Listen: Linda Dima, Edina, Cancer discussed on Lymphedema Podcast
"Linda Dima can be present during treatment. It isn't something that only appears after remission. Episode three is a little boring. I will warn you but it really breaks down while the body needs external pressure to manage. Lymph Edina. I'll summarize here but please for a detailed explanation explanation. Go have a listen to episode three as I mentioned in last week's episode Limpid Dima related to breast cancer is classified as secondary. I'm for Dima secondary lymph Dima occurs anytime. There's an injury to the lymphatic system lymph node biopsy mastectomy Radiation Gatien Chemo and reconstructive. Surgeries are all injuries to the lymphatic system. especially the superficial lymphatic vessels when an injury occurs system that once functioned at one hundred percent is now down to ninety five or ninety when you add on another treatment it goes down at on another surgery and it goes down some more see the trend. That's occurring. When the function of the lymphatic paddock system drops below a level that the body can compensate or main inch? There's a backup of lymphatic fluid. Your body makes three to five liters a day of lymph and it doesn't know to reroute the fluid from one area to another when an injury has occurred word because the fluid is generated everyday as a waste. Product of your blood in the lymphatic system is damaged the arm arm or the chest begins to swell more and more each day. Compression is crucial to manage limb volume early intervention before before. The swelling has an opportunity to build up can prevent the painful swelling associated with Olympic. Dima that occurs later prophylactic compression. Russian is very important. I want to tell you about my wonderful mother. In Law following her bilateral mastectomy I began to tell her about their the risk of developing Linda Dima when she travels and I soon after fitted her compression to where anytime she flies to this day she has compliant too where her sleeve as soon as she gets to the terminal and for about an hour or two after she lands at her destination. She was fortunate that she had very few lymph nodes removed and she did not undergo chemo or radiation following her mastectomy. I strongly believe that she has not not had any signs of lymph Dima due to her compliance wearing compression when she's most at risk of developing swelling in addition to wearing wearing arm compression a post surgical compression brawl can eliminate swelling that occurs in the underarm or the area that I call your side Boob as as well as the remaining breast tissue to talk about the importance of preventative compression. I want to invite my new friend. Josh the PODCAST. Josh is the president of lymph the divas. And if you're looking for a compression sleep or glove that has as much personality as you do then look no more lymph divas offers a perks exterminate compression. That comes over one hundred patterns five solid colors and they can even put crystals on the fabric. I love the story of how how they began as well. And I just want to introduce you to my new friend. Josh Josh. Welcome to the show thanks. It's a pleasure being here with you. Great I'm I'm glad to have you and I know about you but can you tell us a little bit about yourself and how Limpid Divas began. Sure so I have have been running liberty. The does the president for the past nine years but it wasn't really my company. This wasn't something that I had started and it it really started with my sister. Rachel As well as another woman Robyn Miller so my sister Rachel was diagnosed host with breast cancer. back in two thousand and five just before her thirty fifth birthday This was a pretty big shock. Walk to us as a family into her. We didn't have any history of cancer that was known in our family at all and so for my sister to have felt delta lump and gone in and been diagnosed was a real shock at that time she was diagnosed with triple negative and they took out about nineteen in lymph nodes during her diagnosis That was followed by some pretty aggressive Chemo and radiation and a couple of months. After she finished her treatment she started noticing the feelings of kind of heaviness in one of her arms. And that's something that you're probably fairly familiar with And so she brought that up To Her Desire Trista University of Pennsylvania. Who is Dr Andrea? Chevelle and Dr Seville immediately lately recognized what was going on and gave her a prescription for her first compression garment and that was sort of the beginning of what was a fairly lean negative experience for her. And this is something that probably many of your patients have dealt with as well where she walks into this. DNA ame store that's filled with wheelchairs and bedpans and crutches. And you know it's just not a welcoming place. She gets up to to the counter and says to the person behind it. You know I had a prescription here for a compressions leave. What are my options and you know this was back in two thousand and six where there weren't really any options you know takes off the shelf and it's this medical beige garment that's thick and heavy? It's a course horse fabric and it was just ugly and my sister looks at it and said don't have any other choices here and the guy just sort of smiles and looks back back and says no you know. There's some other manufacturers that make this but they're all basically yes and she left the store incredibly upset Shortly thereafter. She was in the waiting room to see Dr Chevelle with Robyn Miller who is an even younger woman going through all of this as well and the two of them talked about the difficulty of wearing these garments the prospect of having to wear garment like the wind. Oh ended that she was given for the rest of her life and the two of them decided