23 Burst results for "Ehlers"

"ehlers" Discussed on Scientific Sense

Scientific Sense

03:47 min | 8 months ago

"ehlers" Discussed on Scientific Sense

"Still also allowing the brain to learn and so that's will be called co adaptation. And the interesting thing this is that it creates this actually very complicated system to learner system where you now have a machine learning algorithm trying to learn what the brain is. You have the rain not trying to learn what the algorithm is doing at the same time So that this particular paper sort of centers on this question of you know. Can we actually combine these two things work together in a synergistic way or will it be that we you know. Create this moving target. And the brain never really figures out and learns that skill because we're changing things in our algorithm And so the kind of key. Finding of the paper is that it is actually possible to find kind of these creates synergistic learning between the machine learning algorithm and the brains. Uso use machine learning in some sense your your making the machine more tapped in some ways right so it would be more robust as ehlers come in again again. Learn humans also experiment. If go out to start way candidates you know the next. I'm the slightly differently. Just just let safet right. And so there's those types of random errors in the data right so that makes it a really distinct ball. Yeah absolutely and that's something that is really interesting. Thinking about this sort of exploitation versus exploration. Right that's really common in in learning and seems to be really a key part of what our rains do very well is kind of balancing those two two things The one of our the host that we have with some of these this idea of combining machine learning and brain learning together is that basically could you get the benefits of both types of marning right because machine. Learning is very powerful right. We know that an continues to get more and more powerful all the time as we. These technologies advanced but it also has lots of limits and it's not yet at the point of the incredible flexibility of our brains. And so the you know the theory in motivating to the school of combining these two learners and making the slightly more complicated system is that we could make. Could we actually get the best of both worlds rate and kind of balance the pros and cons of each kind of of the added in the interface. Ultimately i would imagine there are generalized in other words. Can't take the interface from human ex and it human boy and and have some effects are not yet They're definitely a folks very interested in trying to understand. How do that But right now. They are customized to each individual person. That's actually some of where the the daphne about her like what we're using in that paper are very powerful. Is that what we can do with..

ehlers
"ehlers" Discussed on Cardionerds

Cardionerds

03:59 min | 1 year ago

"ehlers" Discussed on Cardionerds

"We thank you for subscribing to and supporting the cardi nerds. This podcast is not meant to be used for medical advice. These express your do not necessarily reflect the opinions or policies of our employers. Everything is one hundred percent hip compliant. The speakers have no relevant disclosures and there was no commercial or in kind support for this activity be short claim. Free c using the link in the episode description. Welcome back carter nerds and thanks for joining us in this very special episode. I am erica. Hot cleveland clinic cardiology fellow. You might remember me from episode number seventy six. The case report titled ehlers down syndrome with postpartum popular muscle rupture taking care of that patient. Had a deep impact on me. And i will never forget her today. We granted with the opportunity of learning more about her personal lives story from her husband. Todd gasser joining us. Are dr unions. Degan in dr. Hal dietz unions is currently a third year medical resident at johns hopkins. And i'm very excited to save. She'll be joining us for our fellowship program at cleveland clinic in less than six months. Unisys originally from wisconsin and completed her medical school at the medical college of wisconsin. She's a key member of the cardio nurse family as a chief of house taussig in the cardinals academy and she's enjoy stinging volleyball traveling embar trivia. Welcome thank you erica. It's a great honor to be a part of this special episode. It also gives me great pleasure to introduce our very special guest. Dr hal dietz doctor. Deeds is very well known in the medical community as the world's leading authority on marfan syndrome and other connective tissue disorders including choice teach syndrome which carries his name after he described the syndrome. Along with dr He's associate professor of medicine in an assistant professor of neurological surgery at the johns hopkins university school of medicine. He's the victor a acoustic professor of genetics and also serves as the director of the william s milo center for marfan syndrome research. Thank you so much for joining us. Dr deeds welcome. It's a pleasure to be with you today. Thank you dr. It's our pleasure to have you now. I get the honor of introducing todd. Gasser who's our patients husband and father of the baby girl who's now an infant in about to actually turn a year old. I remember the night at taught in this sees mother as well as lissi. And i'll never forget the mixed feeling emotions i could see in. Todd's expression when he came to the unit he had just become a father but instead of enjoying those crazy days at home with a newborn he was there in the hospital supporting his wife through it. All there's no question that caring for lizzie would have been way more complex. Had it not been for the context that todd enlists provided for us. The family history in her case is absolutely essential. Todd we can't thank you enough for joining us today to honor lessees memory and learn more from her story higher. Everyone thank you for having me on the show. It's my pleasure to be here. Thanks for taking the opportunity to share lizzy story thaad. Can you tell us more about lizzie. How was she as a person. What did she enjoyed the most. How did it feel being around her. Yeah so lizzie. I think can be described as little boat mighty. She was around five foot. Maybe five foot one way two hundred pounds but she had a lot of energy. A lot of spunk. And i think you talk to her friends and family. That's the way that they were described her as just a fiery but yeah little but mighty so she enjoyed being outside she loved being in the sunshine. She loved to just be warm in so she moved from california to ohio. Which i'm not quite sure. Why but yeah. She missed the sunshine. Lot come in the end. Ohio so we love to go on vacation..

ohio california Ohio five foot Todd Todd gasser johns hopkins erica two hundred pounds one today wisconsin less than six months third year Gasser todd hal dietz Unisys johns hopkins university schoo one hundred percent
"ehlers" Discussed on Advocate Like a Mother Podcast

Advocate Like a Mother Podcast

04:54 min | 1 year ago

"ehlers" Discussed on Advocate Like a Mother Podcast

"So you're kind of going through your website. I noticed that either self-proclaimed or maybe instead to you but the mary poppins of life coaching. I enjoyed seeing that. I rarely see someone with the claim like that. that's That's great but in that same kind of statement. It sounds like you got three areas. You kind of focus on about resilience clarity and strength. You tell me a little bit more about why those are kind of three pillars. You know for you know for the work that you do in those Those three ideas are really important for how people change their perspective for finding health and and successon perseverence well. The mary poppins saying came in when really. I really work with people in the of times..

three ideas three areas three pillars
"ehlers" Discussed on Advocate Like a Mother Podcast

