Cancer, Mcmillan, Twitter discussed on Talking Cancer
Basically our smallest Michael have to eat smaller portions more often about five or six times through the day when when when the surgeon was telling me they explain that and he said all right. I said Yeah. That's fine. You do what you need to do. Just going with the flow. So long as you can get me cancer-free that's absolutely fine. You just do what you do. I'm I'm very excited for you. Does it feel like there's light at the end of the tunnel definitely and north of people? They don't have that light and the have through my twitter feed through a blog have connected with people and have met with people who unfortunately asked edge for and this definitely at the end of the tunnel for me. It's difficult because it's it's not there for everybody but there's there is an when our meet people they're saying things like. I'm going to make the most of the time. Now I've got some glimmers of light for everybody it's just it's just different light for different people. One of your lights has been your blog which is brilliant and funny gorgeous and lovely and and I'm sure has has made a massive difference to how you've dealt with all. This was an immediate thought. Did you think I've gotTA write this down? I've gotta write this down you. Are you a writer knowing? This lights? a holiday twitter feed 'em a dump that quite quickly and then got a new twitter feed and that was specifically focused around me and cancer. One of the main things I wanted to do when I was diagnosed was I guess to help with is being a nurse. You want to be able to help with is in terms of their healthcare and it also gave me a purpose as well so. I worked fulltime and when I started my chemotherapy I stopped and I thought what am I going to do? So I started writing these these tweets and quickly got to realize I've got a lot more to talk about. Then they set number of characters. That twitter's giving me on a tweet and people were saying writer blog right blocking us in Conrad a blog of never written a blog. I don't even read blogs. Do People read blogs in him? I didn't know so a very quickly to start. Actually you guys are right. I'm going to start writing a blog. So focus them around very specific areas around concern around. Saggio CANCER RECIPES THAT. Make it easy to swallow what my slots been like. How pick line was done to give people a bit of a a timeframe of all right? This guy waited for weeks for this to happen. Are This is what this person experienced. And it's quite therapeutic for me as well because I get to write down. What's in my head so I get a bit of something positive for me as well. Getting out getting clear people come back. Say and that was really helpful. Mud Scott they saw I'm experiencing they really good to know what might happen to me as well. So there's definitely positive feedback coming from which is all I want. I'm actually just thought no one's going to beat this. My friends might join not state. But there's so many people that read in the recipes. Tell me about the recipes. I see a master chef challenge so one of the things that I found quite difficult knowing. What would be easy to swallow and things that you wouldn't even think would eat as well as people say. Toast anything what toast is dry. Thanks crackers really easy to swallow. That doesn't make any sense. It makes no sense so one of the things I wanted to do was put some healthy recipes out there that would try and stay away from things like refined sugar. Try US more. Natural things like Maple Syrup or honey also things that are going to be easy to swallow really am so things like jolly prawns seafood with was with me for longtime fish and seafood because it was easy to swallow so golic King Prawns garlic mushrooms. Similar is a bit of lubricant in. La Books at our oil. That's that's going to be easy to go down and something that's got taste as well so thankfully my tastes and the moment haven't been affected but I know that the might do in the future but people generally have like a bit metallic taste when the things off throughout the day. So I wanted something that's spice or something flavor to kind of take that away. It's really lovely to meet you and speak to you in you know And share such a positive outlook. And what's the what does the future look like more immediate future? I guess is get through treatment. Get through surgery an Komo on the other side hopefully and things so it quite positive one of the things that has really hit home is a really enjoyed making connections with people who were in the same situation as me. I been through something that somebody is going to be through. And you do almost connections and it has made me think to myself actually. Is there a future in this for me of really enjoyed it and looking at at things like McMillan is this? This is something I can do in the future to be working with a million future. I'm definitely going to be raising money at some point of raise MARINA PASTA FERRUM. Mcmillan before I did the National. Three P twenty four hour challenge back in two thousand and nine. So this is your from Yorkshire. You do this in your city. You guys it's like literally going for a walk for everybody now. I'm very impressed. Yes so are you. Are you saying we are you? I mean could there be milliner in possibly who knows what's the space. It's definitely something I've thought about. Fish are definitely million in and the really helps me unto for me to continue my journey. Hopefully being cancer free with somebody like McMillan would for me would be amazing because I've enjoyed it so much. So yeah maybe on the cards listen. You are literally the that you are literally the perfect combination of of of having experienced natural instinct for caring as a nurse