35 Burst results for "Cerebral Palsy"
Beyoncé to remove offensive word from new song
"Singer Beyoncé will edit one of her new songs to take out an offensive word for disabled people I'm Archie's are a letter with the latest Beyoncé's song from her new album renaissance contains the word spaz That's considered a derogatory reference to spastic diplegia a form of cerebral palsy a Beyoncé spokeswoman says in a statement to The Associated Press the word was not intended in a harmful way and will be replaced Beyoncé song comes two months after disability advocates complained when lizzo used the word in her song girls Lizzo took out the word and said she never wanted to promote derogatory language
"cerebral palsy" Discussed on The Unfiltered Real Talk Podcast
"And how can we can learn from that by set goals for myself and keep them. I would do anything duty to achieve them here absolutely so i want us to talk about your journey all the accomplishments. You've had down the road. I know that for example for your fortieth birthday you forty. It's you climbed memorial stairs in calgary and you did. You went up the stairs and you wanted to do that for your fortieth birthday. So what did you do something different and being something that i had done some being so tell us more about. Tell us more about some of the things that you do as a cyclist as an at least what is a day in your life. What does the day in your life look like. I usually wake up around six thirty. Seven o'clock get grass. and i. i've actually biking my roads. Soy jump on that does. That's the first thing i do ready for the day and jump reid for like five mongers. Then i been we best cleanup hope to the game by similar. I work with bill. Wake with for like six years now. Six seven years now. And i work with her for now. Come back on you break. And if i want i can grow bike again outside winning. Come in give it better ticket shower. Spend time with my family. Wow and you work as a data entry clerk. He said yeah not right now. The parade bad. I still have a job. Can you share with us. What that journey was like going to get a job having to find a job. What are some of the challenges that face and how you overcame them. It was hard to rent out our. You've everybody sees me either disparity. It owns the person. It was hard for me because people didn't accept me reminders thirty because saw a person with a disability when i found my job other data entry clerk job present that unique saw me more than just a person with the disability. Any who want to give me a chance. Did any to this day eubanks. He says that he slammed the right. Hardworking person in his office does donation. Absolutely you know The third episode of this mini series. That i'm doing. We also had a guest who has cerebral palsy. And that's one of the things that he said that i found really provoke it and it really struck me is that persons with disability. Many times oftentimes actually work harder than persons without because he wanted to prove themselves to want to show that you're you're able more results more. They you go. Yeah yes and and for your boss for your supervisor to say that. I find that you work. Harder just goes without saying confirm sweat. Carlos said in this episode that i was just talking about. So what are some of the things that you enjoy the most about having a job like working gay give me. Some kind of rooks gives me some kind of radim. Some beach do absolutely independence right. Yeah overdue everyday. Yeah yeah. I totally agree with you on that one. I think anyone can relate with that. I don't think it's necessarily about whether you have disabilities or not or especially need or not. It's working many times gift. People fulfilment something to look forward to something to feel like you're contributing to and that's totally true and that's why it's important that as employers who are giving people jobs and all about that we make sure that we are inclusive and that we are being open to ensuring that our job opportunities are available to prisoners who have special needs and making sure that the access is there so that also are created equally and treated equally ness. Talk about that so talk about lake. What you face on a day to day going grocery shopping going to the movies going to the library. You know going to work for example. How is it how are you treated. And how can you help all treat you better to be honest. I everybody has been good once in a while i get. I'll get people. Does jeremy or make groomed. Comments been winning to the gym. Someone asked me if i was his. Wow somebody asked you that. Yeah if you're contagious. I was convened. Yeah he denying just looked on omega data's guerrilla a lot of patients. I'm just going to see that i. I don't even know if somebody asked me if i was contagious. If i would just feel like no. I'm not contagious. I'll probably have some choice. Words probably have. I wanted this so talk to that person on this podcast right now. Let's assume that there are people like that. Who will listen to this episode. one day. Who say really mean things such as are you. Contagious ness hopped adopt person. Right now what is something you would like to say to them. If you're listening or watching this episode today. What should they know. What should they learn. And how can they do better. I'm not contagious personal. I'm just like you have feelings. You should think. Speak because you don't what the other point through absolutely and i would say do your own research you know like there's something called google google things in. Oh approach that that person with love if you must say something to some y you question working. Come up to me and asked a question exams. Don't be rude be ruled. Don't be knee in. Oh don't be unkind now. As just because somebody i saved this all the time on my podcast just because somebody doesn't look like you don't sound like you. The don't do some of the things that you can do. That you do does not mean that. They are less than and is our responsibility as members of this community that we are in as a member of the world that we treat one another with love with kindness and that is so crucial at a few. If i call my finger if you got your finger the bloodiest read the where we're out the in. Sorry we just worked outside absolutely so tell us like two or three aims that you feel can help us be more inclusive two or three things that you feel like as individuals as communities as a people what can we do to be better inclusive with persons with verbal posse or any form of disability be open minded.
"cerebral palsy" Discussed on The Unfiltered Real Talk Podcast
"Welcome back to another episode. The of podcast. And i'm excited. This episode with out maybe series with persons with special needs and this is episode is remarkable young lady here in alberta exceptionally remarkable prolific profound in amazing things here in our province so she neil instagram share story. And i was just excited to bring this journey. And this compensation to you. So i wanna let you know a little bit about our guest. Our guest is love greet. He's an ad lead a cyclist with cerebral palsy. She has one on the number of award and has been recognized. Leader here in our community. She has also won the hersal inspiration award from upper abilities. Logic society and has been recognized by a member of parliament's in kabwe. She has also done. Why don't number of racist including half marathon and has raised thousands of dollars for.
"cerebral palsy" Discussed on The Unfiltered Real Talk Podcast
"cerebral palsy" Discussed on The Unfiltered Real Talk Podcast
"Was like there was not enough infrastructure. And you really had to fight for a better life because there was no places to take around. I was talking to my mom the other day. reminding me about some stories up on my life and she's like you remember when people just park in the stall in mexico how they don't have a disability and they might anyway anyways so you have to still walk couple of like longer miles away for for the store so that was the point that in order for us to fight and do the awareness part of it for people. We used to get out of the car and like my mom. Just drop me off the car and he said go stand up in front of the mall door and just show people that you actually have crutches for. The other person calls coming out of the audiences little stall doesn't have that and he just walked normally right so we wanted to listen and be like. Hey look at me go him. And and how amenable to use the stop and i'm not able to use it because you already parked there right so saw important. It is very important to teach people so mexico didn't have the monterey even though we had a really good somewhat of a good infrastructuring compared to other cities they didn't have the axle education and the awareness to know. Hey you know what. I'm able to walk there. Because because somebody like carlos who needs to get out of the vehicle easier to go into the door easier right so and we started to realize that it was important also the fisher people out of it for people who have cerebral palsy. Which is a disappointed affect muscle and body movement. It affects really. You need to have a lot of physiology. Important part for me is that physiotherapy is huge in individual woods. Three policy right so we realized that the physiotherapy in the eighties and public sector was not a great as the private spot. I don't know an area on those there but the public sector could be free in mexico or lower compared to the private sector will be a higher costs right so your parents are like my parents. For example they had to be embarrassed a lot in themselves not only financially but even physically and psychologically to be able to to spend some time with me going and physio for fifteen years from h to age like for h. One actually to each fifteen to go to and in order for me to fishy. Oh we started to go to different places i and they. We came back into a private physiotherapist. Winning it end up shaping me to the person that i am today and i actually think her brady much or what you know off class in all those years yes of course i think without having the support from your parents on your family it would be so difficult and that's why we're this conversation today talking about supporting persons with special needs and specifically cerebral policies. What we're talking about today. And i feel like many times. We don't stop to think any started talking about the parking lo situation and that's huge like even over here every now and then you're dumb people out there who park aide handicapped parking called. And you know you don't have the sticker but you park there anyway but here you know the good thing is that the system works. We're asking among how to make your goose stand in the store and save. Look i actually physically meet this spot over here. If you are parking without a sticker you get a ticket. I mean it's a huge. Take it in fact in the will make sure that the next time you wanna park you think again you know so. I think that this is so important that you started with situation and i hope that our listeners will listened today. If you don't wanna lose highs of people you need to think about carlos and so many other colleges out there who really need our support. It's not sometimes about financial support is about being best just everyday things that sometimes we take for granted when we educate ourselves we stop and we should be able to positively change our behavior. And that's what we're talking about today by raising awareness so called us taty. Tell me a little bit more about the type of cerebral policy that you have so doing. My research getting ready for this conversation. I found that there is for me types of a cerebral policy. However maybe you can tell us what you have. And maybe just general background in understanding about sabre policy that we should know. Absolutely thank you so much for that question as well when i was actually reading about it. I know a lot of people posey. Because i've been doing a lot of research into it after i do my presentations and kind of do the awareness to people might cerebral. Palsy is actually the the most common one. which is the spastic. Sort of apology. There's spastic there's a toxic and this kinetic and there's also this kinetic wine and there's also mixed ones so you can have mix between toxic spastic. This kinetic but the most common one if you look at anybody who's listening to this podcast if they looked at the internet you realize that eighty percent ninety percent of individuals or more with super policy the with spastic super policy. Which is what i have. So now the difference with this despotic posey and this genetic. Suva pasi and as well as the tactic is disposable. Posey's you're always stands. Slow for simple when i get nervous. I'm memphis weighing up. When i get nervous. I get really tight in my really tense right even even individual without cerebral palsy. Like yourself or somebody else who doesn't go through pasi or any. Just you get tens outside. When there's like minus thirty weather aso outside in his thirty whether is doubled tripled tense amount. Because i'm already tendon of all the time the my muscles tense all the time because of the spastic that i have so sometimes when i describe what i suppose that i have like i said a little bit ago. Cerebral palsy is disability. Affects muscle embody body movement trait. So when i'm when. I'm sometimes what i wake up. I can even feel like i am seventy eight years old and and you know and and take me a little bit of time to walk. And sometimes i'll wake up and i feel like i'm fifteen again right. So it's dispersed. Super posy can can can do that to you and people might say to me. Well it's that's why you need it to do visual. Yes you can do visual. But because of the spastic situation you never know what what you're going to feel the next day right. So the disconnect weiner's impala in women so people can have involuntary movements people can have lose models like for example. Mine will be tense but some other people can have a little bit about weaken we. Can we can muzzles right a lot of people. Compare this connects abbasi with with Muscular dystrophy which is a disease is not a disability. The muscular dystrophy actually deteriorates you end up getting worse and worse over time cerebral palsy. You never the same all the time. You never get worse because it is just a disability is not a disease a lot of people when they look at me they go. You have muscular dystrophy. And i'm like no i don't i have. We will pause. It's as a difference. A complete different the disconnects rupa's you could be the same and same with the tactic. One actually competed like again. A combination of of losing muzzles a combination of titan and this time muscles not tight enough to make one which is a combination of both of all three one together. You know spastic disconnect and the toxic. What i want people to understand cerebral palsy so big until spectrum that people.