Advocate Like a Mother Podcast

04:35 min | 1 year ago

"ehlers" Discussed on Advocate Like a Mother Podcast

"I quit teaching Forty hours a week. Two hours away. She ended up getting the flu and she ended up hospitalized for a week. And she developed this really weird like they call it qatada hypoglycemia which is like you know. Everyone tries for kito us now and her body just sort of one into this thing and really rare because most people are born with it they outgrow it and and then you know we kind of started cycling and anytime she got sick ended up in the hospital And she was about six. Then and then progressively she's just increased Her stomach pain got worse and We now know she's twelve now. We now know that her colon only functions about seven percents small intestine. Gall gallbladder aren't working really. Well we know she has paralysis. We something called gasperi says she is in the pot syndrome. An inability to regulate blood pressure. She doesn't sweat anymore. She has neuropathy tacking cardiac. It's just one thing after another And it's been a constant journey and then the pain And then the underlying things for her is this incessant horrendous never ending pain that nobody can see and she can feel so you know we've done in physical therapy and occupational therapy and they had said at some point she had sensory issues but we found out we heard a term called tactile dona which was actually pain when you wear clothes and touched So she was misdiagnosed for years with that and You know it's just a constant of trying to sort through a like an entire body of multiple systems that they're specialists for but nobody really looks at the whole system And so she about two years ago got really really sick and lost about ten pounds. Got down to about fifty pounds. She's not being able to eat We got very very close to needing a feeding tube and somehow she squeaked that one out and she's actually been the last year ish she'd been stable up until recently but she had been unable. She may she's in sixth grade now. she made it to two days of fifth grade You know she's really been unable to do a lot of the things that she.

twelve Two hours last year sixth grade two days about ten pounds Forty hours a week fifth grade a week about fifty pounds about two years ago about six one thing years about seven percents one hypoglycemia
"ehlers" Discussed on Advocate Like a Mother Podcast

Advocate Like a Mother Podcast

05:11 min | 1 year ago

"ehlers" Discussed on Advocate Like a Mother Podcast

"Thank you. So much for joining us on advocate like a mother today To kinda get us in to the conversation. I'd love it if you'd a share a little bit about your family in your kids diagnosis and and then share with us. Some maybe a couple of. Tv's you really enjoy doing with your kids okay. Well so i am rachel raya. I am a shea single. Mom of two. I have a twelve year old named sawyer at a ten year. Old name hunter and we are family with a rare diagnosis called. Ehlers's dan lewis syndrome mobile. Ehlers dan lewis syndrome to be exact and so my twelve year old is most affected and she has sort of been the key to me getting a diagnosis and other people in my family So that is A very basic Sawyer has multiple diagnoses at this point. She was diagnosed At four and at this point she probably has seven specialists and seven systems involved. And it's become a thing for sure And things i enjoy doing with the kids Well.

rachel raya two ten year seven systems today twelve year old Ehlers dan lewis syndrome Ehlers's dan lewis syndrome seven specialists sawyer single Sawyer four
A possible life raft for small businesses selling online

Marketplace Tech with Molly Wood

04:45 min | 1 year ago

A possible life raft for small businesses selling online

"Episodes every wednesday. Small businesses are being thrown into the e commerce deep end. One company is offering a possible life raft from american public media. This is marketplace tech. I'm molly would for many small businesses. The pandemic driven abrupt shift to selling on the internet is a huge change. Plenty of brick and mortar store. Owners were selling in person only using everything from spreadsheets to paper and pencil to keep track of it all so companies are increasingly offering new tools to help brick and mortar stores manage their inventory and figure out which online platforms are best for them into. It launched something called quickbooks commerce earlier this year to help companies sell everywhere alex chris as the vp of the small business group into it so the most basic is in person right so you can imagine a retail store or if you're at a farmers market and you wanna be able to just sell with people in front of you but then there's lots of online channels as well so you can through amazon. You can have your own website and then there's a lot of selling through social right now so you know all the stores or or sales that are happening through a facebook or instagram. All of those are happening and businesses want access to customers wherever their customers are shopping. And does this product specifically integrate with those like all of a sudden. I have listed my products on instagram shop by an amazon. And i can see how they're doing across all those channels that's right that's the beauty of it is once you are set up in one channel. We are the source of truth for your orders inventory. Got it so so really. What you're saying is that previously small businesses were using quickbooks doing their thing maintaining and didn't necessarily want to explore all these other options or feel like they had to. I don't think they had to. I think they were working well. The economy was going well. And now when all of a sudden you know the world throws a curve ball They figure out how to pivot and persevere and what we're seeing now is a lot of small businesses saying okay. I was fine before. But now i can't have people showing up to my store to buy goods so i'm going to figure out how to sell online. You know here to help. Small businesses think through that and allow them to be able to survive. What about the data on the back end is like are you discovering internally what channels are the most effective we have not only the orders that are now coming in so the revenue that a small businesses making but we have all their expense information as well. Because that's what they've been using quick books to reconcile so now they can start to think about as they're leveraging different channels a social channel. They can now see the efficacy of the of that marketing. Spend and so for the first time they can really see our ally on where they wanna go leverage. Are they finding such great customer acquisition through instagram. That that's where they really wanna go double down there just getting those insights into making them smarter to be able to grow their business. You know we seem to be at this moment where there is actually a burgeoning industry in aggregating small businesses. I wonder if you're going to find that. Ecosystems develop that like facebook says you can't have access to our tools for selling because we're building our own competing product right now. It's certainly a concern on the concept of a walled garden is great for the platform. But it doesn't give the small business access to customers. And so we're that mench pin and the source of truth that can now connects to all the different opening systems. Alex chris is vp of the small business group at intuit and now for some related links. Yesterday we talked a bit about how shop affi- is winning at e. Commerce with growth comes problems. The financial times has a piece this week. That says as many as twenty percent of the shops on shop if i could be a risk to consumers in some way either their total frauds or they're selling counterfeit goods or they're sketchy in some other way. That's all according to a service called faked spot which authenticates e commerce outlets shop told the f. t. that this is a quote industry-wide problem if internet then fraud still consultants said shop affi- suffering from the good work done at ebay amazon and other platforms to try to stamp out counterfeits ehlers and fraudulent stores as in their all migrating to shop affi- until the platform figures it out if internet than buyer. Beware

