Doctor Scott, Hospital Of Philadelphia discussed on America Tonight with Kate Delaney

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Is birth defects awareness month I think a lot of people aren't maybe perhaps aware of that somebody who definitely is is doctor Scott ads like he's a surgeon in chief at the children's hospital of Philadelphia quite a resume that doctor ads like has he's he's absolutely dedicated his life to this he's an innovator in fetal medicine since the fields inception release of doc thanks so much for coming on with us leisure the babies each year are born with birth defects to put it in perspective both of the fax awareness month I'll get give you some key points first of all wanted thirty three babies is born with a birth defects other amazingly calm and Effexor costly billions of dollars required for medical treatment effects are merciless no parent should is immune the mysterious most because of birth defects are unknown they're over log in my view the research is under funded and their birth defects are dead later the leading cause of infant mortality so in terms of stats each year in the US nearly a hundred and fifty thousand babies are born with birth defects many what conditions are rare most parents and even some commissions have never heard of them and so too often these families are made aware of the treatments available at a place like our center pretty diagnosis and treatment of strollers hospital of Philadelphia and are left feeling overwhelmed with few options so it's great that works out talking so that your listeners can hear about this relatively new enterprise of fetal surgery yes so talk about that what could be helped by having the surgery while the baby is still in the womb I'll give you a couple of examples the two most frequent operations we do before birth are he discovered a laser therapy for twin twin transfusion syndrome and the other is open fetal surgery for the for the self for Clinton transfusions syndrome the set up is identical twins each in their own amniotic sack in as opposed to East when having its own post the password this that connects the fetus to the mother they have a shared concern in their abnormal blood vessels I go from one side to the other says that one of the identical twins gets too much blood and goes in the heart failure develops and in excess of a on the other hand the other twin doesn't get enough blood goes make the failure and doesn't produce any of the comes a spectacle and the way to treat that and disabled to answer otherwise doomed to put a scope inches to the nearest to the mothers of down a wall in your wall this was the person and use a laser fiber the phone call I get later include those culprit blood vessels with very good outcomes the second example is he'll surgery responded to us but it is the fact in which the coverings of the spinal cord don't form and so the in the higher this is a misspelling core the more nervous or affected and and we learn that there's ongoing damage to those lawyers through the entry or environment particularly amniotic fluid exposure because that's mostly all year so we've developed techniques about twenty years ago back in nineteen ninety eight to do this refuse but about the repair reformers have shown actually do a randomized prospective trial for them of the national institutes of health that fetal surgery respond above the photo has much better outcomes than surgery after birth in terms of better motor function for the babies dollars a walk in terms of decrease incidence of hydrocephalus the rain damage in terms of decreased need for us to to drain fluid from the brain so that's now widely applied actually worldwide stew so saying that is widely applied and wondering how rare still is fetal surgery given some of what you've already told us well graphs old older information is maybe a four thousand people searches done worldwide we we've got about a quarter of them but we also throughs consortia like a north American people therapy network which is a network of now thirty six feet treatment centers in North America that are working together for these rare problem so that we can learn from one another and collaborate for patients data was huge Dr Scott ads like he's the surgeon chief at the children's hospital of Philadelphia since you've been in this in and near the director of the hospital center for feel diagnosis and treatment since you've been then in this up for so long doctor ads like do you feel hopeful that that they're going to be more surgeries you'll be more preventative things that can happen here why it is quite true that we've educated teams not only in North America but also in Europe and in Asia so is spreading worldwide which brings benefit to patients and then there's a lot of things that we're working on now that are very exciting particularly in the area of cellular and gene therapy for example one of my colleagues on your own like a pediatric surgeon here job has worked for thirty years to develop techniques to do in Nero stem cell transplantation early into the station to potentially treat sickle cell anemia use using blood forming stem cells are harvested from the mother and the pre immunity this experimental work shows will not reject those stealthily Grafton takeover the missing function another one of my colleagues here doctor William Pronto is another pediatric surgical scientist is working on in the year gene therapy in in utero gene editing using crisper technology that is shown in animal models feel at home models that this has proof of principle that this works not ready to be applied correctly yet but that could affect thousands and thousands and thousands of babies with free nearly diagnosed genetic disorders say for instance like the cystic fibrosis the desk denture work we're doing orchard now again in animal models with the the artificial world which we we hope we've shown and fetal sheep that we can support he'd all she'd for four to five weeks and then the an artificial womb with their own growth and development so we hope that could eventually be applied to babies who are born prematurely say at twenty three twenty four twenty five weeks gestation because it makes a world of difference whether a baby is at that early just Daschle age or five weeks later when the babies out of commerce so dramatically better while I read tell everyone they go to fetal surgery dot chop dot E. D. U. fetal surgery dot chop dot EDU to find out more information Dr Isaac thank you so much welcome thank you wow interesting what's happening at shop I have a cousin Jen Lorenzo who who works at chop and and has told me some of the things that happen in the neo natal unit and it's some pretty amazing some of the some of the things that happen in that hospital as we continue in this edition of for your health the flu the flu the flu the northeast has really been hit by the flu and me just a crazy record in New York and in other parts of the area the US centers for disease control and prevention listen to this saying twenty seven children in the US have died of the flu that's so hard for me to wrap my head around that it's the highest number of child blue desk at this point in the season since they started keeping these records seventeen years ago right doctors are saying they're seeing huge numbers or unusually large numbers of flu patients at this point and for example as in New York at the land phone health center they've seen two hundred seventy flu patients adults and children in their emergency rooms and clinics in Manhattan and Brooklyn in the last week of December they say it's not usually what they see they don't see that in late December early general usually seat in February or March so there's some huge huge concern about the about the the flu and you know we always talk about the strains of of flu and that's always part of it is what is the strain of flu which you know what's happened here for something else that I think a lot of you can relate to I know myself that I worry about the sometimes with burned out and they say if you're feeling that bone deep mental and physical exhaustion or what is otherwise really called burn out there's new research suggesting you could be at a high risk sadly for a potentially fatal heart flutter and it's called a fib we've talked about that on this show and it's a heart rhythm disorder that leads sometimes the cause of stroke in the United States in Europe they're saying this effects I didn't realize his number was so high it affects thirty three million people and is responsible for a hundred and thirty thousand deaths seven hundred fifty thousand hospitalizations every year to pay attention to these symptoms if you have chest pains palpitations the short of breath fatigue that is certainly one of the one of the symptoms because it's sometimes it's really hard to spot it's potentially silent killer and that's what it's called and chronic stress and exhaustion is a key factor in developing this disease so I guess one way you know to be careful as you can see it when you're walking when you're when you start to feel that shortness of breath except for so I know for me it's been about taking more time in and taking a breath and nothing that you're doing not that I'm lecturing to anyone is worth having a stroke over having something horrible happened get that you know a sieve and high blood pressure's smoking obesity is another factor all of that anything to reduce it because of how incredibly prevalent it's starting to be made according to the American institute of stress eighty percent of American workers say they feel stressed so that's one factor right there and half say they need help with managing stress this is just more than than work we talked about this before sometimes is the constant connection to social media and constantly trying to be on top of everything and burn out of course is a is a major stressors so let's make this new decade one where we thrive and survive he's right but thrive in a good way and of all people to lecture anybody but I'm just saying when I saw the study and I looked at some of the numbers.

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