"cerebral palsy" Discussed on Good Girls Talk About Sex
"I definitely would say that i'm open to it. Is the person who you're currently talking to. Also disabled yes and that it sounds like that provides a level of comfort for you. But i know that when we started talking it kind of just came out of the way and i was like oh cool and because i'm very open about might actually we'd we are talking about. He mentioned using. Arches is widely used corrected. He said i'll have actually condition that i am told him what mine was just in a wheelchair And i was like any look right on top people And i was like. Oh let's go. Because that's what i have so i have one more question which is again a logistical question. You mentioned that you have help getting dressed and doing things like that and also that you wouldn't want to ask a care person to hand you vibrator so when you get into the bedroom with a partner. Do you need to have a third person. There to help and facilitate not of my heart is come drool helping with the lane helping them. That's what you have long precision with the personnel level. Yeah here's what i can do. Can you rate pitching now with the thing or no because if no we're gonna have regrettably mp is. I'm not really comfortable with the idea of. It would depend right like but when i'm not come and this isn't me is somebody that i need to take care of me being logged in that part of my life is very much mine and i want to possess own that are in my life heidel because also it feels i'm gonna extended the other thing feels like asking for permission um and i don't dealing i knew permission. Yeah like it's my body. I can do what i want. Have you ever looked into sexual surrogacy. I've heard of it. But it never been something that i've is floyd. I think i just go like role in canada exploited that way so i have a friend and she's actually been on the podcast before I can give you the link to her episode She works one of the things that she does. She works as a sexual surrogate. And sometimes that means working with a person who is disabled. Who wants to have a sexual experience directly with her. But sometimes it's with a couple where both people have disabilities and she helps to bring them together so they can have experienced together. I love it. Yeah yeah but it's definitely from me. It's on how the conversation and being with somebody that feeling. I can have a conversation with amway. Doesn't feel like i have to high of might disability to needs them lesson conquer ball. I swear that. I wouldn't date with my your with Really the super eight west. But i have a lot of her internal. They is gonna up to that because it added people non-disabled will tend to think it's adorable when when they were baby each other and i don't want to be a door. Yeah i have this rejection of the indoor in most must like my heart you but but that that's very different but i don't wanna be like vandalized of like. Oh you're so you You now. I am not. Yeah karen this has been absolutely wonderful. Thank you so much for being so open How can people find you online and failure work so you can all my blog at cleaning crip and all my social are there so whatever your preferred channel. I'm there all right. Wonderful so karen. Thank you again. I really enjoyed talking to you. I enjoyed it. That's it for today. Good girls talk about sex. Is produced by me. Leah kerry and edited by gretchen kilby. I have additional administrative support from laura o'connor and maria franko transcripts are produced by jan fellow. And i'm incredibly grateful for the financial support from good girls talk about sex community members at
"cerebral palsy" Discussed on Good Girls Talk About Sex
"Yeah it was easier for me to say. I don't want then maybe i can have. Yeah i don't know. I don't know if i can handle kids i i really don't i haven't done enough research on. I mean certainly people with disability do have But i don't know with the level of dairy that my regular case in it would be impossible grooming average child. I just don't know. But i also know that it's not don't know enough about it but yeah i want those name the Talking them went for like couple months. Now oh yeah. It's still long distance but yeah but like that would nude get back into that and like not feel like i was betraying the relationship i had before because of the way ended but yeah i want to one time kids i one tavern relationship with somebody who i used to say that i wanted to find somebody who could overlook my disability and i said that to a friend she said that was gross. She said you don't want the money. The tolerate yeah. You want to loves you for you. and i realized that that's very real and so now i always say i want somebody who accepts back. Yeah it's not. Oh i can. I can deal with that. Uses a i wanted to deal with. It could deal with that and now it's very much now. I want many seaweed You're awesome yeah. And i don't know what that's going to look like but it certainly i haven't given whole un at thirty. That i will find that with with them. And so i want that for you too. Thank you yeah..
"cerebral palsy" Discussed on Good Girls Talk About Sex
"You don't have a body you are I think people say oh you. You are not allowed to have onions like know. Your body is very very central in the way that you experience world and if you wanted to deny all letter because you despise in good i went through a large part of my teens and adult life. You're not gonna have all these jollity because you're like how could somebody wanna be yeah. I'm gross mainly to get the right way. Where now i'm like. No i'm not. I'm not grossen not just have bad body image do but i also know to challenges that day like no like. It's totally normal. Rhythm wounded saying you like oh you look nice or or you're pretty you're attracted to you or have you are down outlying however however there will say although i will block on instagram Who said explicit method. Because if you are a stranger. No i don't want universal pictures of course might go away. I the money now. But that means aj interrelationship to be Unions okay Terrible yeah so. Let's go back again to the relationships that you've had How did the two of you negotiate sex. We in all that many times because the pool roques foot raid. Before i got two good so he didn't end oblivion school so you would have to come up and believe me. And he wasn't able to do that often so even though he denies like eleven months we only like dot you gentlemen verson link a hand but it was very much like it was awkward and i think i wish that i had taken more time to figure out what i like and things like that and then things we do due largely. Were not enjoyable. Because i know right. Yeah oh it makes a lot so and like now i would do things differently. Unlike a said her were grounded in the four plane. So i realized that like i valley mental senior. Kansas go. yeah let's yeah sure. I know there's never been a beast of the night i'm gonna into an like with their culture about life not wanting to disappoint by their senior to not wanting to sadism body like. I've nine doing this early making young It's interesting because i work now. People who've experienced sexual violence a lot of the conversations conversation around non consent. And and i'm not saying about experience goes. I was okay with what was going on. But also think when i was in when i was uncomfortable i didn't know how to you like Not working yeah. I'm sorry. And i want women especially women men and women is not and people all gender identity is not strictly of a woman thing but eighth think girls are hertzel. It's about your heart not there. I realized that. I was not into like the more vanilla parts of being that i was more into like king ending. Like i think it's funny because i've not really had a lot of sex..