Instagram Alex Chris Amazon Molly Facebook Intuit Ebay Affi
"ehlers" Discussed on No End In Sight

No End In Sight

04:20 min | 1 year ago

"ehlers" Discussed on No End In Sight

"To diagnose me with lupus so i'm still on that on that. That was a few months ago. He upped my dose. Because i think one of the other rheumatologists also had that idea. But i never filled it. I just went to him. So my dose animals like take it a few months and come back and see me and then we'll see or yeah what's happened basically. Yeah yeah so. But i don't think it's doing anything. I haven't seen him again yet. I'm still in that area of figuring out what what. Yeah but then it was my fourth rheumatologist. Who was the one who said you know. Your joints are loose like playing with my knee and my hips and stuff. And she's like yeah. This is really that normal. Yeah and i think in my research of of looking for what's wrong with me and lupus did come up a lot but then ehlers donald syndrome came up a few times too but i completely dismissed it. Because i didn't think i was hyper mobile. I thought it was normal. Been thank. I had stretchy skin. But i do. I thought everything was just knee. Maybe a little bit weird but yeah yeah and we'll all those descriptions like what you just said like. They're still relative and both actually for diagnostic. But yeah like if you're the only skin you've ever had you're not like oh yes. I definitely do it too yeah. I feel confident that this is much trickier than other people's like it's not until you find out that it is it really okay. Yeah i could see that. Yeah and i don't think also ever like stretched my face skin which is stretchy and they tried that once and i looked in the mirror was like oh my god. I think that's probably not normal. You know skin on my hand. I just would kind of play with and was stretching but i thought it was fine. My fingers bend really weird. I think i was told that by my grandma or something but i just kind of brushed off his her being older so she can't do it but some people don't have download than they are. Hypo hyper mobile inside. just that. But you know she didn't actually diagnosed me or even mentioned ehlers danielson so she was just like your joints are loose interesting. Basically no not attaching it to anything. Yes so and she's like. Yeah.

ehlers danielson lupus ehlers donald
Ridder, No. 7 Cincinnati roll over East Carolina, 55-17

AP News Radio

00:42 sec | 1 year ago

Ridder, No. 7 Cincinnati roll over East Carolina, 55-17

"Seven Frank Cincinnati blew out east Carolina fifty five seventeen to improve to seven on overall and five in when the American athletic conference Desmond Ridder threw for three hundred twenty seven yards and three touchdowns and he also ran for a score Fillmore watching defense nor does the boulders looks another showed us exactly what the employer and you know all this the rest of the season and we will catch up on it all were needed to be Ritter has accounted for seventeen touchdowns the past four games including nine rushing scores Jerome Ford ran for a pair of TV's for the Bearcats whose team record nineteen game home winning streak at the fourth longest among FBS schools ECU's Holden Ehlers through for just eighty seven yards with three interceptions I'm Dave very

Frank Cincinnati East Carolina American Athletic Conference Desmond Ridder Fillmore Jerome Ford Ritter Bearcats Holden Ehlers Dave
"ehlers" Discussed on Cardionerds

Cardionerds

03:25 min | 1 year ago

"ehlers" Discussed on Cardionerds

"We've got a patient who's developed a liver laceration spontaneously pack on muscle rupture spontaneously and post-surgical dehiscence of myocardial tissue in this context of being postpartum peripartum and having probably some underlying presupposition the tissue khong He doesn't have structural integrity and we think about the peripartum changes in tissue characteristics, but the hormonal changes do change the tissue elasticity and integrity in pregnancy, but it's just that most patients don't have a vulnerability to actually having a manifest rupture or laceration in this way. Yeah, I think that points to the importance of not anchoring on diagnosis keeps circling back as more information comes up. I think the finding of the tissue fragility are how easily a dehisced intraoperatively really makes us think again about what's the ideology in this patient. I think whenever you're seeing a patient in clinic and they mention that their brother passed away from an aortic dissection in their teens, that should really make you think that's not a normal thing to happen. You really need to go searching for what could be running in about family. Yes, and actually the surgeon that report that her tissues were extremely friable and reminded him of vascular ehlers-danlos cuz it's one of the reasons why the tissue can be very very long. I believe the operating room. Yeah, that's so interesting and going back to a carousel obtaining family. History itself is such an art, you know, I'll ask patients all the time. Hey, do you have like hard history and people like, oh, yeah. My grandfather will had a massive heart attack and then you like delve into a deeper and you realize that wasn't necessarily a heart attack, you know, the grandfather was fine until he wasn't and by all means definition. It was what sudden death event or yes. That's a hard problem. They died in a car accident. And you ask was there a passenger actually he was driving and then all of a sudden just slumped over and that's what preceded the car accident and so, you know, I think the the obtaining of the family history so important but I'm Ken how did you guys put this together in terms of the tissue being so friable from the surgeons perspective having multiple episodes of tissue rupturing or last rating and with his family history. Yeah. So retrospectively we moved back to look at the literature and there's only actually five cases reported of postpartum popular muscle rupture and ideologies were really limited to postpartum Mi secondary to underlying CD and older patients job. Infective endocarditis, and then connective tissue disorders and in this group Bastille is download was highlighted. So with the description of the surgeon about the Firebolt issue and how it fits. Neatly looks like butter and feels like butter when they're in operating room faster than those downloads became very high in the differential. So as soon as she arrived to the surgical ICU genetics, Wisconsin. And I think another Point here is one that we may take for granted here at our institution. Is that the head attending surgeon giving the first year Cardiology Fellowship an update on the surgical case and this is not really the Rarity. We have the luxury of having some of the best most specialized cardiothoracic surgeons and it's a very clear line of communication between us oftentimes is the first year fellows and the cardiothoracic surgery team. So this was great that you had the immediate feedback because you knew the case best pre-op and the surgeon was able to fill yep. On what he found in that ultimately helped progress the case. Yes, I did receive immediate feedback on this occasion actually got to the operating room at 2 a.m..

attending surgeon Infective endocarditis ICU Mi Ken Wisconsin
"ehlers" Discussed on Cardionerds

