Massachusetts, Kobe, Wanna discussed on Radio Boston

Radio Boston


You're going yes. Sorry. We have a delay. Of course we're all three different places due to the virus that we're talking about right now go ahead and add your point there. Normally. As far as you want some concrete data right now Massachusetts we have over thirty two thousand people that are living in nursing homes right in his estimated that at least ten, thousand of those people could be living in their own homes with the proper supports. So the onset decision on ninety nine ruled that unjustified segregation of people with disabilities in five discriminate because it violates the ADA and we all know to stable housing is one of the key determinants of health. Right. But if you look at it in this pandemic, ask for the Kobe nineteen, the highest death tolls over forty percent are amongst people living and working in nursing homes that's over forty five thousand people that have expired. Nationwide, in over fifty three, hundred people here in Massachusetts alone and folks that disabilities are definitely represented amongst those underlying medical conditions. So you know if you want to talk about again real intraday it integration, we have to be able to move folks out of nursing homes where they're more at risk out of these institutional facilities and move into the community where they can live independently access the American dream live, it fully, you know folks need some supports personal care attendants supported living do a variety of them, but the key for our state really is a lack of affordable and accessible housing. All right. So we have about two minutes left and I want to ask you both just briefly from each of you. If there were an ad a two point. Oh, law to come forward today what would be key provisions you'd WanNa see. Good question well, I'd say I think some key points for progress into the future. You know I think that that policy change and legislation and laws can change infrastructure and we've seen some impact there but but but laws don't necessarily change culture, and so I think when we think to the future of what could have the biggest impact we still have a lot of work to do as it relates to reducing or cultural bias and stigma around disability. Disability is something that impacts frankly nearly everyone at some point in life and that when we think about inclusive services. We need to understand that it's not just for a small subset of people in our society that's actually for everyone. So I, I would probably try to tackle it from the standpoint of thinking of how how we can. We can continue to make progress as it relates to things like the built infrastructure, things like accessibility and communications, things like closed captioning and accessible websites. But how we really get at the cultural change reducing stigma around disability and understanding that it's not a lesser way of living or something that needs to be devalued but actually heart of the big life experience that we all face. You that have about a half a minute left please are good for me. I'd say education and enforcement a laws only as good as it is enforced and I think education about some of the things that we talked about..

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