"cerebral palsy" Discussed on Good Girls Talk About Sex
"I think it's just members analogy like. I'm lucky person so like that part of asked me other if i'm not like the physical servers is gonna fall flat. Yeah yeah i get that. And and i think you're right. I don't think that that's a disability. specific thing. there are a lot of us who need that piece of ourselves that intellectual piece to be satisfied before the next piece happens so you mentioned before we started recording that you have cerebral palsy. That you have had some mental health issues and that you've also dealt with an eating disorder. And i would be interested to hear anything that you're willing to share about. How each of those things has affected your relationship with your body and your sexuality. Sure i mean i spent most of my teenage years twenties really eating body and one of the ways that i started developing a more healthy relationship should with my money was through. Will you've seen myself on instagram. So you sell makeup in making myself field beautiful. There's as. I'm sexy like knocker. Anyone but myself so i take like hundreds of dealt. You don't post all but yeah. There is a level I have to like be feeling myself before. I can like being relationship and i'll a my feelings towards my body. I think physically winding malik Album like eating disorder and things like that. We're like other people expecting roddy to be a certain way for them and my body like even in the sense of having a literal therapist. Say to me well. Of course you hit your body. Worlds my body to god. That was when i was in college. I'm no studying so short. I wanna work with people who have Complex medical conditions and also the issues. Tell them gatling culturally inborn service. Yeah that are not going to retraumatize. Ben yeah because i think or i might hide of physical therapy Me you can't in the freshman fifteen because then no one will be under. Take care of you. Where's my relationship with my body Fraction in a lot of kind of finding my way back to being comfortable in my body was realizing that other people could find the attracted lake. There was nothing wrong with that. There there is still a part of me that wants. Somebody finds me interactive on like what. You're davidge fetish. Because we're so tie that disabled ours was in in that way. That people aren't supposed to be that way that one's only dies. I even sit there. And i'm like why but i think largely exploring sexuality seeing myself as desirable in some way both to myself There's as made healing evacuated like. I'm not broken on not defective. I am woman. I mean dole lake. I can be useful on sexual and all these things and it's totally fine. And i think that these things confected Merodon vic shoddy that. They delayed them. Because you asked me about mike. Mike my journey there and i think a large part of why wasn't that was because i was so disgusted by my body that i was like. Why would i ever find pleasure my body if i think my body and and i think that a lot of healing had to be finding ways and center being destructive to my body the my body frustrating to me was finding ways to jeremiah body selling make up and relationships and like allowing up to exploiting Bingo that has been a huge part of that process of heading into greene integrating my body with my game. Like i'm a person i am abiding. It is okay..
"cerebral palsy" Discussed on Good Girls Talk About Sex
"Yeah sure not. It's not there so I want to ask you more about your your former partner but i just hear one oposite asks. Have you ever been involved with somebody of a gender other than smell. No but it's something that you're still interested in yet. Yeah that's exciting. There's new territory to discover. Yes so okay. So let's go back to the the moment on the train station Whatever they call that the platform is it. Okay if i ask you some sort of logistical questions about how this word okay. So it was he also using a wheelchair. Yes so it takes a negotiating. It's ager. I probably wasn't a super spontaneous moment no with that. Would that's awesome about dating another disabled person because we have long conversations about how everything would work That sounds really weird. But it was oddly comforting to me. Because i was like oh i can talk about this. You don't expect my body work lake somebody on. Hbo show way. That's hugh your that. My body doesn't work that way not that anyone's body really especially when you're visible this ability. Your body fundamentally doesn't work out. Yeah and it's really hard Somebody like. I need help with everything. But i have reclaimed the word cripple so i'll commerce over purple and so what he had a cripple one and i won I'm very proud. Remember his bomb in what we're scaping like trying to open cans of soda ridiculous and Doing it he's holdren. She meal looks and she goes. Did you just call her. Graphing a grip one She she is and they go through the he instead and she looks at focus. You deserve judge. Look but i tell only disabled lake. I think for me largely lake. Why is a rousing. Early ship gyp is being able to be fully my style. Yeah so like being like have these conversations with him that were both buried into men. Also very logistical are so we wanna make. Our house is going to have. Yeah but like you say. We can't expected to work like this is for non-disabled folks that was very real and i think that the i have of somebody who doesn't allow some kind of disability that they like as much as they can be understanding they still think that it's gonna be the same As being was somebody not disabled. and like per lia lee's they're just saying they can't recruit -gistically like positionally. I cannot i feel like already as women. There's an accident of what you're supposed to. And then when you add to that disraeli amend by two is you had to be super feminine to be considered a woman off. I personally choose to be women. Because i think it does come from being decentralized but also is like my wailing nolan. I am a girl like this. Vitamin is really important to me. So yeah. I wear makeup address everyday evening. Warren team But yeah thinks alec sects More in the the actual act of sex for me. I mean Much experience in even the experience. I do have really in a way when you complete you mean. There wasn't penetration or there wasn't orgasm right. I've never. I've never had okay. So i i'm sure it and i just never have an so for kneeling. The most rounding experience in that regard always been light talking about things other than actually doing the quebec writer. Win me over my head over. You win over anywhere house. Yeah it is always. I mean lashes ally and i don't think that necessarily than anything to do with it..
"cerebral palsy" Discussed on Good Girls Talk About Sex
"But i remember i told my family reaction and then he said me flowers for a one zero. Everyone being like wealth. I guess this is a real base about. Yeah like it was just like okay. We accept this now and it was really cool. Because i felt like. I didn't explain myself dan And i could just be milo and explore like why what meant for me to be in a romantic relationship. Unlike ended dole romantic relationship with a woman. Because i didn't have dates. Where nam like my body works differently than most people. Yeah he gets his too so it wasn't weird. Yeah just like very normal. I'll never forget that. When i got to school i was meeting with over vast areas and i guess she knew him but she didn't know that we're dating and she was like i know somebody that you need to meet because you gotta get along with house on and then had a picture with on my phone and my phone was on the table and she looks at. How do you know him. And i'm was always my boyfriend. Of course you dated..
"cerebral palsy" Discussed on Good Girls Talk About Sex
"A sexual person and it was just. I never dated anyone before. I did him and i never been gyp. My first cancer british train station was at big. I like like arnold jibril devlin back was really charged. Reme- events out. We broke up for berries rhythm fixing greater he died. Oh my god. I'm and and that kind of inform feelings about relationships going for for her a one time. This was about five years ago. This offense but it's only now that i've started escorting because they're very long time where i was just like no. This was my person i guess. Sean yeah i think he's on the other person like i can't see other people seeing you now way Am i really struggled with that. But i credit him with all the bashing a body of the duties of i do on. Instagram came out of a conversation. I had with him where i was lining the hallways you about the injustices of world. Let me saying that. I didn't like. I didn't see people who looked like the in media and he goes. You could change that. And i was an then when he died. I really wanted to hold on to how he made me feel about myself as somebody who was beautiful and desirable and could we want saying in that way and i wanted to present to the world that disabled doesn't mean ugly arena undesirable. It's not like my hashtag is disabled is not a bad thing. that relates to relationships too right because a lot of people like you taught me all my good good quipped clawbacks would ask me clubs but a lot of people make. I need them. I'm in a wheelchair so oddity when they first meet when in the first question in kenya sacks cars my response to that now the way well you'll never find i love it. We used to joke about the things like or we have a joke that in anyone's today in public collins adorable we've just had us are making out. Make them. i mean. I mean it is idea. Disabled people can't or don't experience that part of life and they do in for a long time. I kind of shut my thought off to it. I think largely. Because i thought no one ever want in that way because absences. I taught me that. I wasn't desirable that way so you you have cerebral palsy correct. And that's a condition that you've had since you're born. Did you do any sort of self exploration or like getting to know your own body when you were younger. Not really not until. After i was in early and realize that it was okay for we'd have these feeling and it was totally normal and again kind of like when from their bread. I think for a long time not really like how i grew up. It wasn't as like taboo in my household then i went to college. I got really involved in like christianity for a while a really. I'm i'm still. I still of a christian medicine much more liberal. We're worming body of disability affirming. I always say gee this we oughta church churches. But i do believe like in idea that were meant to love people where they're at my feet. What's like to is loving. People were there but i i think heart of it being wrong. That was these people who are not exploring part of the house. So i don't have to feel weird that i don't feel like anyone could ever want in that way..
"cerebral palsy" Discussed on Good Girls Talk About Sex
"I am really excited to have you here. We have had a little bit of contact on instagram. And i've just been really taken with your feed and how you present. Issues around body positivity and able ism and all of this and so. I'm so excited that you said yes to doing an interview. Thank you for being here excited. I i feel like for me coming graham. A lot of body. Haiti doing auto work around body by the dvd or even body neutrality. has been really important and just retain this idea that people aren't vacuum in were complex and we have relationships sex lives and desires all nearby and more like really important because he was idea that were like eternal children. And i'm thirty. Get all i'm like. I am not a child right. No i really want to interview a broad variety of people so we get lots of different points of view. It is especially important to me that we present people with disabilities as human sexual people. Because like you said so. Often people with disabilities are seen as completely as sexual or non sexual and while it may be true for some people. It is definitely not true for everybody. Yeah i i like i he actual suffer me. I have that with a really strongly relationships with someone to feel comfortable in that physical relationship with them. Yeah but i think the bar either. Somebody's fetish wants to try out in the air quotes or were just having. I like how you said. Non textual resumes all. They think if actually bob sexual any bit does even matt No this is my choice. Not gated this. It's mortgage assumed that don't or even further than that. We don't that we shouldn't Yeah there's so much that. I wanna talk to you about so. Let's dive in and the first place i start every interview is what is your first memory of sexual pleasure. I don't actually know prowling when i was in my twenties and started meeting my burst way for new. Like how can opponent seven israel realizing that i could be attracted to somebody and have those feelings somebody and you in more than like my feelings that somebody could have. Those feeling that towards meeting was very much break uh-huh sexual weakening up like you're allowed to want these. Thank you in your body. Xactly at you are are allowed to one these things. You don't have to center or more able bodied or have straighter key or slick. I can name a million things. But i think my boyfriend at the time was also visible and we had a by continental relationship. Oh my goodness. I can get into that war but so we would just all the time in we go talking about like disability justice to the fact that he thought it was the girl who were elder with Whatever become resistant to your web. I could be like fooling me in my activists away with him but also.