Cardionerds

03:09 min | 1 year ago

"ehlers" Discussed on Cardionerds

"So it's a really unique chest X right here. Yeah, exactly and interestingly. I then went back and looked at her t e and actually they interrogated her pulmonary veins and you could see higher velocities for systolic flow reversal in the back right sided pulmonary vein versus the left side of pulmonary vein, which would give you the explanation of why she had more right lower lobe predominance of pulmonary edema. Wow, so everything kind of dog. Makes sense still in this fitting together with the one diagnosis exactly America. I think it was really good. You're thinking about kind of atypical sources of ischemia in such a young patient. This isn't someone who think about traditional coronary artery disease causing. Ischemia. If This Were to be ischemic I think scad is a very good thing to have in your differential and also thinking about symbolic diseases weather be vegetative material during endocarditis or some thrombus that develops in either directly embolize has or paradoxically empathizes through Payton p f oh, I think this is a really interesting discussion and such a young patient doesn't seem like our patient had ischemia given her clinical picture, but always good to think about when you're talking about a cute pipe rupture. Carry that was such a great differential diagnosis across definitely seen that paradoxical coronary envelopes from a pagan p f o and in a similar context postpartum is a handful of weeks postpartum. We had a patient who essentially had come in with evidence of the scheme. Angelina and a coronary angiography found coronary ostial stenosis of the left Main and the RCA and the eventual ideology was Associated coronary vasculitis. So it just goes to show you that young people can get coronary disease too and it may be atherosclerosis from undefined risk factors, like elevated LP little a or a hypercoagulability but there's certainly a long list of Rich differential diagnosis to consider for ischemia unfortunate that ended up leaving possibly to tap rupture and I'm and I think that points to the fact of a why we're all cardio nerds medicine will keep surprising us a hundred percent. I couldn't agree with you more. Let's get back to the case. As I said cardiac surgery was at bedside and the shock team was activated. She was stable enough to go to the operating room and So within 60 minutes she was actually able to make it to the operating off with one of her mitral valve experts and she underwent mitral valve replacement. However, her course was actually pretty complicated in the operating room and soon after they finish off. A mitral valve replacement and while they were coming off pump. She started developing very brisk bleeding from her chest and they had to put her back on pump open her up again, and they saw that Mike Harding had actually the history. So the entire left atrium was the hissed and even a part of the left ventricle. So our surgeon had to start all over again take out the prosthesis down and put up a new prostheses put in for cardio patch. And so all The myocardium that had to his you know, and I just want to highlight that there is a recurring theme Here Erica is useful as usually noted. There's a family history that raised awareness or concern for underlying connective tissue disease and here just in a span of a few days..

coronary disease pulmonary vein mitral valve Angelina pulmonary edema left atrium connective tissue disease left ventricle America stenosis Mike Harding Erica RCA endocarditis Payton thrombus
"ehlers" Discussed on Leading Saints Podcast

Leading Saints Podcast

05:31 min | 1 year ago

"ehlers" Discussed on Leading Saints Podcast

"Perspective. When i'm talking about twenty two hundred or engagement for two thousand. I asked them if in the last stand up and i say in the last forty day last thirty days if you have said yes when you could say no take a seat and i go through the four. The room is always completely seated and that is in those four. Things are not leadership. That's not leadership that's being of our right. Yeah everybody's doing them and what we have found is it's costing people five hundred hours a year just on these four masks five hundred dollars a year like what would you do if i was three months like no meetings on your calendar like it's crazy so if you can identify which of these mass or holding you back as a leader you can then actually use these three principles to take it off and unlock those five hundred hours again. This is what i want to underscore and highlight is that there may be individuals that may be saw the title of this interview and they think. Oh yeah you know. I'm working with different attics. And this'll be good will help me as bishop or ehlers court. Prisoner is a leader. You know. help those people but again a my journey like has been so helpful to see that we all have these addictive behaviors and habits. I mean as far as coping mechanisms. We may not be slipping away to the bar or addicted to pornography or whatever it is but were all posing covering these mass up and i love these four mass. Because it's so like man. I probably in the last twenty four hours. I've probably violated two of those. At least you know to pervasive it is because we are all like so basically what. I argue in the book. Is that the reason that we don't have authentic leaders is we haven't diagnosed the problem appropriately. Our problem isn't that we should have authentic leaders. Our problem is that we're not acknowledging that we are dealing with an addiction and addiction to the mask yes he are all addicted to hiding ourselves..

ehlers
"ehlers" Discussed on The Get Foxy Show

The Get Foxy Show

01:57 min | 1 year ago

"ehlers" Discussed on The Get Foxy Show

"Can't get the nutrients and oxygen to your skin. It's not going to be healthy. Sunlight. So, much a little controversial A little sunlight is good because it helps you produce. Vitamin D three and that's really important for your immune system. However. The ultraviolet rays in sunlight can also cause college to break down more rapidly. Damaging the collagen fibers and causing abnormal Alaskan build up. So it it makes the elastic kind of gunk up together knit it loses the elasticity. And so with the U., v. in sunlight damaging the Collagen, then the skin ends up trying to rebuild but so incorrectly, and that leads to the formation wrinkles. Another factor. Have Auto Immune disorders. Some Auto Immune Disorders 'cause antibodies to target college. Your own body begins to attack its own Collagen, which that that's a problem. Then, there's genetic changes that can affect the Collagen as well. Collagen that's produced can be lower or it may be dysfunctional or mutated. Collagen. folks with ehlers's download. Syndrome for example, can have changes in their college and because of this genetic issue. The aging process also causes Collagen levels to deplete naturally. I. Mean it just there's there's no way to prevent that at your interest does happen. So the main things here to avoid are..

ehlers
"ehlers" Discussed on Eric & Gord What If We're Right?

Eric & Gord What If We're Right?

01:45 min | 2 years ago

"ehlers" Discussed on Eric & Gord What If We're Right?

