Seattle, Ucla, Mr Moore discussed on All Things Considered

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In seattle to la multiple times for seven years to get additional cells without telling him they had this commercial interest in his sells more sued and eventually reached a settlement with ucla that mr moore certainly felt betrayed through the process some of the same issues are surfacing again as university researchers realized that they are sitting on a valuable trove of digital medical records such as cat scans and are starting to use these records to develop commercial products in a certain sense whether it's cells or bits and bytes it's all information about an individual at some level dr nobile suffer a radiology professor at emory university met me at a recent medical meeting to talk about these issues he says that if that information ends up being used to develop a commercial product that's worth millions are patients entitled to a cut that's a question that i think we really need to figure out you know and if i were a patient and my data was used to develop something which was being shared outside as product i'd wanna know that's usually not how it's done at many research hospitals patients routinely sign a paper in that huge stack of admission paperwork giving permission for the institution to use their personal data for research for someone to sign away the rights in perpetuity for their day to be used for all possible research applications in the future that's something that i i think would deserve a lot of scrutiny and that's not something that i would agree with but that's exactly what happens at johns hopkins hospitals and it's approved by the university ethics committees says dr karen horton head of radiology one major protection is that the data they are using for.

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