"cerebral palsy" Discussed on Good Girls Talk About Sex
"Welcome to good girls. Talk about sex. I am sex and intimacy coach. Leah kerry and this is a place to share conversations with all sorts of women about their experience of sexuality. These are unfiltered conversations between adult women talking about sex. If anything about the previous sentence offense you turn back now and if you're looking for a trigger warning you're not going to get it from me. I believe that you are stronger than the trauma you have experienced. I have faith in your ability to deal with things that upset. You sound good. Let's start the show. Hey friends today. I'm speaking with karen a woman. I've been following on instagram for quite a while periodically reach out to people who have public platforms and invite them on the show and not only did karen say yes. She offered to use her real name. The fantastic thing about this is she mentioned how she uses instagram as self care and for advocacy during our conversation and you can be looking at her feed while she's talking on instagram. She's at k. Hit burger k. h. i. t. s. e. l. b. e. r. g. e. r. And that link is in the show notes. Karen has cerebral palsy and uses a wheelchair for many years. She bought into the idea that as a disabled person she must be non sexual and it would be impossible for someone to find her attractive at age. Twenty three she discovered that none of that is true. We talk about how disabled people are frequently. Both fetish is and infantilized when it comes to sex the ridiculousness of social media rules around sexuality and the logistics when to disabled people want to be intimate karen is a thirty year. Old sister gender female. She describes herself as white queer monogamous. And dating she has cerebral palsy and a mental health disability and has previously had an eating disorder. She describes her body as fat. I'm so pleased to introduce karen karen..
The Missing 96 Percent of the Universe
"Have you ever taken us three d. glasses of the cinema. The picture looks blurry and it can be difficult to see exactly what is happening. This is because three d. Glasses treat our brain into forming three d. image by controlling the color of the light that each high-seas using different filter. In each lens. You could say sometimes seeing things from a different perspective can make them look clearer and easier to understand. This is exactly the approach that has helped me with my research looking to answer some of the most fundamental questions. We have about al universe to put this in a different context. I could see some people finding my voice difficult to understand due to my cerebral palsy as an insurmountable barrier to giving a tedtalk even if i saw that there are alternative ways for people who have difficulties with communication to speak to an audience. I could be put off from using them thinking that this dry computerized voice has no life in it and would put you all to sleep. Within five minutes alternatively i could see the dodgy female british synthesized voice as something to be embraced pepper. This talk with jokes and gags sometimes at the poll communication aids expense and hopefully make you laugh and keep you engaged with what i want to tell you about. Luckily for you. I have chosen the second option. And what do i want to tell you about. I'm here to tell you that we have completely misplaced ninety six percent of the entire universe. Everything in existence dotson awful lot of missing socks. I am a particle physicist analyzing data. From the large hadron collider at sir in switzerland to on the most fundamental questions about al universe
An Interview With Bernard Lee of 'Poker Satellite Success'
"Hey poker peeves. I'm so happy to welcome. Burn ardley to the show today. We don't do interviews often and when we when we do. We make sure that they're very good. Guest bernard is the host of the long running bernard lee poker show fourteen years now. Incredible record right there. He achieved thirteenth in the two thousand five world series of poker main event. May many of you probably saw that one right there. He's a longtime player. Longtime coach and author of a brand new book poker satellite success. So welcome to the show. Bernard i appreciate it have me. Yeah definitely thank you for taking the time. I appreciate it. So you're up in massachusetts right. That's right that's right. Yeah what's the weather like up there right now because it's pretty darn hot over here in california it's You know it's been a very weird summer. We've had some really really hot days like in. The nineties and muggy today is kind of an eighties muggy day but a weekend before it was in the fifties. I mean it was. It's been a really crazy a summer so far but that's kind of par for the course with this crazy year that we've had to for sure. Yes super crazy last year and a half and you've been you know exactly exactly over here in california dealing with a heatwave incredible proportions you know but seems like we get that a lot you know in a. I'm sure we'll be experiencing some fires this. You're not really looking forward to it. But i got my masks already. You know indoors. I i work from home. Do you work from home as well. Yes yes yes. I do a lot of my stuff from home and whether it's Coaching or whether it's consulting are you know obviously playing. We have to hit the road and do that. But you know Do a lot of my stuff from. Oh yeah for sure syrian speaking hitting the road. Are you going to the wpa this summer. Yeah definitely got a. I'm going to go. Well yeah. I'm gonna go play The online a bunch of the online events not a lot of them probably about five or six of them And then a literally planning my trip right now for october. I i love flying deuce to seven. That's the game that i play a lot of do seven no limit. It's very unusual game but I final tabled at three times. So far finishing runner up once and so i really literally start my first trip focusing on that event and it pivots around bad events or whenever that event is then i kind of go from there This year. it's in the middle which is a little bit unusual usually. It's near the beginning. So that of changes my setup a little bit but you know it is what it is. I'm i i already booked my flight out there now just booking all my hotels and all that nice good so isn't going to be like a two three week trip The first one was supposed to be only a week. But i also do a charity event out there for the one step closer foundation. We do it every summer. usually it's been a planet. Hollywood has been a bally's lately. It's been at aria And if anyone is interested great. 'cause the president who i worked very closely with has cerebral palsy and he started foundation over ten years ago. And we do a poker tournament every year. Usually first prize is anywhere from five to ten thousand dollars with a lot of really cool prizes for the final table so It looks like we might do that again. Obviously we've we couldn't do it last year so we might do it again and so big depending on that. we'll see. it's probably going to be a two week trip to start. Ironically the end of the two weeks is the seniors event. And i actually quote officially. You'll yeah i would've qualified last fifty one now so i would Qualified last year so Yeah i mean. I'm probably a dinosaur right. Now when i say that but feels like yeah yeah right niceness. You are going to play in the senior event or may yeah no. I'm definitely going to play. A lot of people have always said. That's a really good event to play in Like i said. I was excited to potentially. I played the online version of last year. And i got a bunch of people you know. Messaging me being like. What are you doing in this event. I said sorry achieve fifty. It is what it is. I mean. I can't do anything about
Cognixion ONE Launches This Year With Brain-Controlled AR
"So start today off of the story that i just found over at the robb report written by brian hood. And it's called. You can control this new hands-free augmented reality headset with your mind. At talks about the cognitive. Let's see. Oh gee i i o n one a. are it's a hands. Free augmented reality device. That can be controlled via brain computer. Interface basically controlling this entire headset with just your thoughts. Now unlike. Many of vr. Headsets ar headsets and these other things that are made this one was actually made with assistive technology in mind many of the other ones are made for entertainment for gaming for different things like that and then later on we find some different ways that it can help in the assistive technology space. This one was actually made with people in mind with complex communication disorders like cerebral palsy or ls. Now it does say that. In addition to the brain control interface it can also be controlled by head movements voice commands or a physical switch so basically the ideas as six non invasive electrodes that are placed on the wearer's head creating a live connection between the user and the device. Now it's not going to read your mind and not everything that you're thinking but it can identify brain activity related to looking in pointing. So if you really think of i control devices and other ways that folks control augmented communication devices. This gives them a whole new way to be able to do that. So that also as machine learning algorithms that will improve the connection between the where and the headset overtime so like many other devices this is actually able to learn from you and to see what you actually want and how you might be able to do. It doesn't have a whole lot of information win. This will actually come out. Does it as they started some beta testing programs. But really the ideas that you would wear this headset and much. Like an aa see device. You would have either different icons or you could actually just type things out by basically thinking of where you are pointing or where you are looking or where you might be moving your eyes or what. You're trying to get out.