"So he just got a free right. Now that's cool. The Guy Literally stole from a church. Why not is just amazing? The the only time I was ever involved in I mean a guy I know was involved in car. Thefts it from a church ground really I. This guy I know went through the courtroom at the church just started reading pockets. And it'd be some keys in the buckets this guy walking around the parking lot due to cook now there. There's keys and everything that's going to as was planning on this but since it's here that guy wasn't very smart. Because him and his buddies drove it around Cologne or three fucking days dumb occasionally having to stop at ehlers to steal every fucking CD on their shelves so he could take them up to darkies bond brokers and pawn. And you get three bucks a piece for CDs back then when you can fill your gas tank for like twenty five bucks a whole lot. More nine thousand three bucks for thirty. I probably played a big role in Zeller's going out of business. This guy I know. Wait.

ehlers Zeller
"ehlers" Discussed on C-SPAN Radio

C-SPAN Radio

01:45 min | 2 years ago

"ehlers" Discussed on C-SPAN Radio

"Please help me do that until I'm a hundred and nine I'm better use the for the thirteen years I've known Steve if I were to some of his attitude his tenacity his mantra it would be it's not a matter of if we will accomplish the goal it's only when it's not a matter of if he will block upon its when it's not a matter if the saints win the Superbowl it's when it's not a matter of we will develop technology and innovation to improve the quality of life for years a less patience it's when it's not a matter of if we will create legislation to ensure better care for all those suffering from neuromuscular diseases it's when and it's not a matter if we find a cure for a less it's when we find a cure for Ehlers I mention these moments in our lives that we will always remember both tragedy and triumph it's either one of the other but in very rare cases there are those events that turn from tragedy into triumph that is how I would describe the last nine years since these diagnoses there's no person on earth with the strength courage passion and tenacity to overcome all obstacles and make a lasting impact Steve is made Steve you're an inspiration your source of strength to someone special a.

Steve saints Ehlers
"ehlers" Discussed on Biz Talk Radio

Biz Talk Radio

06:46 min | 2 years ago

"ehlers" Discussed on Biz Talk Radio

"Cure for Ehlers but he's investment technology at that last to have a more quality of life in the nation and then they would have without it and that's what he's done he's told me that he's not confined by here is Israel cherries liberated by and when he got a alas seats at one now I don't my purpose in life to help others who have a alas for quality lives in the next week we can help find a cure for LS so I decided and he knew it right the fireworks on my block that I would donate the percent of all proceeds to team Cleveland that help with this car round congratulations on that that's a wonderful wonderful thing and what makes this such an extraordinary story is that Steve Gleason also it really and truly put all kinds of of numbers and for bar was a great football player great humanitarian after hurricane Katrina and he had this disease he's like one of the longest living people I think is very yeah yes I think he's had it now about seven years I think it's longer I think he was diagnosed in twenty eleven it might be a and then don't yeah well they'll at three to five years but he's not going to tell you is that they are me looks terrific actually stand there is that wonderful so I think that this is such a great story but more importantly what you're trying to do market and how was the response tell us what the response has been like well I don't think want to party here locally about a week ago and the support I got from the local computer our community was granted I had a local TV anchor that introduced me all the rest Philippine police and what part of that you got up on stage we had almost over a hundred fifty people there the whole idea is to get the word out and so the response in terms I'm in me going forward and the support I'm getting at work told in a lot of momentum really what I want to do is I want to get people attacking American accountability plans and they get that by going to give it the apple dot com join the movement and take that flight I agree that kindness is better we cannot be self Christian I pledge to do the right thing all agents and foundation a spell that will go on not to or responsibility for it and it's really a good number for providing the needs of others for us not the reason I think this works and I know it works because you know as a as a consultant I get with organizations and they have certain cultures and not always cultures are good when you change the culture of an organization may focus on what I call the give a damn principle it's amazing how much it list people in Mason how much a company gross everybody working together I know it works I've seen it work I wanted to work on a nationwide basis and not with the whole reason for criminal I love it I absolutely love it give us a couple of examples of of how we can give a damn give us a few examples that you love well what I want to make this analogy like with a a rusty now I remember walking across the street thank you this rusty nail it was in the middle of the street and most people wouldn't pick it up but I picked it up because I didn't want to structure now beginner need anybody's car but if the rusty now is in the middle of your driveway everybody would pick it up because now you can internalize something that affects you so I use that as a really good and analogy analysis thank about what you see or what you do and what effect it has on other people and internalized it like you would internalize something that have somebody that's very very important to you simply going around and and picking up the garbage that's on somebody else's yard or when you're walking down the street pick it up open the door for somebody say a simple thank you amazing when I open up a four door for some eleven through that they just walk through and never say thank you like used to work thank you and please excuse me and smile for somebody if someone asks you how are you only six thank you make it takes up a lot of their seat because like how can something so horrific all the time and I fell on well some days are just more terrific than others yeah absolutely mark absolutely I know that a group of us in in in in the neighborhood we have one of an elderly neighbor who it does not have a lot of family hardly anyone and we stopped seeing her around and there we started hearing strange stories and so they did a little wellness follow up and she wound up being placed in the house into a hospital there was nothing physically wrong with her but she's early onset and she's ninety we had a little birthday party for her in the park because she was picking up the trash she was the one that on her own for years was it was a volunteer in the park and had her whole outfit in every morning it at six o'clock she would be out there picking up the trash in the park she wasn't a page she did it on our own and so when she had her lost her way in and her house housing and all of that a group of us made the commitment to stay in touch and we go to visit her and it's so wonderful we bring their cards and we let people know that she's not alone that she's a human being that has feelings that she needs to be trade I did with the grace and dignity that every human being should have and and I love that we do that is a community that we've come together to to visit her in to be with her you know what frankly we need to hear more stories about this in the media we don't hear and not the bottom we hear that it's going on and I want to hear more for that because it's in gauging it feels good when you do things for other people feel good and it does it does you up and you want to it's a proposal and we and we feel good about you being on and we're out of time this is been wonderful thank you so much congradulations on all the hard work and give us the website as we go to break on the new book thank you Frank you get a sample.

