consider our patients really on good responders to doug me. That's one point. I just wanna make thanks so this discussion about research is a great segue for me to talk a bit about foundations landmark steady ppm in its new recruiting efforts parkinson's progression margaret initiative. Also known as. Pm is the study that could change everything about harksen's is diagnosed manage in treated right now instead. He needs parents brothers and sisters. Adult children would parkinson's take shorts. Or you can even get started right now by clicking..

savita soga bryant Bryant boyd Liz parkinson's progression doug harksen parkinson's
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

05:09 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"Thinks that albania His anyway may limit your activities mainly limit your exercise. Many patients say i would love to exercise. I have pain so narran. That parkinson's disease can heritage and talk to your doctor because we may have strategies in terms of adjusting medications. Adding new medications managed dealers. That may help you gain that Reduce reduce the paint. So you can feel better and you can exercise more and get more engaged with your exercise. I think all of those things that you are so important. I feel that as a parking advocate. I tried to talk to patients about self advocacy that they need. Own disease patrols. We're also talking about a group of people who are sixty seventy eighty. It's hard to make an old dog. Learn a new trick. We can say eat healthy and then or exercise but trying to get that to happen. is difficult but i do want to send a message that these things do make a difference and they in your quality of light and itchy. You're sitting at home and you're not moving. We're going to find that you have more pain more More more troubles. I'm some of. This is all nash though by something called accuracy. And that's a hard one. I mean it's hard to know naked causing it whether it's hard partisan whether there's another reason for it but apathy is the big reason don't do fell through with with some of these Suggestions redo greasy anna Dis one of in those that challenges has the most. Because we know how it happens. It can or not have any can happen in any point during the course of disease and we don't have a very good approach to it. We don't have a. I would say my just into my patients when they i not is are they not that they are feeling less engaged. We think knocking join things that usual. The don't want don't feel like going out. Don't feel like seeing familiar friends. Who's tried to find the support of someone like mark. I care partner like a friend like arkansas. His body someone that can tell you. I know that you don't feel like going out but we're going to do it anyway. And after that you're gonna feel much better and everybody. Most of the people confirmed that after they asked the barrier even if they feel that they don't want to do something they feel better after and they said yeah. You know i i enjoy these so much. Any really may feel much better among disco one aspect of that that is that they are just so many great group programs. That are out there. Increasing all the time at the level. And i found that my patients in general really low fat. You know when they when they're part of the program and that that that collective energy is really core right in a lot of people are worried about going to a group because they're worried that they're gonna see something more advanced than themselves. But it's not really. It doesn't really work that way. Most people look well who are out and about and they feel well. And i think it's very encouraging to see people who have been living with its cease for many many years The comedy impact cana medication adjustment in the management people's.

narran parkinson's disease anna Dis albania nash arkansas mark
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

03:09 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"This is michael j. fox. Thanks for listening to this. Podcast learn more about the michael. J. fox foundation's work and how you can help. Speed a cure and michael j. fox dot org welcome to a recap of our latest thursday webinar hear directly from expert panelists as they discuss parkinson's research and answer your questions about living with the disease. Join us live next time by registering for an upcoming webinar at michael j. fox dot org. Everyone thanks for joining us. I'm dr karen jaffe. A member of the mexica creation patient council and i will be your moderator for today's webinar. I'm proud co-founder of emotion. Which is an amazing entry disease in their families in cleveland. I was diagnosed with parkinson's disease fourteen years ago. In two thousand seven today we are going to discuss some of the physical emotional and social changes. That may that. We may notice with parkinson's disease for some time. Cover some tips for managing these changes and share with you some opportunities that you could take in your during this. Webinar is brought to you would support from acadian. Are trump Flooded support program possible. You're going do not influence. Women are content perspective or panelists selection that. We've got a lot to discuss or get started. Let me introduce our panelists metric veronica. Bruno.