My Journey as a User / Developer of Assistive Technologies
"High pk here in this episode. I'll be talking about my journey as a developer of assistive technology. Any journey has ups and downs and my journey has had more than its fair share. But this journey continues. I've had cerebral palsy since birth. My first exposure to technology started from my college days for my entire childhood slash school days. I had absolutely no exposure to any form of technology when i finished schooling. I wanted to do computer engineering. But i was told that i couldn't because i couldn't draw scientific diagrams and i needed help with my love exercises slash practical. I had to settle for commerce. Even when i did come face to face with the computer. I quickly realized that. I couldn't use it like a normal person. I could press only one key on the keyboard at a time. And i also had multiple problems in using the mouse so nothing about computers was going to be easy for me quickly. I spent some time in trying to figure out how i could use a computer. Despite all my limitations the answer was that i had to use assistive. Technologies every user needs to use a specific combination of assistive technologies to be able to achieve an optimal level of performance slash productivity. Any less or more than this optimal level and the user is not able to function adequately in previous podcast. I have given details about how i use my computer. Never had i imagined in my wildest dreams i would get an opportunity to work on a couple of projects in the area of assistive technologies but as destiny would have it. I did get such an opportunity barely three years into my career. My experience in these projects was more like a roller coaster ride. Initially everything was good. I was asked to work on some software. Which would be used with the hardware device resembling an access which
Why You Should Know About Team Hoyt
"Before we jump in little news came across the running world last couple days and that is that dick hoyt died. Yeah that's right. He was eight years old and been suffering from a prolonged illness. And people may recognize the name. Dick rick whitehaven fixture of the boston marathon. Since nineteen eighty when dick. I pushed his son. Who was born a spastic quadriplegic with cerebral palsy. So they were very recognizable. They had actually begun. Doing other marathons around the country in nineteen seventy seven and throughout multiple decades. They did dozens of marathons and triathlons together Before the elder hoyt retired from running several years ago. I think it was in two thousand fourteen. They ran their final boston marathon together but he was such an inspirational man and will definitely be missed for sure. And that's team hoyt. If you haven't heard their story definitely go. Google them and read about
Dick Hoyt, Who Ran Marathons While Pushing His Son, Dies at 80
"Road race legend Dick Hoyt has died at the age of 80 those who attended the New Bedford half marathon over the years. We're familiar with Dick and his son, Rick Hoyt as the father son duo that ran hundreds of road races together with Dick pushing Rick, a quadriplegic with cerebral palsy in his wheelchair. To first ran the Boston Marathon together in 1980 completed 32 Boston marathons and more than 1000 total races before Dick retired in 2014, citing health
Dick Hoyt, Boston Marathon Icon, Dead At 80
"Dick Hoyt passed away in 13 years. And again anybody who grew I grew up on the marathon route. This is every time that they would go by as the most inspiring moment of the race for anybody who doesn't know thirty two Americans with his son Rick who was a quadriplegic born with Cerebral Palsy and he ran it. He ran the marathon 32 times. They did three Iron Man's he ran one marriage with his son and two hours and forty minutes pushing the chair. The last one they did was 2014. This was obviously one of the like the massive highlights of any Boston Marathon in anybody if you were here it one of the things have been SpongeBob. Me to run the marathon. It's just and dick hard passed away today at the age of eighty so and inspiring story, you know, a true athlete terrific father and a million different things there and in just a piece of Boston if you grew up here that this is something that like this meant a lot. So this one shook me a little this is one of those where you feel it today. So this is what I wanted to give a quick shout-out to to the Heights and Dick Hoyt and anybody who ever, you know experience that, you know, you know how special that was. that that that happened to that
Freelancer won't let cerebral palsy sideline his sports writing career
"Blake. Bombed gardner is a freelance journalist from naperville illinois just outside of chicago. He's trying to get established in the journalism industry but faces mobility issues due to living with cerebral palsy. Welcome to the podcast blake. Thanks michael happy to be here. Yeah i'll i'm having heavy on the podcast so so first of all. Tell me a little about yourself. Where'd you grow up and How'd you end up getting interested in sports journalism. Well i've been a sports all my life and grew up in naperville so unfortunately early left left talent as much as i would like to a group of sports fan and obviously you'll could play because of because miserable palsy. So you'll just try to get involved in any way that can. I grew up to be kinda encyclopedia of sorts growing up. And that's how. I got acceptance. You know much by peers growing up in school innocent. So you're the the writing acumen kinda came later in high school and stuff like that and wanted to try to pursue journalism as a as a college major but my background in sports and my passion for it has run deep. Since i was young. And just trying to learn. You'll every fact. Savior stat. That i can and just kind of tried to soak all that so-called so tell me about the freelance gig will what sports are you covering now is the lead prep for naple son. Which is the local paper here. For off periods from march two thousand. Ten until let's call it March of two thousand and nineteen was Football boys basketball and baseball. So i was in effect doing what a staffer would be doing covering those. Those three beats you'll features. Gamers notebooks all area packages. You any recruiting stuff you know. If we had a certain certain athlete commit to commit to a school would do stuff on that so just basically doing what a staff writer would be doing. Just without title that goes with it in the cash comes with view approached us reached out to us talking about being a man with cerebral palsy. Trying to find a job in the journalism industry. Did you encounter any difficulties in doing your freelance job. I guess the only difficulty was or would be like for example football. You'll you got some reporters who could you watch from the sidelines. I can't do that one. I can't stand for long periods of time to far the bigger issue is being able to grip something in my left hand and obviously being able to to write with right hand so i football. I'd have to be up in the press box. Computer keeps my own. Stats with an excel spreadsheet. Keep a play by play an steno notebook and then obviously you're not being able to drive so i'd have to look enough you my mother's kind of saint so she would be able to drop me off at your whatever high school i'd be covering a gay matt and obviously picking me up then you'll with the pay per bidding sunday wednesday. Friday paper deadline wasn't as big of an issue. So i'd be able to file once. I got back home and then just file with my editor and then it would go online and probably late friday early saturday morning and then it would run for brit on something as far as the deadline issue. Goes you know you were say a staff reporter. Do you think that you'd be able to find ways to adapt so that you be able to meet deadlines. I think it would depend on. If if it was y'all we talk seven day week paper. We talk in your six days a week three days. I think that number one would depend. Beware you covering something. And how far of a distance do you have to go because again. I'm not somebody who who would go to like mcdonald's or starbucks your to file on a pitch to use your wifi so i've never really done that so i think it would just depend on the type of publication writing for and where where you're covering something in relation to where you live. I think that's probably the biggest the biggest impediment that i've encountered just from a standpoint of applying for fulltime work with papers. Because you're the sun was kind of a nice set up because you're only dealing with six school. So like the daily herald in arlington heights. Illinois you could be dealing with twenty or twenty five schools with dupage county. And i could never do that so. The son was a good setup just because of the limited number of schools and they're all relatively close by the some of the challenges. You mentioned you know such as going to the mcdonalds or whatever the file. I mean you know there are adaptations to that. You know you can. You can get a sort of a mobile wireless thing that you can set up. You could sit in your car or you could find a space where you could write something up and file in a shared some of your clips with us and i was looking at your your stuff on medium. I mean you're really good feature writer. Do you have a real sense of how to tell a story. And engaging story you know he had a number of interviews some sports people talking about you know the challenges they faced. I can't remember which one it was. It was about a A pitcher from creighton. Who went on and talked about a big league game. That was his first big league games. And that's a real human sports type feature that you know then. I thought you did really well. Yeah mcnicol shortstop maple central grad. Which is where. I went to school. Full disclosure that he. He played baseball three years at creighton and got drafted in thrown by the royals in two thousand and sixteen made his major league debut with the royals in may of two thousand and one thousand nine. Yeah i and also you had some stories up there about your experiences. I guess you you were pursuing job at espn in their stats department. Concerned told me about that experience. You'll couple years before that of this kind of full around twitter and peter vesey started. Follow me at twitter. So then i started engaging with pam kinda explaining your my story my journey. What i'm trying to do. Would you be willing to to look at somebody stuff. And then the all august of two thousand eighteen after a previous interview with the spn. Two phone interviews. It didn't go particularly well in terms of making the next step and really no fault of my own or at least i didn't think there was any fault on my own. So he said why. Don't you put your story out there. You'll we could put on facebook twitter. He was writing on patriotic at that point doing some work on his own so he was gonna try to help me get it out there. No so we did that august. Two thousand nine hundred got got some nice nice feedback back. Although the only person i really heard from wanted to actually meet with me was mark boyle the radio play voice of the pacers and he and i met in chicago in october before bowls. Pacers preseason game. The festival would six months. We did a follow up the wwl two thousand nineteen by bringing caught wind of it. And then he forwarded onto norby williamson. Who's a it'll bigwig executives peon and then you'll that eventually led to meet talking with a recruiter. Espn by the name of stacey williamson and then we. We got the point where i went out to bristol interview with. Espn for today's april third and fourth two thousand eighteen for job in their stats and information group and you know unfortunately a couple of weeks later found out that i was making it to the next step in that process but i made a strong enough impression with the giro up that i met with on the second day of an interview. And we've kept in touch. And i ended up applying for and interviewing for their production. Assistance program called. Espn next at a couple of interviews in march of this year and then found out in. May that i wasn't making it the next step that process which would have been an in person interview out bristol but obviously with covid nineteen that process. I'm sure got put on. Hold on that. You're what happened with that. So you kind of kept in touch with her the jar up. So we're still you'll let door. I don't think it's completely closed. But she's she's one of the few advocates that i have and i don't have a lot of them so you know trying to keep that door open as best. I can