that they wanted there to be more options. They talked about it with Doctor Seville who said well. There really aren't any so if you want something you're going to have to do it yourself. And the two of them to sort of looked at each other and said okay fine. I will do that and that was really the beginning of Linfen Divas in. What got her started with this and you know? She was an athlete and she was wearing being sports compression. And so what she tried to do was Meld sports compression in medical so to have a comfortable moisture wigging lightweight breathable garments And make it attractive but still have it be true medical grade compression and that was really the beginning gene of lymph divas Unfortunately my sister's cancer came back in late two thousand seven and she passed away a in the early months of January in two thousand eight at that time She had asked my father. Dr Howard Lavigne to come out of retirement and try and make the company a success. He was able to get the company profitable at which point he let me come over. I had been asking for months and months and months earlier To be able to help out but he couldn't keep the company going and pay my salary us us so we waited until he was able to get the company profitable and once he did that. I left my job in consulting to come and take over and continue my sisters legacy. I love that story that is fabulous and what better way to honor her legacy than to can't can't keep the divas going and that's really what we try doing. It isn't just about the company for us. You know this is. This is really about making taking options trying to make a better and more effective garment out there and it feels like a lot of the things that we have seen. Industry do are things that my sister started. You know there were no other skin tones besides medical beige when we got started. We presented a darker option that others now offer offer. There were no solid colors besides beige before we got started now pretty much any every manufacturers offering at least some variety if not just just a solid black we were the first to really look at the risks on the hand pieces to make sure that there wasn't an overlap of compression between the hand piece and the wrist. We were the first to start looking at patterns. We were the first to really push the idea that you could machine washing machine dry these things to be easier cared and for you know. We have really pushed the industry in directions in areas that they might not have gone all in the effort to present into auctions and choices for those dealing with this disease. So I know I've covered it a little bit before in conversation. And you mentioned into here with your sisters specifically but what happens when lymph edina occurs in people after breast cancer treatment we've already talked about heaviness are you mentioned heaviness. Were there any other side effects some of the women that come to you and say hey. I've had breast cancer treatment and I feel XYZ now So you know the important thing to realize here is that there's a lot that we don't know Which I think is something that you are probably very aware era of but that there is a lot that is unknown in terms of what type of damage is going to affect any particular individual? So when we're talking about if you've had any lymph nodes removed if you've had any radiation therapy there is some risk that is is now something that you need to consider and decide with your therapist. What things you are willing to do or what you believe is necessary you to do to potentially help reduce that risk? But you know once you start to see the signs of early stage lymphoma the Dima where you've progressed beyond stages euro and you're now in Stage one where your arm can be a little bit of a little bit painful you can feel that heaviness that's something just isn't right You might even start to see. Some initial signs of swelling. Were one is either larger than the other or you know. You're able to press a ace thumb or a finger in your arm and it leaves behind a little bit of a divot for a little while until that fluid filled it back up again but those are the things is that we start to hear about ones people inter that stage one of lymph Edina. And that's I think where it is even more important than and even the preventative work. Although the preventative is highly important. Once you've got this as you know it doesn't go away so it's about working working with your therapist with your medical advisors to figure out what things you're willing to do to help prevent it from even starting but that once it begins you get on on top of it. You start seeing a therapist wearing compression when you need to whether it's during those high risk activities like flying exercise or if it's you know it's something that you need to wear all day every day and then a night garment in the evenings You know these are all these conversations that you wanna have as early earliest possible so that you can help. Keep your limb at that stage one level of lymph Dima and. I think that's something so important important to stress to women in men when they're going through breast cancer treatment is that that risk for Olympic Dima. It doesn't go down as you are. You're out of your treatment sessions so if you're an admission your chances of developing lymph Edina. Don't necessarily go down Some people say that you know after three to five five years. You're kind of in the clear but I've known women who ten fifteen twenty years after have developed lymphoma by doing a daily routine. Oh One lady. Who's actually very good friend of mine? She was painting in her dining room. And she's just over and over was doing a repetitive action and that that caused her lymph to come on and she had been active and healthy for all these years since her cancer treatment.."