and you can bank coffee mornings exactly. Come on and on that note. Ben Thank you so much. We wish you the best of luck with the rest of you treatment and we will speak to you again. I'm sure in the future but fundraising activities way or life has found itself in Q. Hello date lovely to see you. Dany Bell is one of our magnificent McMillan professionals. What were your thoughts on listening to Ben Story? What he describes really is a lot of people experience when they get a diagnosis in go through treatment with with cancer. So I'm sure a lot of people identified with Ben. He had an interesting combination treatments as well. He had chemotherapy and then surgery And he had no idea that there were so many different types. I know I mean is mind boggling but they are all fairly standard treatment regimes for different types of cancer. And as I said before they're they're given acronyms to make it easier for the professionals to understand but it's not an unusual process for some cancers to have what we call neo atrovent than surgery and some people. Then have something after that as well so it depends on the type of cancer and your response as well to treatments Ben. We know took his fantastic with him. Who took a notebook and a pen to write things down? Don't Google obviously answer some questions for some people If you WANNA find out more about the treatment you've been prescribed. Is this better to go to. There are lots of information sources out there about the different treatments. Essentially the treatment center will have fact sheets or information about the types of treatment that you're having but what they need to understand is what type of side effects that you're likely to get just in case you need support hours equally going to go and hopefully Hitting on one of our web pages We'll give you understandable information. And there's lots of downloadable information of the Internet from our website. That people can use Dania. You entitled to a second opinion. If you don't want a certain type of treatment absolutely you can ask your specialist. If it's possible to be referred somewhere for a second opinion and sometimes you can go to your gp for that as well but the specialist likely to know some people will actually look it up and they will look up their condition and they will compare to other hospitals so but you you do have to have a referral. Unfortunately you can't just rock up so my advice would be if anyone wants a second opinion than they just have to have an open and honest conversation with with their consultant. Ben gave us a super tip about his cancer bag that he took. What are the kinds of things that you see that you you can tell us about preparing people for treatment? One one of the things that people often struggle with is the traveling to from treatment. That takes its toll loss of appetite feeling tired and so sort of planning for that around your kind of Treatment regime can help And just making some adjustments to kind of make it easier for yourself I mean if someone like me I'm always rushing around and I have to do everything but appropriate wouldn't be up to do that and I'd have to make adjustments and not have to accept help and for some people then used to accepting help so I think it's Having an understanding of what your treatment regime as what the potential side effects might be and then also after you've had the first treatment you'll have a clear indication of how it might impact you So that you complain talking about side effects then bless him did lose his beloved quiff. Quick thing about Harry goes back so we will see the quick again taste. Buds are okay. But what are the common side effects of a generalized chemotherapy radiotherapy plan so nausea and? Dara our common one for some people they have Harry saw mouth and added to losing your taste that can be really really challenging in terms of eating some people get issues with Sensations the tingling didn't he yes yes so you can also get something we call it hand on. Foot Syndrome where you get painful sore palms and sometimes blisters. It depends on what type of drug regime you're having and I've heard people say in terms of treatments of all of the treatments. The chemotherapy is what they found the hardest cope with. Tell us a little bit about losing your hair because it was really interesting talking to a man because I think everybody assumes that it's it's just women and we all the people that would care about it but it is a common side effect other alternatives now available to to reduce that to help that there are. I mean there is the coke cap but not in itself seems like an experience that you have to kind of be resilient to coping with just to keep keep your and when you think about how great some wigs are out there made of natural hair and you know. I've come across people and you wouldn't even know that. They're wearing a wig It's very individual really very individual. But I think the the thing to remember it's not just the hair on the head that they lose. They'll lose their eyebrows and their eyelashes. And so it's that whole look really That's tough year. How do you know when you treatments working? Do you feel better How do they tell you yes? This is going to plan the do that by monitoring. So they'll do that with blood tests scans And generally they. I mean because you obviously have to have blood test to make sure you're well enough each time to your body's well enough to cope with the chemotherapy Site before each cycle. You will have a blood test but usually about three months in. If you're on six month regime they'll do a sort of a stocktake and see what the impact is. Do you have regular meetings with your oncologist during that time? Will you dealing with treatment centers? So so you will.