Why Carrie Snodgress' Career Didn't Go Anywhere
"But she stayed with Neil Young on the ranch and as you can imagine, she did a lot of drinking and cooking for the men and her man mainly as she told me and she said all she wanted to do was have his kid and be a mom. And his fate would have it. She did have his baby in 1972 and sadly the little boy Zeke was born with cerebral palsy. And at first Neil Young was very loving, always there for her and the boy, but then he began to get distant and he was either too drunk or too high to care a lot of the time. And I mean, Carrie was no angel. She could put away the liquor, but she swore to me. She never took anything harder than an aspirin. Booze was her poison. Then she said, Neil just started hanging out with the guys going to LA alone and not calling for days and meanwhile the kid who was severely challenged couldn't even talk. And then one day Neil comes back and says he thinks it's time for her to leave. So he sends her and the kid to LA and his lawyers begin to shuffle them between all the homes, kneel either owned or rented. And in the beginning, he sent money on time and the kid got good care. And then when he decided to marry the waitress who worked at a diner two miles from the ranch named patty Morton, he just cut ties with Carrie and his boy. And then carry out the sim for child support and all that, at least shit. But oddly enough, his next woman, patty, gives birth to another son, and that boy also born with severe cerebral palsy. And then eventually, Carrie was able to get some work, but it was never really the kind of work she deserved to get. And, you know, on top of that, people, the word was out. She chose to be away from Hollywood for almost 7 years. Hollywood doesn't like you when you do that. You're out of the club. And then sadly, the mad housewife character that made her name kind of followed her became her life because she was not very good in her choice of men. She began dating this musician Jack Nietzsche, who worked with Neil, and also was Phil Spector's right hand man. He wrote the theme songs for one flow of the cuckoo's nest and for an officer and a gentleman. But they broke up in one night, he breaks into her home, and he threatens to kill her. And she told me he shoved his pistol in her vagina and threatened to pull the trigger. He pleaded guilty to threatening behavior and was fined and put on probation for three years. And then 1981, she marries this painter Robert Jones, but that fizzled out after a few years. And she would tell me these stories and she would cry a little bit and tell me, you know, there's not a lot of men to want to stick around with a woman with a severely challenged child. You just make me feel like shit when I heard
Justin Timberlake Donates Wheelchair-Accessible Van to Teen with Cerebral Palsy: 'You Inspire Me'
"But you when you Justin Timberlake is taking some time to do some good. A singer and actor heard about the story of Jake Stick a 17 year old with cerebral palsy who was trying to raise money to buy a wheelchair accessible Van. Jake and his family were raising money to buy the van. But the SexyBack singer decided to buy the van for Jake and told the family to keep the $35,000 they had
"cerebral palsy" Discussed on CrazyFitnessGuy™ Healthy Living Podcast🥗
"At may not very same but My parents now As artistic I think My cousins neil But as some as summa on the autism expect doesn't always know that their autistic Ah for instance I wasn't. I'm just gonna give you like Get kind of a gas an estimate. But i probably didn't really figure out until maybe probably may ninth grade may test. Maybe maybe even love later in high school. Because at that ain't i was keeping a secret from it button Like i was. And i think i didn't. I knew that i was in a smaller class. i it's not like i really paid attention to the classes. I went into the classrooms. I just thought as i My class which isn't a smaller room. Because yeah i don't know you didn't. There's only so many rooms a big rooms and and skull. So i just didn't know that they just kind of I didn't know if they showed this in that room. Just because that was just the room that they have on hand and plus i. Maybe somebody could call me naive. But when i when i was growing up i absolutely hated public schools. Ask anybody Knows me very well. I hated public school. I even just that dad. His school in general and because i was studying but as lying things i didn't like to learn except for except for Graber on my classes were basically in special education and my teacher made science fun. And she's like oh you got to deal with. The science experience mincemeat in highschool. Wait until you see it while my at the haskell i i don't think guided once science experiments over there was the lamest experiment world. That's what they experiment was as subtle lane that you see how lame we can be in the whole high school years science experiments whatsoever. Take the fun as girl who takes the school and so And so you have great teachers or you don't and what the funny thing is is that Intel i did my own research on my own disability in highschool it No-one told me. And until i put the burgers and asked questions. No one would've told me so. Even though i was diagnosed with the back in eighty seven. I didn't know the complexities of it intil. Thirty two years later. I didn't know that it was a no odd disbelief. I didn't know that. I would need help for the rest of my life. But now that i know that i have a diva and truly appreciate the help that ideal out. I can also appreciate I'll how and stuff as well For the years. I didn't know that. No i'm i found my own accord and i probably have to say i don't think i would take a very well. Somebody told me. I was autistic because at the time. I didn't know what that meant. Untie google bit by now. I kind of look at it as it makes me unique Doesn't it miss strange Tie and this is no promotion but and this But i had to say. I am tired of all those have influencers slash celebrity slash. Celebrity influencers is saying autism. Needs to be cured because it really does not need to be cured cancer. Lean and all just put this in now distance. feel better i done research on vaccines and autism. I actually in heist go vote a paper on vaccines and autism and this this thing about vaccines and autism No it's not true at all by science and so vaccined don't cause autism at all so it's not doesn't need to be cured. C p The pe- i don't care an all Swap into i 'cause my isan amadiya on my desperate about this but all balkan squawk that there's not enough awareness about cpi this enough research about cbs. I don't know how she. I don't know if we could do anymore with about autism are sailboat palsy. We need a winner now. We need to have people get the stick out of their ass. I'm soy but this whole controversy about autism is caused by by vaccines and ceo balls is salable. The give me springs strength. I definitely agree with you. Because there is i have to say it's My by a man's i'm not like Is as..
"cerebral palsy" Discussed on CrazyFitnessGuy™ Healthy Living Podcast🥗
"I think I think if this episode is too depressing. I think they should change directions as because iowa to get off topic but my my before Is die this episode I read this reading class and the last two readings reread mazda. Depressing thing i ever read in my life and i was like this is great and chris rate during the interview on nine. Eleven like this. I'm better days getting better. Okay so how can we make this show up books. I i am working. On my twelve teams. They're going to be published by Publish I do it. While i do it highland for the Wind audie of my publish works. It was self Published work. So i am planning. I want to write twenty books in a span of my lifetime. But i am working on twelve and thirteen as we speak their mind. If i ask how old you are not trying to know. I am so diesel. Years old. And i am living with my stomach. I lost and mine fan base knows i lost both my parents One in two thousand ten. I lost my mom and then in two thousand and lost my dad. She's i'm sorry to hear that. So i've out with both my pants. I i bet you could hit that. Twenty book goals before i plan to do it. And yeah i after. I get my journalism late mind. Journalism lee is taking up the other than podcast in. It's taking up the majority of my time now. I definitely not a everything is taking up. Time I don't last retarded i I i just finally hit five hundred Tele plays on my podcast. While the good news is i have been knowing to like podcast feeds. Because people know it's and so it's an episode comes out all shannon so you'll get more podcasts. Being plays in the you know what to do with because it's me definitely. I was wondering Do you ever feel Ever feel like I want to. I never liked disability. But do you ever feel nca- what makes you you. You I'm trying to think of the different more. Because i i absolutely hate the disability. Because it's like the towns disabled my gift able. Let's let's say that definitely able okay. Let's go with that then do you. Do you ever find it. Hold you back when i learned about the complexities of cerebral palsy. I had to do my own research so to speak i I knew something along with me. When i was six years old and kunda kasaka ball straight and then will is in that and then when i was in seventh grade. My mom sat me down and said you have c. p. wall. By the time. I was in high school i started. Google leans ep and did a little Stolen in my pocket and realize how huge by disability was and then I i had to go get a side called the exam for something else. And then i realized that the two words ataxia spastic the psychologist put in flint of the cerebral palsy. I realized k. Do scary woods. I don't know about but yet they have something to do with me and i i- taxi bassett. Cerebral palsy is one of the most common sample policy. Don't and then In two thousand. Nineteen i was. I hit bottom after losing my dad. And so i i again. The journey was. I am curiosity researcher. That i am i asked Physical therapist and pt student. I said well is salable. Palsy bone and joint condition on condition. They gulfs look at me and said when you have no logical condition and it was so interesting to me that no one said to me. You have sample palsy. This is what it is no one. No one said that to me everyone google. Everyone thought i knew. And i actually called a friend of mine bite after discovering us and i said you i said look. This is what i just found out. Didn't you know in the time that you were working with me. That this was what salable ballsy was and she goes. Yeah am i said would you didn't tell me and she goes i on you knew is on you by now what your disability was so it has come to my attention that both one. Denial and they didn't want to tell me and both my parents would denial and they didn't want to tell me he is Into madness I'm not i kind of have a similar story as well. Maybe not night.
