LEE, Katie Mcmurray, I discussed on Life of the Law

Life of the Law


There's more codified types of governance, like institutional review boards that you have to go through. If you're going to do a clinical trial and they do kind of consider things like ethics when they're looking at your application and then they're, you know, the other one I think is forgotten. A lot is journals. So inside. Since you know, one of the big drivers for researchers is publishing your work and you do that injure Nel's. And there are actually sets of standards that journals put in place that speak to certain types of applications and ethics involved. And if you don't meet those standards, you don't get published in the journals. So in some ways, that's a really important gatekeeper for things like values enough fix. So are you saying that these three methods, the journals, the i. r. b. and what was the first one? A government regulatory bodies. Right. So does that mean that anytime a a genomic process is considered or validated or verified by the FDA EPA and the other one, the US USDA that they have to meet those standards before it can be approved as a process. If either. You mean the standards of those agencies? Yes, yes. So so if we all are reading journals, scientific journals, and we're all paying attention to approve institutional review board processes and repaying attention to governance review. We might protect ourselves. Yeah, yeah. And I, I would also say that you know, beyond those their other forms of governance, rather than regulation, like there are societies, there are professional societies that play a really large role in in deciding what you should Incheon do. I don't even know where to turn and in many ways right now in terms of protecting, you know, having that wakeup call and feeling that you want to kind of reach out to everyone and say, be careful how much you give up right now, careful what you give a in terms of trying to find out about yourself. Be careful what, what information you're allowing entities to collect. About you and where that goes. So Lee one, don't you just in your closing once you tell us, why did you do that? Ancestry test? Yeah. So for me, you know, I actually chose the tests that looks at ancestry, and there's version on twenty three in me. That is not medical. It's also looking at ancestry, partly because I, you know, I hadn't really come to conclusion about what I wanted to do with that medical information in what I wanted to know in what I didn't want to know. So I- restricted my search to just finding out about family history, so to speak so ancestry where where my ancestors came from and I, I went with the company ancestry and now I don't wanna give, you know, I'm not trying to sell ancestry test, but but I did note, you know, when I thought about it, I did look at their terms and conditions, and they do say that your DNA, your genetic information is yours, so you own it so you can. Ask them at any time to remove it from their servers, which to me was that was a good selling point and and as well, they say they don't share it with third parties in less, you give your explicit consent to do so. And of course, you know, all of those privacy things are them offering to me. It's not clear legally, you know if they broke that promise in their terms and conditions what would happen to them. But I thought the fact that they that they recognize that this is an issue that a lot of people are talking about and wondering about that was a very, very promising thing with that. That's all the time we have for in studio. We'd love to hear from you. Tell us what you think about getting your DNA tested and have you done it and how much do you know about what's being done with it? Or if you have a question about the law or you know of new store, you want us to sort out Sunday Mail to connect life of the law dot org, short. Your contact information so we can follow up. Thanks to our in-studio team today. A soggy Bosque professor, the UC Berkeley school public health and a member of our advisory board. Tony gone on our senior producer, Andrea Hendrickson, associate producer and Lee would cow ski policy analyst with the innovative genomics institute at UC Berkeley. Rachel Caine is our social media editor. Katie McMurray is our engineer here cake. We also wanna take a minute to thank listeners who have made donations to help us at life of the law, make our one hundred by one hundred challenge raising ten thousand dollars. These funds have made it possible to complete production on this upcoming episode, make a donation by going to our website life of the law dot org. We're a nonprofit project tide center, and we're part of the panoply network of

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