Ehlers
"ehlers" Discussed on WBZ NewsRadio 1030

WBZ NewsRadio 1030

02:35 min | 2 years ago

"ehlers" Discussed on WBZ NewsRadio 1030

"Seven nine three eight forty twenty eight traffic and weather together Ehlers up doing going all wheel drive traffic on the threes here's Lauren Graham the new crash death this is one twenty eight north that it's in the breakdown lane now just before wind streets in Burlington watch out for delays there one twenty eight south bound still tough for mainstream lane feel to Washington Street that approaching propeller road in Walt everyone's out that type of stuff now is walnut street in ninety nine inside his three three sap on your on the brakes drum hill to trouble coping get approaching one twenty eight ninety three in north and South bouncing delays the southbound side still heavy through with the women and it really it gets tight from stone in the December bill the northbound side slow spot pond to one twenty eight real tough twenty four as north on this is on the south of the city on the heavy congestion one forty to route forty four get Harrison Boulevard in a bunch of the margin Randolph that's been top force all morning long ninety five north bound still top as well route one in Sherrin to one twenty eight for ninety five southbound the crashes clear just before two ninety in Marlboro still some residual delays as things try to get back up to speed there for ninety five north on top from one twenty six in Bellingham to the pike eastbound mass pike slow for about four miles approaching one twenty eight at four ninety five rather and then again it's slow through west Newton and Market Street bride to be you Laurie grantee WBZ's traffic on the three D. devore has the four day WBZ accu weather forecast brought to you by doing good Honda dealers good morning dean good morning David is mired in clouds and drizzle it's just an ugly day and age silly one is have she's gonna see these stock right where they are a mid upper thirties inland low forties around the city in the coastal areas wills dry it out later tonight after some more drizzle in the evening and maybe a few snow flakes or sleep palace then clears gets colder could be icy spots we wake up inland because temperatures closer to thirty mid upper thirties along the coast tomorrow even after a a colder started gets more by the afternoon up to near fifty watt warmer with sunshine and then the mild as these can be Friday some showers in the day but mainly cloudy breezy upper fifties on Friday and its colder for the weekend there's a storm there watching **** gonna bring some rain maybe mix with some inland sleet and snow how much and how intense will keep an eye on it as we head towards the weekend on WBZ bosses newsradio in Abington it's cloudy forty one forty three degrees in Cambridge and forty clouds in Boston at the happy holidays sales event you can unwrap incredible deals that'll make you no way get a great deal on a twenty nineteen C. R. V. with one point nine percent APR financing for well qualified.

Ehlers forty one forty three degrees nine percent fifty watt four day
Pelosi says Trump's actions make Nixon's crimes look small

America in the Morning

02:47 min | 2 years ago

Pelosi says Trump's actions make Nixon's crimes look small

"The house impeachment inquiry continues today with testimony from the former U. S. ambassador to Ukraine Marie he'll sign of age Capitol Hill correspondent Linda Kenyan has a preview Maria von of it was abruptly recalled from her post in Ukraine and what some members of Congress have described as a political hit job perpetrated by president trump's personal attorney Rudy guiliani state department colleagues say you're gonna which was withdrawn from her post following a campaign of slander led by guiliani who was running a back channel operation on behalf of the president to dig up dirt on political rival Joe Biden in exchange for the release of four hundred million dollars in military aid you're gonna just testimonies meant to paint a picture of a president who abused his power when it came to US foreign policy toward Ukraine house speaker Nancy Pelosi says abuse of power is just one of the many things the president did what president trump has done on the record in terms of acting to advantage he is a foreign power to help him in his own election and of the obstruction of information about that the cover up makes what Nixon did look almost small representative Chris Stewart of Utah a Republican on the house intelligence committee says the hearings thus far and the hearing still to come won't change a thing I think the public support for impeachment is actually going to go down house minority leader Kevin McCarthy agrees we're talking about removing a duly elected president you take that so lightly speaker Pelosi isn't exactly taking any of this lightly but I am saying at that what is the president has admitted to and says it's perfect lessons perfectly wrong it's Freiberg follows the referring to that now infamous phone call between president trump and the Ukrainian leader that led to the impeachment pearl representative Stewart says that's a pretty weak argument really does come down to one phone call but there was a second phone call that came to light during this week's public impeachment hearings the top US diplomat in Ukraine William to Ehlers described how a member of his staff David Holmes overheard a conversation between the president and Gordon summoned the US ambassador to the European Union Taylor said the July twenty six cell phone call occurred at a restaurant in Kiev where homes are trump ask someone about the status of the investigations after the call homes as someone what trump thought about Ukraine someone responded president trump cares more about the investigations of bite representative Stewart finds this to be a bit of a stretch I find it I think fairly fairly outrageous to think that we're going to convict the president based on what someone heard standing next to someone who is having a phone call as for that age who reported overhearing that second phone call he will be on Capitol Hill today for a closed door deposition as Maria von of H. testifies in the public hearing

U. S. Ambassador Four Hundred Million Dollars
"ehlers" Discussed on Newsradio 700 WLW

Newsradio 700 WLW

01:43 min | 2 years ago

"ehlers" Discussed on Newsradio 700 WLW

"Patients by Ehlers rolling to the west had to bear cats out there in the they were five feet from the five yards off but he knew we had to make something happen or throw it away and he was able to find sleep come across first catch of the game for Tyler is the first and ten at the Cincinnati forty three yard line out of a pistol formation Christian running back motions to the quarterbacks laugh they give it to trace Christian and he'll be flattened by Jaafari Taylor at the forty after one of three thanks John bye to bar Taylor of losing the center that time getting to the right log in that up and making the tackle gain of three that's not a bad job by the defense to tackle defense down defense of one of our previous druggists need one for twenty yards second down at the Cincinnati forty Ehlers hands it off and a bear cats have Christian for a lost back at the forty two yard line well one of the things that east Carolina's does give up a lot or tackles for losses in the Bearcats with penetration there and a little beer here in the crowd there a little bit of pushing and shoving again the lake van and allies you ponder combining for that tackle for loss so here we are third down and eight after a loss of one two receivers left to out to the right the balls right the middle of the field at the Cincinnati forty two yard line Ehlers is ten for sixteen for a hundred seventy three yards the sophomore quarterback is ready he's back to throw throw so the middle it is dropped Hatfield could not hold on good coverage Cincinnati safety Derek forest and we'll see what the pirate selected do on fourth down in a year and a young there to day and gotten the face that time that's a top that they're going to go for it there are no man's land here well.