"cerebral palsy" Discussed on CrazyFitnessGuy™ Healthy Living Podcast🥗
"My Many really close preston Her name is win. Charles i play. She wrote like twelve or thirteen bucks And i i eventually want to create my own block. I said it I was trying to get a secret. But once i met her it's slipped anyway and And as writer She she wins that race. Thirteen books are fourteen I don schillaci now for those number but she puts me to shame anyway I'm going to let When did do all the talking because She has a very fascinating story by herself. And i invited her on. Because i'm always looking for new people to me and become to meet new friends every single day. So when take it away well thanks for having me on and yes jimmy is correct. In one sense i am i. Eleven time published officer. All my work could be found on my website. Ask win dot. We believe dot com all hand that to me so he could stick an initial notes by the way you guys. I think you should go. Listen to my podcast and go listen to the interview on my house. Because i do have a podcast. Oh did i mention. I am becoming a journalist. And did i also mention dan. On top of the whole claes's. I have a new launch goal disability called salable alsi as i said she makes me really bad. Eleven eleven bucks. I got zero. yep so yeah. And i I started kicking into high gear indian. Lysm back in two thousand ten. But i didn't really kick it into our in kill mortared this year because i I had a day job. I was in the education space for thirteen years. Up until colbert and education space. Let me go. And i when i was coming home from a business trip that i was coming home to no job and i started cli- on little. I started sky on the airplane. Coming back from orlando florida. And i didn't know why and then when i gone to chicago into airport with the person i was traveling with I realized why why started cli- on that flight and basically what i have been doing for the past. Five months is not only going back to school but baxter's go second way and then but journalism work to tense gray. Jeez what made you want to become a journalist anywhere. What made me want to become a journalist. Wall nineteen years ago today as we sit here we call it. Intramural is stem. Eleven and for those of you that all young and remember what happened on. Tama laments nine thousand nine years ago today when two planes flew three planes flew in one to the pentagon one to to the world trade center and change aviation forever and change lives forever. And so what villi made me what stood passion inside me. Is that i. When i realized that people will be impacted by john livingroom..
"cerebral palsy" Discussed on Heartland Newsfeed Radio Network
"A moment. Luke slaughter tombstone returns an expression. You hear a lot is something to the effect that you can't have everything it suggest Well a responsible acceptance of life I mean not forever expecting some miraculously good fortune and most of us. Don't there are certain youngsters who refuse to go along with that idea? Nearly every day they live they experienced miraculous. Good Fortune the youngsters. I mean are the ones with cerebral palsy. The reason the experience wonderful good fortune so often is that too many of them just being able to take a step is kind of miraculous good fortune or when after years of training and struggle in therapy when at last some little kid with cerebral palsy is able merely to lift a glass to his lips. Well that's having everything to that child. Somewhere in America cerebral palsy. Strike some child every fifty three minutes every day in the year united. Cerebral Palsy is fighting. This ruthless persistent tripler joined that fight. And give hope and heart to some little kid in one of the toughest fights on Earth. Join the fifty three minute march on. Cerebral Palsy. Today and now act to William and Robson's production of Luke slaughter of tombstone. You WanNa give me back my gun and give me a chance to draw against you know. I don't. I didn't think you would come on. Let.
A Father's Story with KJ Carson, March of Dimes Ambassador
"K J Carson here. He's an ambassador with the march of dimes. And he has an amazing story that he's going to share with us and he has a lot of information about the march of dimes. I'm really excited to learn because I did not know how much they were helping out women and babies and families so it's really cool. The work that they are doing in Cagey got to experience it firsthand. So thank you so much for being here. Oh thank you so much for having me I guess where the beginning starts. Maybe Two days before our daughter was born and My wife was complaining of tiredness and so forth and we were really fortunate because The situation that we had for her healthcare included included a midwife and so that midwife had given us a card where if something had didn't seem right within a let's just call it a clockwise our someone from the midwife team get back to you so I said Okay. Well once we get back to our home which was about ninety minutes away Let me know how you feel. Maybe your medicine melted my wife's medicine just run out and so I thought okay maybe the worst. You'll need a refill To to kind of your because your body was depending on this medicine for your morning. Sickness so My wife wakes up the next day. And she's like I can't see virtually at all. Can you call the number? It's all like okay. Wow I've never known it to be this. So hit the pause button on that part of the story to tell from the father's perspective and I think every father should probably map out a route couple of them to get to the hospital and the time we're in the Washington DC AREA. If you knew how just absolutely ridiculous traffic is in the DC area. A hat and done this yet. Yeah so after calling the midwife They called back within about twenty five thirty minutes. It's a come into the hospital where okay absolutely. This is what I'm thinking. We'll get prescription for medication and So forth so I'll pause that part before we get to the hospital to say that my wife has been the epitome of healthy eating Not over indulging Had always been on. Medications has never been a smoker of any kind. I can't even get her to drink even the sweetest wine so she she clearly observes just virtually all the tenants of what a healthy mom should be But then when we got to the hospital It just seemed like we were there a little bit longer than expected and it turns out that my wife ended up with a syndrome called help It's an acronym acronym H E L P One way more people would know about is pre ECLAMPSIA but it's a severe case of P pre ECLAMPSIA and so my wife's blood pressure shot through the roof in the high to hundreds was the top number and we were just told. We're GONNA take the we have to take the baby today. And so my wife was only twenty nine weeks pregnant at the time and so our daughter was born two pounds. One ounces of two pounds one ounce And was in the nick you for one hundred and fourteen days She had a category four brain bleed and born with low scale cerebral palsy My wife did not have a chance to hold her her daughter for about four days because of the level of magnesium if I'm correct That was in her system and I was able to see my daughter because of the time that she was born. And because the visitation hours in the Nick. You which we're Kinda split in two times Were about to start so I was able to see her briefly for a little bit but our daughter Sarah was make you four hundred and fourteen days and it was just very tough to touch our daughter through a glass partition where book plexiglass. You know. Just giving her to reach our thumb. Grab our thumb or grab our finger But what was really fascinating about being in the nick? You were the other families in. How kind of Emeka is kind of this bubble of life where It doesn't matter what your walk is. What your beliefs are what your status is. Everybody's there for the same reason they're baby can't go home right away and so it kind of becomes a a small dependency in a way because you look forward to seeing the other families even though you're hoping just like everybody else that they can go home today with their child and so the march of dimes Was there for US When Sarah was in she's now eat When Sarah was moved from one hospital next to the Pentagon Over into an area of Fairfax Virginia The march of dimes had had a kind of like a thing for families where you can stop by. Wasn't anything mandatory. It was just the way to let someone know or let you know that. Someone's there if you had any questions that you didn't feel like you could ask a doctor or or or one of the nurse practitioners or one of the nurses that are in there Let's just say they dealt with the mental health side of it. If the Niki was the physical the march of dimes was there to help address. Some of the mental. And I know for my wife who could speak better about this but I know that it was something as simple as providing my wife a journal because as a husband and Kind of jokey way husbands are just notoriously known for like are you okay are you okay are you okay are you okay? And it's like I'm not okay anymore because you keep asking me but from a serious standpoint I just didn't know which avenue to walk down In terms of trying to get that communication with my wife of trying to understand why our child wasn't home And during that time when our daughter was in the hospital Literally inactive guide. A freak of nature happened where there was an earthquake that hit the east coast and it was like a six point. Oh and I happened to be over the hospital trying to let my wife know like hey look. Don't get out here. We don't know how bad things are. Even though nothing bad happened at the hospital but it was like okay. There's an earthquake. Are you okay at home? I'm wanting I'm going into the hospital as people are coming out and so So many of those different things that were going on that time while daughter was in the nick you The march of dimes able to provide even something as simple as a diary To my wife for her to be able to get her expressions in her thoughts out. You know again Probably one of the things that helped a lot and what I've learned from the situation is you know. Sometimes the foods that you put into your body can can exert exacerbate some of the stresses that are going on that. You're never really prepared for so. I really think that one of the blessings and everything that was going on was that my wife had already had kind of a a conscious thought of what she was putting into her body or not over stacking the foods into your body which you know I I would have no problem that they were. I knew there was one time she was like I'm craving mashed potatoes from KFC. And I WANNA Taco from Taco Bell and I was not going ask. Do you wanna eat this right now and it was just like okay. I'll be back in ten fifteen minutes. Is that enough time? It's just say also get one of those Green Mountain dews okay or the Light Blue Mountain dews. I'm like okay. You're really in his own but it wasn't an everyday thing and I think because that wasn't an everyday thing It allowed some of the mental to be able to permeate and be able to translate to the paper for her For me And I would recommend to any husband or father who's going through the same thing Try and find some things that you know may bring smiles to others During your free time I happened to start donating food to a food bank at that time. In fact that's exactly where I was around the corner From the hospital Earthquake hit and so But it it gave me a a sense of being appreciative. In spite of the things that are currently happening With me at that time. We're with our family at that time.