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

06:42 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"Oh talking about who should consider getting db s a deep brain stimulation surgical procedure for parkinson's and we'll cover how the procedure works. What someone may expect after the surgery and the latest advancements on this research would through a lot of cool things that are happening in the world. We have a lot to discuss. So let's get started later. Due to our panel today dr kelvin. Chow is the clinical professor of urology at the university of michigan medical school that he is also the site investigator of the michael j. fox foundation landmark studies parkinson's progression markers initiative. Better known as p m i at the university of michigan. He is a researcher and has written a book on db s. Welcome to today's webinar. Tie thanks for having me. Jim nez chief people officer and general counsel at the michael j. fox foundation. He was diagnosed with parkinson's disease in two thousand and had dvd surgery in early. Two thousand eighteen his spouse donald moss and animal rights. Advocate is also here with us today. Welcome thanks and we have dr julie. Hemans shaheed the medical director of the movement disorders neuro modulation and brain circuit therapeutics at the icahn school of medicine. The mount sinai new york. She leads the registry for the events with db s parkinson's disease or our d. dash. Pd talk about more more a little bit later. Let's get started with the questions. What is deep brain stimulation. Doctor she said concert with a doctor pickle. Dr absolutely thanks for having me on this I think deep brain stimulation is a very exciting therapy. It's actually been around for a long time for treating parkinson's disease but what it is is a surgical treatment that is actually the most common surgical treatment used these days to manage parkinson's symptoms. It's like a pacemaker. For the brain. So if you think about a pacemaker. In the heart the wires are in the heart of regulate the the heart circuits But here we have a deep brain stimulator delivers a small electrical current into those deep brain structures that are controlling movements and by doing that. It can really kind of block signals that are associated with some of the symptoms of parkinson's disease tremor and stiffness and certain walking imbalanced problems and when we kind of get that stimulation just right for an individual patient we can see all kinds of improvements in holly just the primary parkinson's symptoms but also some of the treatment complications such as the just caniggia's and the fluctuations and maybe even the tremor that wasn't responding well to medications voter shoe took them specifically does does not help. Yes i think. The best way to think about deep brain stimulation is that it. Actually in most cases helps the symptoms. That are helped by leonova or the medications that you would take and so when people have parkinson's disease and go on for a long longer period of time and are treated with liba they might have what we call on and off states where you take the medication and after about a half an hour medication kicks in and then many of your symptoms improve like the tremor the stiffness lowness blocking problems etc on. Then you're considered a non-state and then maybe before your next dose medication. Wears off. In the tremor stiffness lowness all those types of symptoms. Come back yet. Well a deep brain stimulation basically makes you feel like you're on your on state Throughout the entire day so symptoms that respond to liba are the symptoms that are responding to deep brain stimulation if it doesn't respond to leave bud than in. Typically it doesn't it will not respond to stimulation either. The one exception to that rule is tremor at there are many patients who may have a tremor in which you take high doses of these get without a but it doesn't respond a bendy print stimulation will help. But that's the way about how how help you. Yes so if you have extreme differences between neurons offs and it's impacted by but then you probably are good candidates exactly great now Who should consider db s and win is a good time to get db s. Let's bring in our other guest to jimmy donny. What what may jim good candidate for db s well I would say you know i I had symptoms at responded to methadone. First and second tremor and stiffness and i gay in speed of movement. I say brady can you for short too. And then you know the one made e change or get the surgery wise. I was taking a ton of pills. Day and i was dependent on that wherever i went. I carried my parkinson's medication with me. If i was on a trip or something for work i would always. Have you know medicine with me. All the time and i just wanted to break the cycle of continued dependence on medication and my doctor ridden on my symptomology was Maybe a good candidate so we went ahead with. Also you were the right for. That's who let's talk about that a little bit more. dr should head a sheriff's some more information about the viable candidates. Is there an age limit. Yeah that's a common question that we get. I think that You know generally speaking. They're not as specific as lament forgetting deep brain stimulation with that. The main things that we're looking for our weather patients have had you know as described Were describing the the fluctuations that are up In the refractory tremor But we do know that as people get older they can have other medical conditions and potentially other sort of risk factors that might affect their sort of response to the surgery itself into there might be a different surgical as risks associated with patients who are older and so we do want to make sure that those are all investigated appropriately but there really isn't a strength at age cutoff or one of the symptoms that his bothersome for a lot of people especially with wild pd who are still the work field is is sort of the the. The decline of the executive functioning is.