Cat Owners Unite! It's National Cat Day

Charlie Parker

03:56 min | 2 years ago

Cat Owners Unite! It's National Cat Day

"Well it is the twenty ninth day of October which means it's two days until Halloween five days to get that extra hour sleep charity I'm getting that way daylight saving and this Sunday morning at two AM thirty days until thanksgiving and fifty seven days until Christmas I mention is October twenty ninth right you did it is well hang on one second happy national cat day it is national cat day and I know you are a cat lover charity McCurdy by and then got three at home one night like twenty one twenty one yeah easy getting closer Guinness record there pretty much yeah he lived a good life well since since it is national cat day new survey found the average cat over owner spends over a thousand hours a year on their cats so if you have three that's three thousand hours in it I don't know that kind of time anymore but I do bet them before going to bed and that really helps me go to sleep all right here are some statistics on this national cat day sixty five percent of cat owners have traveled with their their cat cat I I I I guess guess moving moving and and driving driving them them to to your your new new home home must must must must have have counted counted because because I I can't can't see see taking taking a a cat cat on on a a vacation vacation no no they're they're not not a a comfort comfort animal animal for being a traveling the top cat themed items we own our clothes yeah specially for my daughter she has cat PJ is that things like that you have framed photos of your cat I painted pictures of my cat and they're hanging in our master bedroom don't judge okay have sheets or blankets with cats so okay okay okay fifty one percent of Catholic cat owners over half of the cat owners have rescue at least one of their cats all three all three that I like to hear that top places we rescue cats from animal shelters friends in cat rescue organizations or just in some bushes yeah are you just fine and despite a run around on street I have three cats that live in my yard basically they're hunters for me they belong to my neighbors I guess and they're very cool because they don't bother me did I say hi Katie all the time when I walk out one likes to get in my truck though in the bed and and sometimes I have to look back there if I don't see him running around out there make sure he's not in there when I take off the I. D. feed them treats thirty now now that I actually I let them have all the squirrels and field mice they want oh how nice yeah it's it's open season it's about Faye form of the other one top qualities we love about cats what do you think they are I'm just comfort help mild mannered they are that's comforting right yeah how bout playfulness that playful all too much sometimes really how about their loyalty it is one thing I've seen cats oversee loyalty in cats I see them you know they don't care they're pretty loyal I mean are they yeah I you mentioned that putting your cat before you go to bed is a form of therapy will seventy five percent of owners say the same thing yeah would you rather spend time with your cats than your friends you know it's a fifty fifty shot in there will have to start naming people sixty per sixty six percent of people in this survey said they'd rather spend time with a cat and their friends and I I'm sure you'll like this because eighty five percent of cat owners treat their cats like part of the family they're not like having a seat at the dinner table or anything like that now now it's cruel I guess that's cruelty that can't cruelty need another place well they they have their own place don't the the house is their home plays down as Rome it bingo anywhere except Ehlers room well that's that's smart smart your cats around your kids

Seventy Five Percent Three Thousand Hours Eighty Five Percent Sixty Five Percent Fifty One Percent Sixty Six Percent Fifty Seven Days Thousand Hours Thirty Days One Second Five Days Two Days
Allen Adamson, CEO And Ivers discussed on KQED Radio Show

KQED Radio Show

02:08 min | 3 years ago

Allen Adamson, CEO And Ivers discussed on KQED Radio Show

"Uber says it's teaming up with a company called cargo twenty shopping app for uber riders the idea is that why you're in car you'll be able to buy things like luggage or make up or what have you kinda like sky mall the for uber right drivers will get a cut so there is an incentive for them to sell to you but really this is an old marketing technique right selling stuff to a captive audience but our consumers really up for that experience marketplace Merrill segera reports on the strategy cargo has actually been around for a couple years it's so website you can use to buy stuff your uber driver has on hand she won't stand at the Yale school of management says that makes sense it solves an immediate need you know why you are writing what do you need you may need some water you may need some kind of small snack which you can get it right here now cargoes launching as a full fledged apps separate from over and it's going to start selling big ticket items little ship to your house Allen Adamson who teaches at NYU stern school of business says this is less likely to work because if people want to shop online mother in an over they can just go to another online retailer and he says this could backfire it's going to damage the usual brand if uber drivers are trying to sell you a kitchen sink because cargo is relying on writers as a captive audience stuck in the backseat and forced to listen to potential sales pitches from drivers who by the way get a twenty five percent cut of those sales the drivers certainly motivated is a is a get squeezed into a tighter and tighter margins in our they're desperate to make an extra dollar just crave the CEO of cargo says he doesn't expect the worst drivers to become pushy sales associates I don't worry about it because we don't charge Ivers detail one anyway but Adams in says there is a risk that reach Ehlers and marketers need to be aware of the cost they can't really is the disruption to the customer experience and the negativity it produces and customers when they feel captive these days if you're that customer maybe your next online purchase is noise canceling

Allen Adamson CEO Ivers Adams Ehlers Merrill Segera Yale School Of Management Nyu Stern School Of Business Twenty Five Percent
Yoga teacher found alive after 17 days lost in Hawaii forest

Dewitt Law Review

00:28 sec | 3 years ago

Yoga teacher found alive after 17 days lost in Hawaii forest

"Learning new details about Amanda, Ehlers, extraordinary will to survive the year old yoga instructor living on berries, plants and guavas for seventeen days, her suffering coming to an end. Thanks to a volunteer. Search and rescue effort, led by friends and strangers. Amandas angels, how the cancel cancel spotting Amanda from a helicopter. She was wedged between two waterfalls and the Kalou forest Eller was found the deep ravines hit a broken leg and was airlifted for hospital

Amanda Kalou Forest Eller Ehlers Instructor Seventeen Days
"ehlers" Discussed on WMAL 630AM