Marijuana convictions vacated by Brooklyn district attorney
"Engine to sixty one and twenty nine th street last year residents racer voices to reopen. The engine company fell victim to the Bloomberg area. Budget cuts in two thousand three will now the construction boom growing population and plans for Amazon's second headquarters moving into the neighborhood residents are concerned about inadequate emergency protection. The son of an NYPD officer is getting an early. Early holiday present at one of a kind wheelchair designed to mimic a police car. And why PD officers presenting the special wheelchair to sixteen year old Aiden Riley who has cerebral palsy, the chair is outfitted to literally resemble a patrol car right down to the flashing lights and sirens and even has his father's batch number on it eight instead merit was emotional. When he saw the special device created by the organization magic wheelchair saying you saw the smile on his face really can't put a price tag on that. And for the first time ever, the US is making a list of the world's most dangerous places for journalists. The nonprofit reporters without borders added America to the list after six journalists were killed in two thousand eighteen
Muslims Are Having A Hollywood Moment
"Is changing on American television and online streaming services. There are more Muslim characters and more nuanced portrayals of Muslim communities NPR's Leila Fadel starts to story on set in Los Angeles. It's one of the last days of taping for a new web series called east of LA brea, all ROY. It's a show about being your twenties and figuring out life, and it's told through two main characters roommates who are Muslim, but that's not the entirety of their storylines says Samir Gardezi, the creator of the show it's about paying rent. You know, having a dead end job. I'm having issues with you know, your your family life going to families the first project from powder cake, the company founded by director writer and actor Paul fig known for films like bridesmaids and the recent Ghostbusters east of LA brea follows the friendship of two women a black Muslim and Bangladeshi American will slump in gentrifying, Los Angeles Gardezi says, it's one American Muslim story. There's so many different versions, and my hope would be that everyone gets a shot that tell their version of a Muslim Americans story. So it doesn't feel like, oh, this is the one show that needs to make it all the way. We had to the next location for taping an LA mosque the scene deals with racism black Muslims, sometimes face within Muslim communities. The character. I show Hudson played by Geoffrey Maya is praying when her phone starts ringing with a song like this guy. You gain the director tells the other actors how to react and ladies look at her little shady in the next scene. A woman skull Tessin, assuming she's a recent convert and tells her her prayer doesn't count. We have lessons every Thursday one in conflict with it's something that happens an immigrant Muslim, assuming she knows better. And it's one way the show explores identity, and he's still brea creator Samir Gardezi says he's glad there are more projects involving Muslims. But he says there isn't going to be one breakout moment, but hopefully, there will be many moments and the more stuff that's out there, even the bad stuff. The better. That's that is the flexibility and the privilege that I think white communities is that they're allowed to fail and Hollywood and no one really bad tonight. It's like, okay. It's okay. You can you can jump back up and here let's throw millions of dollars again for you to do your next project. So that's the point that we have to get to. It's a struggle a lot of communities of color and minorities face in Hollywood, the two thousand eighteen Hollywood diversity report from UCLA found that despite progress minorities are still under a presented in key jobs from lead actors to director. Two writers right now, there's an appetite for shows about Muslims in parts because Muslim writers like our daisy who's written on modern family and outsourced are creating their own content and their support for it. He got a grant from pop culture collaborative to create the series and some of the interest is Hollywood reacting to anti-muslim and anti-immigrant sentiment from Donald Trump after he announced his candidacy in two thousand fifteen the Hollywood bureau of the Muslim public Affairs Council got a lot more popular the phones were ringing off the hook that sue Abadie. She leaves the bureau and consults with studios and production companies on creating more authentic Muslim characters were up against decades of storytelling. That is inaccurate many times that is racist often and very stereotypical among the tropes women are chattel and don't have identities or Muslims only portrayed as the gas station owner or the taxi driver Obeidi says, it's an uphill battle. But today the list of characters on mainstream television. In is longer than she's ever seen a Muslim third on Grey's anatomy, a superhero on DC legends of tomorrow, a LGBTQ hijab e Muslim on on the bowl type a pork loving alcohol. Drinking Muslim on master of none. When writers come to her for advice. Obeidi reminds them that these Muslim characters might be the only Muslim some people ever meet. She tries to help them. Get the language, right? Like scripts that used the term alot Akhbar, which means God is great. So you've seen many TV and film projects that have LA walkabout being used in very violent scenes how baiting a Goshi it's studios to try to get them to change it translated or offset it with happy scenes like saying God is great at a wedding or a dinner party because for Muslims. It's a beautiful phrase portrayed as ugly. You know? So someone Sears hook bud when they're dining out. And all of a sudden, you know, they're calling nine one one because they think of family is doing. Something bad. When all they're saying is God that was a damn good meal hawk bud. And I've eighties excited by many of the projects now being written by and about Muslims for large audiences. There's soons eight a Palestinian American comic with cerebral palsy writing an autobiographical sitcom for ABC Moammar a comic with the recent Netflix special and Rami Yousef who I met on a night. He's headlining at the Hollywood, improv. He jokes about how in L A's. Suddenly people think Islam is cool juice shot of getting some juices ten song. It's woman I'm telling her about Ramadan. And you know, she works in my God that sounds so I wanted to do with this weekend. She said Coachella. The New Jersey native is following in the path of many comics who've gone from stand up to sitcom like Seinfeld. Rami Yousef is writing ten episodes of show cult Rami for Hulu it will reflect who use of is in gypsy in American a practicing Muslim who like most people wrestles with trying to be good after a stand up performance. He jokes about how he and his friends approach religion a little like a menu. We call it a LA carte where we're all kind of just picking and choosing like wool. This is my deal with God helps Rami reflects how all kinds of people have their deal with God. I like to get dark. I like to get weird. I like to get uncomfortable. And I feel like when an immigrant family, or when a family that is maybe, you know, group that's not well represented when people try and put them on television. They go out of their way to make them. Look amazing and look perfect his show do that. I just was really excited about the idea of making Muslims. Look imperfect and not create something that was like some PR thing, but create something that was you know, really just a realistic portrayal of what we go through. How we are. He says that people connect with others when they see their flaws not when their hero of villain or exactly like everyone else
Ed Donahue, Rae Caruth and North Carolina discussed on The Dan Patrick Show
"From NFL wide receiver. Rae Caruth has been released from prison in North Carolina. He served eighteen years for conspiring to murder. The mother of his unborn child. The child was delivered by emergency caesarean section, but suffers from permanent brain damage and cerebral palsy. I'm Ed Donahue.
First runner with cerebral palsy signed by Nike
Man pleads not guilty to hate crimes in fatal Charlottesville rally
"Hundred wwl w dot com search news i'm jack crumley at arrest was made in a fourth of july incident middletown police on thursday arrested thirty year old abdul hamas who was wanted for aggravated menacing inducing panic in violation of a temporary protection order fourth of july night he was allegedly using a gun to threaten people who live inside of a home in the seventy three hundred block of men's road in franklin township a tactical team had been called to that home and when police went inside they do hama was gone mattress newsradio seven hundred wwl w a former northern kentucky man facing a federal judge yesterday acu accused of committing hate crimes in the state of virginia james fields indicted last week on more than two dozen charges prosecutors say fields drove his car into a group of counter protesters at a white nationalist rally in charlottesville killing one person and injuring several others one little girls fighting since the moment she came into this world makes a major milestone by taking one giant step abc's tom llamas as the story the moment maya tis dale of traverse city michigan and her family had been waiting years for four year old maya her family closer mighty miss maya take her first independent steps gone a proud moment in a milestone for maya born four months premature a micro preemie wayne only one pound and ten ounces just before she turned to mile was diagnosed with cerebral palsy and.
Michigan girl, 4, with cerebral palsy just took her first steps
"The prize as a one time payment of about one point seven two million dollars after taxes route eighteen superstar in washington street in abington will receive a forty thousand dollar bonus for selling the ticket the odds of winning one million dollars in that jackpot ten dollar game are more than five million to one good for him a four year old girl with cerebral palsy named maya is taking her first steps of video of the momentous occasion posted by her family in michigan is going viral the caption with the instagram video says nothing seems to fit the enormity of this moment for us we are beyond proud of our mighty girl new hampshire man under arrest charged with scamming his way into student housing at plymouth state university in order to satisfy his underwear fetish police in north haven new hampshire say jared ryan posed as a smoke alarm inspector and talked his way into the building police were called when he started knocking on apartment doors ryan told police he had hoped to steal women's underwear but was unsuccessful because the renter's kept following him around the apartments it seems that bruce williams was prepared the twenty nine year old man with autism who was once an eagle scout relied on his skills while lost in new york's adirondack woods for fifty hours in a heatwave he left his family's camp for a swim saturday afternoon when the temperature was in the nineties williams who lives in the albany area has problems communicating he also has weak peripheral vision with motor dysfunction but he was able to locate.