Jim nez today jimmy donny kelvin two thousand university of michigan medical Two thousand parkinson michael j. fox foundation new york icahn school of medicine fox second First one exception Chow one university of michigan Hemans shaheed about a half an hour
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

04:33 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"That safe opportunity in. Chris mentioned you. Don't give your phone number. You don't give your email it as a safe place to to start a conversation but then if you wanna take it outside of the platform by all means were. We're hopeful that people do a serious question for you. Steph is the woman who's joining every facebook group about parkinson's there who who posts about how she was cured by herbal remedies. How do you keep those people out rate question. I have not seen such a post yet. But as part of that code of conduct that i mentioned earlier we have the right to remove any content or people from the network that are not adhering to that code on that are promoting that they have the magic cure or that they want to try to sell you a product we are in the network every day monitoring we as of capturing key words or phrases that are popping up. And we're definitely taking that seriously. We do not to turn the platform into everybody trying to sell this or or that so Yeah great great question but it is very very important us off again. I think that that's what i found. Is that. It gave me a confidence that i connect to somebody. I'm not gonna just dump. Linda somebody who's gonna try and sell me herbal product. Find that that. I just kind of leave the connection and go while they haven't got my contact information so i i don't need to deal with him anymore. I can come on buddy network. And it sends a powered through the michael j. fox foundation blinked in there and they won't give out my email to my phone number but i can still make connections which is great would have just jumped in one one more thing. Oh sure go ahead. Time of the social network thank follow a couple of facebook feeds and data The buddy network of discussion pages and stuff like that but i. I'm just not a person..

Chris Steph Linda facebook michael j. fox parkinson one one more thing
"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation Parkinson's Podcast

04:20 min | 1 year ago

"michael j" Discussed on The Michael J. Fox Foundation Parkinson's Podcast

"I consider myself somewhat active bicycle. I run into still employed full time. And i looked to bob to kind of give me the The hope and the The energy to keep going. And i imagine with once you establish you know sort of friendship of buddy ship over the course of six months. You're able to start diving into some deeper topics that's true. I know when i came to the relationship. I felt that i'd be the mentor and help this person down the journey as we got to talking chris very capable to talk to you and we talked about things that i don't talk to the people for whatever reason warmness depression. I just don't talk about it. Because i don't have time to be positive. Keep going him do that. But that's an comfortable almost immediately talking with chris. If be able to talk with that kind of an issue so i became the neater not eight or the needy not the nature so suddenly the butting that became more than just you being able to offer what you know. It's also now serving you absolutely now. That's amazing stephanie. When you hear this story how's that make you feel. I mean this story is is quickly becoming one of many that we're hearing from community members and i remember getting on the phone with bob on the a couple of months ago now and i met this gentleman. We set up a call. He got on the phone and we said okay. Now what do we do. You know blind date style. I guess but. I think knowing where that started this story that like. They're both being able to learn from each other and lean on each other. I think that's what the buddy network is all about. And i'll say one thing when when people are signing up there is not a lengthy but a decent on boarding process to ask specific questions that are It's a set once at a questions for people with parkinson's and other sex for care partners in loved ones. But it really digs into what you're looking to gain from the network and what some of your interests are hobbies are your stage of disease and i think through that on boarding processing within the buddy network. You're able to really filter in meet the right people. This was christie's first outreach to bob and it clicked. That might not always happen. But the buddy network. You're able to really dive into finding that right person or people to make these meaningful connections and we're hearing as more and more people are joining that more people are reaching out and saying hey i connected with someone and we had a great conversation and i found out that we live two miles from each other so these things are these things are happening and it just reiterates how important this network.

two miles chris six months both christie first outreach stephanie a couple of months ago bob one one thing parkinson