WMAL 630AM

03:26 min | 3 years ago

"ehlers" Discussed on WMAL 630AM

"Four. I'm Marie leaf Ehlers outer Dr. Colors right shoulder as an Trump's smoke this morning at the thirty eighth annual national peace officers memorial service on the west front of the US capital to all of the families of our fallen officers. Our whole country's praying for you, embracing you and pledging to you that we will never ever leave your side never disappoint. You your loved ones where extrordinary and selfless Americans who gave everything they had in defense of our communities. Our children our nation. You can watch that full service on our Facebook page WMA LDC. Meanwhile, Treasury Secretary Steven Mnuchin singling the administration will not provide President Trump's tax returns that have been subpoenaed by a house committee, Maryland democratic Senator Chris van Hollen asked the Treasury Secretary. Whether he believes this is a legitimate request doesn't congress as a separate branch of government has. Have an interest legitimate interest in determining whether or not the IRS is enforcing the tax laws with respect to a president of the United States Secretary Mnuchin responded, there is a difference in interpretation between congress and us and the department of Justice around this law that not only impacts this president, and this congress, but has a very big impact on every single taxpayer and weaponising the IRS deadline to produce the tax returns this Friday. Linda Kenyon, Capitol Hill in response to heighten tensions between the US in Iran. The US embassy in Baghdad ordering all nonessential personnel to leave Iraq immediately. If there was a decision that you needed to slow down some kind of breakout activity exceleron their nuclear program. What would it take for the US military to slow that down the option on the table more than one hundred thousand troops because the assessment is you would I have to take out a wrong missiles? It's tack boats its air defenses. Correspondent Barbara Starr, the latest now on the car that was found upside down in the canal near great falls tavern. This morning two men were hospitalized after being rescued from the canal where the car was overturned to adult male one operator one passenger operator have minor injuries. The passenger as critical but stable injury sergeant Edward Odell Gado with US park. Police suspected that the operator was under the influence, and why the car got onto the towpath. I don't know. Why do I Barbara WMA Allen WFAN dot com? They'll be a delay. In a decision that went impose steep tariffs on auto imports administration officials told Reuters last week, President Trump would likely delay. Imposing tariffs on autos. Now, Bloomberg reports White House as have discussed postponing them for up to six months. The administration has until this Saturday to decide whether to move ahead with threatened tariffs of up to twenty five percent on cars coming. From europe. A move many fear with alienate key US allies. And devastate global supply chains has the president simultaneously tries to resolve brewing crises in Iran and North Korea. Scott Carr, Washington checking your money ahead of the close. The Dow is up one hundred seventeen points, the s&p five hundred up seventeen NASDAQ up eighty eight WMA L, traffic and weather next.

US president Senator Chris van Hollen Secretary Mnuchin Trump congress Marie leaf Ehlers Barbara WMA Allen Iran IRS Facebook Edward Odell Gado Barbara Starr Baghdad Maryland Iraq Linda Kenyon
"ehlers" Discussed on Monday Morning Podcast

Monday Morning Podcast

05:08 min | 3 years ago

"ehlers" Discussed on Monday Morning Podcast

"Like you did with the number two pencil and second grade trying to get down to the race. Right. Okay. But nobody with a big bushy beard is squatting down like a Chinese gambler next to a fucking river with the goddamn dinner plate trying to find gold, but lo and behold, they found ten douchebag. So we're doing it, and they decided to make it a show, and they decided to fuck have what film these guys arguing each other and play this something dangerous as happening music underneath it up. Sick of it. All right. Fuck minors fucked people. Make cakes for living. Fuck those goddamn, crab fisherman. You know, nobody is making you go on that God damn boat. Fucking idiots going out there. Risking your lives over flounder ghetto. You know, just say what you do out loud for a living. To say out loud. A couple of times yourself. I go on a fucking tugboat. Okay. And I I ripped my life. To get to get king crabs. So rich people have something crunchy to eat. Go. Fuck yourself J P Morgan you want crab. Go get it yourself. What are you fucking options? Actually, you know, making fun. I actually respect those guys because I have a tremendous tremendous fear of the ocean. Huge fear people who go out and swim in the ocean. Your fucking minds your idea fuck in minds. I know I've said this before and the podcast, but you know, what I'm going to say it again. I don't give a shit. Edgy. I'm crazy. They should make a show about me and my podcast in the dangers of it. You know, and then India will have fake arguments. You know, we'll have shit like plugs or something. We'll go wrong. You know? I don't know. I don't have with my lips LS Ted thought you were going to have it. Then they'll cut to me, you know. So I went to do the podcast, and I couldn't find the Olympic Ehlers ten, you know. You know? I mean, I gotta get this podcast by Monday. If you don't set like, I think the Orange County choppers. They basically created the template for all those reality shows. And now everybody does that shit the exact same thing that would happen on that fucking motorcycle show. Where the sum again, then we had a problem. The the carburetor didn't fit for the carburetor wasn't here. And the like the dad comes to school you on the carburetor isn't here. We're really cool. Joke book folder. Then he gets on there. So Mikey's welcomes get round were Were you. you could cub really? How fucking jacked is the data on that show. He could squeeze my entire family to death. If he got excited enough. I'm so now, they do that shit. Like, it makes sense on the chopper show. Right. But you mechanics, they they're wearing their greasy Dicky's. They got bud cracks hanging out. They're going to yell and scream at each other. Right. But the fucking idiots making cakes. We get a job we have to make a cake for the firehouse. And I decided to do a cake that was shaped like a fire hydrant. I wanted to do a fire hydrant motif with the little dalmatian peeing on the fire hydrant. But Michael was like I don't think that we should bring urine into something that's going to be in your mouth. It was typical Michael just shitting on my creative process. Kill yourselves. Nobody cares. Nobody cares about you. And your fucking cakes. And I like cakes. You guys know that about me, did you let's see how twenty minutes in here. Twenty minutes into the fuck and podcast. Should I do it? Do it. I'm going to be a class act here. My condolences to the Chicago bear fans and the fans in the New York Jets, the true fans, the true sports fans, the ones that don't talk shit, the ones who are cool the ones who you know, you can actually have a conversation about football with my condolences. Go out to you believe as a fan of Boston teams for my entire life. I know what it feels like to be that fuck and close and get kicked in the seeds again. So my condolences congratulations to the Steelers and the Green Bay Packers and. I would like to open this dialogue. This is something that bugs me. About NFL football is is this. I don't get why in every other fucking major sport they count championships from one hundred years ago..

Mikey Ted Green Bay Packers Orange County choppers Michael NFL Boston Steelers Chicago New York Jets India football one hundred years Twenty minutes twenty minutes